9780446610414

36-Hour Day : A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life

by ;
  • ISBN13:

    9780446610414

  • ISBN10:

    0446610410

  • Edition: Revised
  • Format: Paperback
  • Copyright: 2001-04-01
  • Publisher: Grand Central Pub

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Summary

Updated with the newest information on Alzheimer's Disease and dementia, this bestselling book has remained the "bible" for families who are giving care toafflicted loved ones.

Table of Contents

Foreword xix
Preface xxiii
Acknowledgments xxv
Preface to the First Edition xxix
Dementia
1(16)
What Is Dementia?
7(3)
The Person with a Dementing Illness
10(3)
Where Do You Go from Here?
13(4)
Getting Medical Help for the Impaired Person
17(12)
The Evaluation of the Person with a Suspected Dementia
18(5)
Finding Someone to Do an Evaluation
23(2)
The Medical Treatment and Management of Dementia
25(4)
The Physician
25(1)
The Nurse
26(1)
The Social Worker
27(2)
Characteristic Problems of Dementia
29(35)
The Brain, Behavior, and Personality: Why People with Dementia Do the Things They Do
29(5)
Caregiving: Some General Suggestions
34(4)
Memory Problems
38(2)
Overreacting, or Catastrophic Reactions
40(6)
Combativeness
46(1)
Problems with Speech and Communication
47(9)
Problems the Impaired Person Has in Making Himself Understood
48(4)
Problems the Impaired Person Has in Understanding Others
52(4)
Loss of Coordination
56(4)
Loss of Sense of Time
60(2)
Symptoms That Are Better Sometimes and Worse at Other Times
62(2)
Problems in Independent Living
64(20)
When a Person Must Give Up a Job
66(1)
When a Person Can No Longer Manage Money
67(2)
When a Person Can No Longer Drive Safely
69(5)
When a Person Can No Longer Live Alone
74(4)
When You Suspect that Someone Living Alone Is Getting Confused
74(4)
What You Can Do
78(1)
Moving to a New Residence
79(5)
Problems Arising in Daily Care
84(57)
Hazards to Watch For
84(7)
In the House
86(3)
Outdoors
89(1)
In the Car
90(1)
Smoking
90(1)
Hunting
91(1)
Highways and Parking Lots
91(1)
Nutrition and Mealtimes
91(13)
Meal Preparation
92(1)
Problem Eating Behaviors
93(1)
Mealtimes
94(5)
Malnutrition
99(1)
Weight Loss
99(2)
Choking
101(1)
When to Consider Tube Feeding
102(2)
Exercise
104(3)
Recreation
107(4)
Meaningful Activity
110(1)
Personal Hygiene
111(10)
Bathing
113(3)
Dressing
116(1)
Grooming
117(1)
Oral Hygiene
118(2)
Bathroom Supplies
120(1)
Incontinence (Wetting or Soiling)
121(8)
Urinary Incontinence
121(5)
Bowel Incontinence
126(1)
Cleaning Up
126(3)
Problems with Walking and Balance; Falling
129(5)
Becoming Chairbound or Bedbound
131(2)
Wheelchairs
133(1)
Changes You Can Make at Home
134(7)
Should Environments Be Cluttered or Bare?
138(3)
Medical Problems
141(29)
Pain
143(1)
Falls and Injuries
144(1)
Pressure Sores
144(1)
Dehydration
145(1)
Pneumonia
146(1)
Constipation
146(2)
Medications
148(4)
Dental Problems
152(1)
Vision Problems
153(2)
Hearing Problems
155(1)
Visiting the Doctor
156(1)
If the III Person Must Enter the Hospital
157(2)
Seizures, Fits, or Convulsions
159(2)
Jerking Movements (Myoclonus)
161(1)
The Death of the Impaired Person
162(8)
The Cause of Death
162(1)
Dying at Home
163(1)
Hospice
164(1)
Dying in the Hospital or Nursing Home
164(1)
When Should Treatment End?
165(1)
What Kind of Care Can Be Given at the End of Life?
166(4)
Problems of Behavior
170(41)
The Six R's of Behavior Management
171(1)
Concealing Memory Loss
172(2)
Wandering
174(10)
Reasons Why People Wander
175(2)
The Management of Wandering
177(7)
Sleep Disturbances and Night Wandering
184(4)
Worsening in the Evening
188(2)
Losing, Hoarding, or Hiding Things
190(1)
Rummaging in Drawers and Closets
191(1)
Inappropriate Sexual Behavior
192(3)
Repeating the Question
195(1)
Repetitious Actions
196(1)
Distractibility
197(1)
Clinging or Persistently Following You Around
197(2)
Complaints and Insults
199(4)
Taking Things
203(91)
Forgetting Telephone Calls
294
Demands
204(3)
Stubbornness and Uncooperativeness
207(1)
When the Sick Person Insults the Sitter
208(2)
Using Medication to Manage Behavior
210(1)
Problems of Mood
211(22)
Depression
211(2)
Complaints about Health
213(1)
Suicide
213(1)
Alcohol or Drug Abuse
214(1)
Apathy and Listlessness
215(1)
Remembering Feelings
216(1)
Anger and Irritability
216(2)
Anxiety, Nervousness, and Restlessness
218(2)
False Ideas, Suspiciousness, Paranoia, and Hallucinations
220(11)
Misinterpretation
221(2)
Failure to Recognize People or Things (Agnosia)
223(1)
``My Mother Is Coming for Me''
224(1)
Suspiciousness
225(3)
