9780597830365

The Official Parent's Sourcebook on Mitochondrial Myopathies

by
  • ISBN13:

    9780597830365

  • ISBN10:

    0597830363

  • Edition: 1st
  • Format: Paperback
  • Copyright: 2002-09-01
  • Publisher: Lightning Source Inc

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Supplemental Materials

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  • The New copy of this book will include any supplemental materials advertised. Please check the title of the book to determine if it should include any access cards, study guides, lab manuals, CDs, etc.
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Table of Contents

Introduction 1(1)
Overview
1(2)
Organization
3(1)
Scope
4(1)
Moving Forward
5(2)
PART I: THE ESSENTIALS
7(26)
The Essentials on Mitochondrial Myopathies: Guidelines
9(8)
Overview
9(1)
What Are Mitochondrial Myopathies?
10(1)
Is There Any Treatment?
11(1)
What Is the Prognosis?
11(1)
What Research Is Being Done?
11(1)
For More Information
12(1)
More Guideline Sources
13(2)
Vocabulary Builder
15(2)
Seeking Guidance
17(6)
Overview
17(2)
Finding Doctors
19(1)
Finding a Neurologist
20(1)
Selecting Your Doctor
21(1)
Working with Your Child's Doctor
21(1)
Broader Health-Related Resources
22(1)
Vocabulary Builder
22(1)
Clinical Trials and Mitochondrial Myopathies
23(10)
Overview
23(3)
Recent Trials on Mitochondrial Myopathies
26(1)
Benefits and Risks
27(4)
Keeping Current on Clinical Trials
31(1)
General References
31(1)
Vocabulary Builder
32(1)
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
33(58)
Studies on Mitochondrial Myopathies
35(30)
Overview
35(1)
The Combined Health Information Database
35(10)
Federally-Funded Research on Mitochondrial Myopathies
45(11)
E-Journals: PubMed Central
56(1)
The National Library of Medicine: PubMed
56(1)
Vocabulary Builder
57(8)
Books on Mitochondrial Myopathies
65(10)
Overview
65(1)
Book Summaries: Online Booksellers
65(1)
The National Library of Medicine Book Index
65(4)
Chapters on Mitochondrial Myopathies
69(3)
General Home References
72(1)
Vocabulary Builder
73(2)
Multimedia on Mitochondrial Myopathies
75(2)
Overview
75(1)
Bibliography: Multimedia on Mitochondrial Myopathies
75(2)
Physician Guidelines and Databases
77(14)
Overview
77(1)
NIH Guidelines
77(1)
NIH Databases
78(4)
Other Commercial Databases
82(1)
The Genome Project and Mitochondrial Myopathies
82(5)
Specialized References
87(4)
PART III. APPENDICES
91(2)
Appendix A. Researching Your Child's Medications
93(8)
Overview
93(1)
Your Child's Medications: The Basics
94(1)
Learning More about Your Child's Medications
95(1)
Commercial Databases
96(1)
Contraindications and Interactions (Hidden Dangers)
97(1)
A Final Warning
98(1)
General References
99(2)
Appendix B. Researching Alternative Medicine
101(14)
Overview
101(1)
What Is CAM?
102(1)
What Are the Domains of Alternative Medicine?
102(4)
Can Alternatives Affect My Child's Treatment?
106(1)
Finding CAM References on Mitochondrial Myopathies
106(3)
Additional Web Resources
109(3)
General References
112(1)
Vocabulary Builder
113(2)
Appendix C. Researching Nutrition
115(10)
Overview
115(1)
Food and Nutrition: General Principles
116(4)
Finding Studies on Mitochondrial Myopathies
120(1)
Federal Resources on Nutrition
121(1)
Additional Web Resources
122(1)
Vocabulary Builder
123(2)
Appendix D. Finding Medical Libraries
125(8)
Overview
125(1)
Preparation
125(1)
Finding a Local Medical Library
126(1)
Medical Libraries Open to the Public
126(7)
Appendix E. Your Child's Rights and Insurance
133(10)
Overview
133(1)
Your Child's Rights as a Patient
133(4)
Parent Responsibilities
137(1)
Choosing an Insurance Plan
138(2)
Medicaid
140(1)
NORD's Medication Assistance Programs
140(1)
Additional Resources
141(2)
ONLINE GLOSSARIES
143(2)
Online Dictionary Directories
144(1)
MITOCHONDRIAL MYOPATHIES GLOSSARY
145(12)
General Dictionaries and Glossaries
155(2)
Index 157

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