36-Hour Day : A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life

by Mace, Nancy L.; Rabins, Peter V.

• ISBN13: 9780446610414
• ISBN10: 0446610410
• Edition: Revised
• Format: Paperback
• Copyright: 2001-04-01
• Publisher: Grand Central Pub

Summary

Updated with the newest information on Alzheimer's Disease and dementia, this bestselling book has remained the "bible" for families who are giving care toafflicted loved ones.

Table of Contents

Foreword	xix
Preface	xxiii
Acknowledgments	xxv
Preface to the First Edition	xxix
Dementia	1	(16)
What Is Dementia?	7	(3)
The Person with a Dementing Illness	10	(3)
Where Do You Go from Here?	13	(4)
Getting Medical Help for the Impaired Person	17	(12)
The Evaluation of the Person with a Suspected Dementia	18	(5)
Finding Someone to Do an Evaluation	23	(2)
The Medical Treatment and Management of Dementia	25	(4)
The Physician	25	(1)
The Nurse	26	(1)
The Social Worker	27	(2)
Characteristic Problems of Dementia	29	(35)
The Brain, Behavior, and Personality: Why People with Dementia Do the Things They Do	29	(5)
Caregiving: Some General Suggestions	34	(4)
Memory Problems	38	(2)
Overreacting, or Catastrophic Reactions	40	(6)
Combativeness	46	(1)
Problems with Speech and Communication	47	(9)
Problems the Impaired Person Has in Making Himself Understood	48	(4)
Problems the Impaired Person Has in Understanding Others	52	(4)
Loss of Coordination	56	(4)
Loss of Sense of Time	60	(2)
Symptoms That Are Better Sometimes and Worse at Other Times	62	(2)
Problems in Independent Living	64	(20)
When a Person Must Give Up a Job	66	(1)
When a Person Can No Longer Manage Money	67	(2)
When a Person Can No Longer Drive Safely	69	(5)
When a Person Can No Longer Live Alone	74	(4)
When You Suspect that Someone Living Alone Is Getting Confused	74	(4)
What You Can Do	78	(1)
Moving to a New Residence	79	(5)
Problems Arising in Daily Care	84	(57)
Hazards to Watch For	84	(7)
In the House	86	(3)
Outdoors	89	(1)
In the Car	90	(1)
Smoking	90	(1)
Hunting	91	(1)
Highways and Parking Lots	91	(1)
Nutrition and Mealtimes	91	(13)
Meal Preparation	92	(1)
Problem Eating Behaviors	93	(1)
Mealtimes	94	(5)
Malnutrition	99	(1)
Weight Loss	99	(2)
Choking	101	(1)
When to Consider Tube Feeding	102	(2)
Exercise	104	(3)
Recreation	107	(4)
Meaningful Activity	110	(1)
Personal Hygiene	111	(10)
Bathing	113	(3)
Dressing	116	(1)
Grooming	117	(1)
Oral Hygiene	118	(2)
Bathroom Supplies	120	(1)
Incontinence (Wetting or Soiling)	121	(8)
Urinary Incontinence	121	(5)
Bowel Incontinence	126	(1)
Cleaning Up	126	(3)
Problems with Walking and Balance; Falling	129	(5)
Becoming Chairbound or Bedbound	131	(2)
Wheelchairs	133	(1)
Changes You Can Make at Home	134	(7)
Should Environments Be Cluttered or Bare?	138	(3)
Medical Problems	141	(29)
Pain	143	(1)
Falls and Injuries	144	(1)
Pressure Sores	144	(1)
Dehydration	145	(1)
Pneumonia	146	(1)
Constipation	146	(2)
Medications	148	(4)
Dental Problems	152	(1)
Vision Problems	153	(2)
Hearing Problems	155	(1)
Visiting the Doctor	156	(1)
If the III Person Must Enter the Hospital	157	(2)
Seizures, Fits, or Convulsions	159	(2)
Jerking Movements (Myoclonus)	161	(1)
The Death of the Impaired Person	162	(8)
The Cause of Death	162	(1)
Dying at Home	163	(1)
Hospice	164	(1)
Dying in the Hospital or Nursing Home	164	(1)
When Should Treatment End?	165	(1)
What Kind of Care Can Be Given at the End of Life?	166	(4)
Problems of Behavior	170	(41)
The Six R's of Behavior Management	171	(1)
Concealing Memory Loss	172	(2)
Wandering	174	(10)
Reasons Why People Wander	175	(2)
The Management of Wandering	177	(7)
Sleep Disturbances and Night Wandering	184	(4)
Worsening in the Evening	188	(2)
Losing, Hoarding, or Hiding Things	190	(1)
Rummaging in Drawers and Closets	191	(1)
Inappropriate Sexual Behavior	192	(3)
Repeating the Question	195	(1)
Repetitious Actions	196	(1)
Distractibility	197	(1)
Clinging or Persistently Following You Around	197	(2)
Complaints and Insults	199	(4)