Hiding Things
228(1)
Delusions and Hallucinations
229(2)
Having Nothing to Do
231(2)
Special Arrangements If You Become III
233(5)
In the Event of Your Death
235(3)
Getting Outside Help
238(26)
Help from Friends and Neighbors
238(2)
Finding Information and Services
240(1)
Kinds of Services
240(8)
Having Someone Come into Your Home
244(1)
Adult Day Care
245(1)
Day Hospitals
246(1)
Short-Stay Residential Care
247(1)
Planning in Advance for Home Care or Day Care
248(1)
When the Confused Person Rejects the Care
248(4)
Your Own Feelings about Getting Respite for Yourself
252(2)
Locating Resources
254(3)
Paying for Care
257(3)
Should Respite Programs Mix People Who Have Different Problems?
260(1)
Determining the Quality of Services
261(1)
Research and Demonstration Programs
262(2)
You and the Impaired Person as Parts of a Family
264(27)
Changes in Roles
266(6)
Understanding Family Conflicts
272(3)
Division of Responsibility
273(2)
Your Marriage
275(1)
Coping with Role Changes and Family Conflict
276(6)
A Family Conference
278(4)
When You Live out of Town
282(1)
When You Are Not the Primary Caregiver, What Can You Do to Help?
283(2)
Caregiving and Your Job
285(1)
Your Children
285(6)
Teenagers
289(2)
How Caring for an Impaired Person Affects You
291(30)
Emotional Reactions
291(18)
Anger
293(4)
Embarrassment
297(1)
Helplessness
298(1)
Guilt
299(3)
Laughter, Love, and Joy
302(1)
Grief
303(2)
Depression
305(1)
Isolation and Feeling Alone
306(1)
Worry
307(1)
Being Hopeful and Being Realistic
307(2)
Mistreating the Confused Person
309(1)
Physical Reactions
310(2)
Fatigue
310(1)
Illness
311(1)
Sexuality
312(3)
If Your Spouse Is Impaired
312(3)
If Your Impaired Parent Lives with You
315(1)
The Future
315(5)
You as a Spouse Alone
317(3)
When the Person You Have Cared for Dies
320(1)
Caring for Yourself
321(19)
Take Time Out
322(4)
Give Yourself a Present
324(1)
Friends
324(1)
Avoid Isolation
325(1)
Find Additional Help If You Need It
326(6)
Recognize the Warning Signs
327(3)
Counseling
330(2)
Joining with Other Families: The Alzheimer's Association
332(4)
Support Groups
334(1)
Excuses
335(1)
Advocacy
336(4)
For Children and Teenagers
340(5)
Financial and Legal Issues
345(14)
Your Financial Assessment
345(6)
Potential Expenses
346(1)
Potential Resources
347(4)
Where to Look for the Forgetful Person's Resources
351(3)
Legal Matters
354(5)
Nursing Homes and Other Living Arrangements
359(51)
General Rules for Evaluating a Care Facility
359(2)
Moving with a Confused Person
361(1)
Types of Living Arrangements
362(4)
Nursing Homes and Assisted Living Facilities
366(41)
Paying for Care
370(1)
Payment Sources
371(9)
Establishing the Need for Medical Care
380(1)
The Mental Health Screening Requirement
381(1)
Finding a Home or Other Facility
381(12)
Nursing Home and Assisted Living Programs that Specialize in Dementia Care
393(2)
Moving to a Nursing Home
395(2)
Adjusting to a New Life
397(1)
Visiting
397(4)
Your Own Adjustment
401(2)
When Problems Occur in the Nursing Home
403(2)
Sexual Issues in Nursing Homes
405(2)
The Department of Veterans Affairs (VA)
407(1)
State Mental Hospitals
407(3)
Brain Disorders and the Causes of Dementia
410(14)
Dementia
410(9)
Dementia Associated with Alcohol Abuse
413(1)
Alzheimer Disease
413(2)
Multi-Infarct or Vascular Dementia
415(1)
Lewy Body Dementia
416(1)
The Frontotemporal Dementias, Including Pick Disease
417(1)
Depression
417(1)
Binswanger Disease
418(1)
AIDS
418(1)
Other Brain Disorders
419(5)
Delirium
420(1)
Senility, Chronic Organic Brain Syndrome, Acute or Reversible Organic Brain Syndromes
421(2)
Anoxia or Hypoxia
423(1)
Research in Dementia
424(19)
Understanding Research
425(3)
Bogus Cures
427(1)
Research in Multi-Infarct Dementia and Stroke
428(1)
Research in Alzheimer Disease
429(6)
Structural Changes in the Brain
429(1)
Brain Cell Structure
429(1)
Neurotransmitters
429(1)
Abnormal Proteins
430(2)
Transplants of Brain Tissue
432(1)
Drug Studies
432(1)
Metals
433(1)
Viruses
433(1)
Immunological Defects
434(1)
Head Trauma
434(1)
Epidemiology
435(1)
Down Syndrome
435(1)
Old Age
436(1)
Heredity
436(2)
Gender
438(1)
Promising Clinical and Research Tools
439(1)
Keeping Active
440(1)
The Effect of Acute Illness on Dementia
441(1)
Research into the Delivery of Services
441(1)
Protective Factors
442(1)
Appendix 1. Further Reading 443(6)
Appendix 2. Organizations 449(7)
Appendix 3. Locating Your State Office on Aging and State Nursing Home Ombudsperson 456(8)
Appendix 4. Nursing Home Residents' Rights 464(7)
Index 471

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