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Working with Families of Children with Special Needs : Family and Professional Partnerships and Roles,9780137147403
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Working with Families of Children with Special Needs : Family and Professional Partnerships and Roles

by ;
Edition:
1st
ISBN13:

9780137147403

ISBN10:
0137147406
Format:
Paperback
Pub. Date:
2/25/2011
Publisher(s):
Pearson
List Price: $91.80

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Summary

An engaging discussion of the legal, ethical, practical, and cultural considerations of working with families of special needs children. #xA0; With a strong focus on the families of special needs children, this first edition text provides students with both the information to understand the challenges and needs of these families as well as the skills and strategies required of educators working with such families. Containing a thorough discussion of the common legal and ethical concerns surrounding children with special needs and their families, this book also emphasizes the many individual differences among families. With that in mind, the authors focus on diversity in families with special needs children, cultural considerations, age, and communication with special needs families. In addition, a distinctive final chapter called #x1C;A Family#x19;s Voice,#x1D; gives students the special opportunity to hear about the unique thoughts and experiences of a large selection of family members of children with special needs.

Author Biography

Nancy M. Sileo, Ed.D. is a professor of early childhood special education at the University of Nevada Las Vegas and has worked in the field of ECSE for more than 18 years. Her current interests include early intervention, family involvement in special education, HIV/AIDS prevention education, and ethical issues in HIV/AIDS prevention education and special education teacher education. Dr. Sileo has been involved with teacher education for special education for 12 years and currently serves as Director of Teacher Education in the College of Education at UNLV. In addition, she has been a member of CEC for over 17 years and is actively involved in TED and DEC. Dr. Sileo is author and co-author of a number of publications related to HIV/AIDS prevention education and research, as well as numerous publications in the field of special education teacher education.

 

Mary Anne Prater, Ph.D. is a professor and chair of the Department of Counseling Psychology and Special Education at Brigham Young University and has been a teacher educator for over 20 years. Prior to being employed at BYU, she was a professor at the University of Hawaii at Manoa and Southern Illinois University at Carbondale. Her interests and expertise include special education teacher education, cultural and linguistic diversity issues in special education, instructional strategies for students with mild disabilities and the portrayal of disabilities in children’s literature. Dr. Prater has published five books and over 80 articles and chapters. She has been an active member of CEC and various divisions of CEC for over 25 years.

Table of Contents

CHAPTER 1: HISTORICAL AND LEGAL FOUNDATIONS OF FAMILY INVOLVEMENT IN SPECIAL EDUCATION

(by Betty Y. Ashbaker, Ph.D., Tina T. Dyches, Ed.D., Mary Anne Prater, Ph.D., & Nancy M. Sileo, Ed.D.)

 

Chapter Outline

Chapter Objectives

Introduction

Overview of Historical and Legal Foundations of Family Involvement in Special Education

Historical Foundations of Special Education

Individuals with Disabilities Education Improvement Act (IDEA) of 2004

        Procedural Safeguards: Parent Participation and Due Process

        Child Find/Zero Reject

        Appropriate Evaluation

        Free Appropriate Public Education

        Least Restrictive Environment

        Individualized Education Program

                The Individualized Education Program (IEP) Team

                IEP Meeting

                IEP Development

                Extended School Year Services

                Individual Family Service Plans

                Individual Transition Plans

  No Child Left Behind Act

        Right to Educational Achievement

        Applications for Parents

The Family Education Rights and Privacy Act

        Access to Records

        Limiting Access to Records

        Amending and Destroying Records

        Age of Majority

        IDEA and FERPA

Section 504 of the Vocational Rehabilitation Act of 1973

        The 504 Plan

The Americans with Disabilities Act

Chapter Summary

Linking Standards to Practice

Resources


CHAPTER 2: HISTORICAL AND CURRENT PERSPECTIVES OF FAMILY INVOLVEMENT

(by Michelle T. Tannock, Ph.D., Nari J. Carter, Ph.D. Candidate, Mary Anne Prater, Ph.D., & Nancy M. Sileo, Ed.D.)

 

Chapter Outline

Chapter Objectives

Introduction

Historical Perspective

        Historical Treatment of Individuals with Disabilities

                        Philosophical influences

                        Advocacy

                        Legal protection

        History of Family Involvement in Education

                        Families and schools

                        Laws

Current Perspectives of Family Involvement

            Overlapping spheres of influence

            Model of parent involvement

            Parent involvement mechanisms

Barriers to School Involvement              

Profiles of Families of Children with Special Needs

            Financial Stress

            Social Stigmatization

            Emotional Difficulty and Stress

Chapter Summary

Linking Standards to Practice

Resources

 

CHAPTER 3: FAMILY MEMBERS’ ROLES AND CHARACTERISTICS

(by Michelle T. Tannock, Ph.D., Nari J. Carter, Ph.D. Candidate, Mary Anne Prater, Ph.D., & Nancy M. Sileo, Ed.D.)

 

Chapter Outline

Chapter Objectives

Introduction

Roles of Parents

        Parents as Advocates

                Social support advocacy

                Interpersonal advocacy

                Legal advocacy

        Parents as Learners

        Parents as Teachers

Parent and Family Characteristics

          Fathers

          Mothers

        Isolated Parents

        Extended Family

        Non-traditional Family

                Single or teen parents

                Foster families

                Gay or lesbian families

Siblings

           Working with Siblings

                        Provide information

                        Acknowledge feelings

                        Give attention

           Sibling Concerns

                        Sibling caretakers

                        Sibling interpreters

                        Identifying sibling difficulty

Chapter Summary

Linking Standards to Practice

Resources

 

 


CHAPTER 4: COMMUNICATING AND COLLABORATING WITH FAMILIES (by Wendy W. Murawski, Ph.D., Nari J. Carter, Ph.D. Candidate, Nancy M. Sileo, Ed.D.), & Mary Anne Prater, Ph.D.)

 

Chapter Outline

Chapter Objectives

Introduction

Overview of Communicating and Collaborating with Families

        Purpose of Communication Purpose and Benefits of Collaboration

                        Mutual Support

                        Shared Knowledge

                        Supported Student Learning

Collaborative Practices

        Collaboration and Communication with Families

                        Parity

                        Common Goals

                        Trust and Respect

                        Styles of Communication

                        Cultural Influences

         Barriers to Communicating and Collaborating

            Collaborative Attitudes

Communication Skills

            Active Listening

            Non-Verbal Communication

          Verbal Language

                        Reflecting

                        Clarifying

                        Summarizing

                        Asking Questions

                        Giving and Receiving Feedback

                        Using Leading Strategies

Reducing Miscommunication

Problem-Solving

Resolving Conflict Constructively

            Negotiating

            Conflict Management Styles

Chapter Summary

Linking Standards to Chapter Content

Resources

 

 

CHAPTER 5: OVERVIEW OF DIVERSITY AMONG FAMILIES AND PROFESSIONALS

(by Nancy M. Sileo, Ed.D., & Mary Anne Prater, Ph.D.)

 

Chapter Outline

Chapter Objectives

Introduction

Demographics

        Children receiving special education

Families

        Family Structure

Family and Professional Values

        Family Dynamics

        Poverty

Chapter Summary

Linking Standards to Chapter Content

Resources

 


CHAPTER 6: CULTURAL COMPETENCE AND WORKING WITH FAMILIES FROM DIVERSE BACKGROUNDS

(by Nancy M. Sileo, Ed.D., & Mary Anne Prater, Ph.D.)


Chapter Outline

Chapter Objectives

Introduction

Cultural Competence

        Multicultural Considerations for Parent Involvement

            Heterogeneity Among Diverse Populations

Working with Families from Diverse Backgrounds

        Family Role Patterns

                American Indians or Alaska Natives

                African Americans

                Hispanics

                Asian, Native Hawaiian, and Other Pacific Islander Americans

Language, Communication, and Culture

        Non-Verbal Communication

        Verbal Communication

Language Characteristics

        American Indians or Alaska Natives

        African Americans

        Hispanics

        Asian, Native Hawaiian, and Other Pacific Islander Americans

Health, Illness, and Disability Beliefs

        American Indians or Alaska Natives

        African Americans

        Hispanics

        Asian, Native Hawaiian, and Other Pacific Islander Americans

Barriers to Working Effectively with Families from Diverse Backgrounds

Strategies for Working with Families from Diverse Backgrounds

Chapter Summary

Linking Standards to Chapter Content

Resources

 


CHAPTER 7: UNDERSTANDING THE FAMILY PERSPECTIVE 

(by Nari J. Carter, Ph.D. Candidate, Mary Anne Prater, Ph.D., & Nancy M. Sileo, Ed.D.)

 

Chapter Outline

Chapter Objectives

Introduction

Understanding the Professional Perspective

Understanding the Family Perspective

        Coping with Disability

                Appraisal

                Family Cohesiveness

                Social Support

                Child’s Condition

                 Education and SES

        Family Perceptions of Special Education Services

        Barriers to Participating in Special Education Processes

        Facilitating Family Involvement

                     Information

                    Trust

                    Communication

Chapter Summary

Linking Standards to Chapter Content

Resources


CHAPTER 8: CREATING IEPS WITH FAMILIES AND STRATEGIES FOR INVOLVING STUDENTS

(by Nari J. Carter, Ph.D. Candidate, Mary Anne Prater, Ph.D., & Nancy M. Sileo, Ed.D.)

 

Chapter Outline

Chapter Objectives

Introduction

Creating IEPs with Families

            Planning and Conducting IEP Meetings

            Placement

            Goals

            Assistive Technology

            Related Services

            Assessment

            Transition

Strategies for Involving Students

            Pre-IEP Planning and Preparation

            IEP Planning and Preparation

            IEP Meeting

            IEP Monitoring

Chapter Summary

Linking Standards to Chapter Content

Resources

 


CHAPTER 9: OVERVIEW OF DIVERSITY AMONG FAMILIES AND PROFESSIONALS

(by Jane M. Sileo, Ed.D., Nancy M. Sileo, Ed.D., & Mary Anne Prater, Ph.D.)

 

Chapter Outline

Chapter Objectives

Introduction

Ethical Considerations on Educational Practice

        Definition of Ethics

        Codes of Ethics

                National Education Association

                National Association for the Education of Young Children

                Council for Exceptional Children

The Ethical Concept of Doing No Harm

        Doing No Harm with Children and Youth

        Doing No Harm with Parents and Families

Strategies to Ensure Ethical Practices When Working with Families

Barriers to Ethical and Confidential Practices When Working With Families

        Inadequate Communication

        Educational Jargon

        Lack of Trust

        Myriad Points of View

        Scheduling and Space Issues

Chapter Summary

Linking Standards to Chapter Content

Resources

 


CHAPTER 10: Special Considerations for Families: Birth through High School

(by Tessie Rose, Ph.D., Mary Anne Prater, Ph.D., & Nancy M. Sileo, Ed.D)

 

Chapter Outline

Chapter Objectives

Introduction

Special Considerations When Working With Families of Infants and Toddlers or Preschoolers

Working with Families of Infants and Toddlers

        Individualized Family Service Plan

                Statement of child’s level of development

                Statement of family priorities, resources, and concerns

                Major outcomes

                Statement of early intervention services

                Projected dates for initiation and duration of services

                Service coordination

                Transition plan

Working with Families of Preschoolers

Summary

Special Considerations When Working with Families of Elementary and Secondary Aged Children

            Concerns of parents of elementary-aged students

                        Safety

                        Attitudes of others

                        Friendships

                        Quality of the child’s education

               Working with Families with Elementary-aged Students

                        Volunteerism

                        Response to intervention

                        Individualized Education Programs (IEPs)

                        Transition to secondary schools

            Summary

            Working with Families with Secondary-ages Students

            Individual Transition Plans

            Summary

Chapter Summary

Linking Standards to Chapter Content

Resources


CHAPTER 11: Special Considerations for Families: Post-Secondary Students

(by Tessie Rose, Ph.D., Mary Anne Prater, Ph.D., & Nancy M. Sileo, Ed.D)

 

Chapter Outline

Chapter Objectives

Introduction

Special Considerations for Families with Adult Children with Disabilities Living at Home

            Perceived benefits

            Perceived challenges

            Families with adult children living in community settings

            Families with adult children with disabilities in post-secondary education settings

                        Lack of awareness

                        Lack of adequate preparation

                        Financial aid barriers

                        Difficulties with interagency collaboration

            Recommendations for working with families of post secondary aged children

                        Problem solving approaches

                        Futures planning

                        Consumer directed support

                        Education and information sharing

Summary

Special Considerations for Families of Children with Disabilities in Residential Facilities

        Families with children in residential facilities

                Aging family caregivers

                Challenging behaviors

                Family stress

                Child desire for change of placement

        Recommendations for service providers

        Summary

Chapter Summary

Linking Standards to Chapter Content

Resources


CHAPTER 12: Special Considerations for Families: Post-Secondary Students

(by Nancy M. Sileo, Ed.D., & Mary Anne Prater, Ph.D.)

 

Chapter Outline

Chapter objectives

Introduction

A Family’s Voice by Karolyn King-Peery

           Applications and considerations

A Family’s Voice by Claire Lynough Tredwell — Our Journey Together

           Applications and considerations

A Family’s Voice by Ramon

           Applications and considerations

A Family’s Voice by Angela Quidileg — Life Experience and My Culture

           Applications and considerations

A Family’s Voice by Elizabeth and Michael Ferro

           Applications and considerations

A Family’s Voice by Sarah Hanson, Lee Haney and Jennifer Hanson

           Applications and considerations

Chapter Summary


Appendices

Appendix A — NEA Code of Ethics

            Appendix B — NAEYC Code of Ethical Conduct and Statement of Commitment

            Appendix C — CEC Code of Ethics for Educators of Persons with Exceptionalities

 

References



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