Taking Things	203	(91)
Forgetting Telephone Calls	294
Demands	204	(3)
Stubbornness and Uncooperativeness	207	(1)
When the Sick Person Insults the Sitter	208	(2)
Using Medication to Manage Behavior	210	(1)
Problems of Mood	211	(22)
Depression	211	(2)
Complaints about Health	213	(1)
Suicide	213	(1)
Alcohol or Drug Abuse	214	(1)
Apathy and Listlessness	215	(1)
Remembering Feelings	216	(1)
Anger and Irritability	216	(2)
Anxiety, Nervousness, and Restlessness	218	(2)
False Ideas, Suspiciousness, Paranoia, and Hallucinations	220	(11)
Misinterpretation	221	(2)
Failure to Recognize People or Things (Agnosia)	223	(1)
``My Mother Is Coming for Me''	224	(1)
Suspiciousness	225	(3)
Hiding Things	228	(1)
Delusions and Hallucinations	229	(2)
Having Nothing to Do	231	(2)
Special Arrangements If You Become III	233	(5)
In the Event of Your Death	235	(3)
Getting Outside Help	238	(26)
Help from Friends and Neighbors	238	(2)
Finding Information and Services	240	(1)
Kinds of Services	240	(8)
Having Someone Come into Your Home	244	(1)
Adult Day Care	245	(1)
Day Hospitals	246	(1)
Short-Stay Residential Care	247	(1)
Planning in Advance for Home Care or Day Care	248	(1)
When the Confused Person Rejects the Care	248	(4)
Your Own Feelings about Getting Respite for Yourself	252	(2)
Locating Resources	254	(3)
Paying for Care	257	(3)
Should Respite Programs Mix People Who Have Different Problems?	260	(1)
Determining the Quality of Services	261	(1)
Research and Demonstration Programs	262	(2)
You and the Impaired Person as Parts of a Family	264	(27)
Changes in Roles	266	(6)
Understanding Family Conflicts	272	(3)
Division of Responsibility	273	(2)
Your Marriage	275	(1)
Coping with Role Changes and Family Conflict	276	(6)
A Family Conference	278	(4)
When You Live out of Town	282	(1)
When You Are Not the Primary Caregiver, What Can You Do to Help?	283	(2)
Caregiving and Your Job	285	(1)
Your Children	285	(6)
Teenagers	289	(2)
How Caring for an Impaired Person Affects You	291	(30)
Emotional Reactions	291	(18)
Anger	293	(4)
Embarrassment	297	(1)
Helplessness	298	(1)
Guilt	299	(3)
Laughter, Love, and Joy	302	(1)
Grief	303	(2)
Depression	305	(1)
Isolation and Feeling Alone	306	(1)
Worry	307	(1)
Being Hopeful and Being Realistic	307	(2)
Mistreating the Confused Person	309	(1)
Physical Reactions	310	(2)
Fatigue	310	(1)
Illness	311	(1)
Sexuality	312	(3)
If Your Spouse Is Impaired	312	(3)
If Your Impaired Parent Lives with You	315	(1)
The Future	315	(5)
You as a Spouse Alone	317	(3)
When the Person You Have Cared for Dies	320	(1)
Caring for Yourself	321	(19)
Take Time Out	322	(4)
Give Yourself a Present	324	(1)
Friends	324	(1)
Avoid Isolation	325	(1)
Find Additional Help If You Need It	326	(6)
Recognize the Warning Signs	327	(3)
Counseling	330	(2)
Joining with Other Families: The Alzheimer's Association	332	(4)
Support Groups	334	(1)
Excuses	335	(1)
Advocacy	336	(4)
For Children and Teenagers	340	(5)
Financial and Legal Issues	345	(14)
Your Financial Assessment	345	(6)
Potential Expenses	346	(1)
Potential Resources	347	(4)
Where to Look for the Forgetful Person's Resources	351	(3)
Legal Matters	354	(5)
Nursing Homes and Other Living Arrangements	359	(51)
General Rules for Evaluating a Care Facility	359	(2)
Moving with a Confused Person	361	(1)
Types of Living Arrangements	362	(4)
Nursing Homes and Assisted Living Facilities	366	(41)
Paying for Care	370	(1)
Payment Sources	371	(9)
Establishing the Need for Medical Care	380	(1)
The Mental Health Screening Requirement	381	(1)
Finding a Home or Other Facility	381	(12)
Nursing Home and Assisted Living Programs that Specialize in Dementia Care	393	(2)
Moving to a Nursing Home	395	(2)
Adjusting to a New Life	397	(1)
Visiting	397	(4)
Your Own Adjustment	401	(2)
When Problems Occur in the Nursing Home	403	(2)
Sexual Issues in Nursing Homes	405	(2)
The Department of Veterans Affairs (VA)	407	(1)
State Mental Hospitals	407	(3)
Brain Disorders and the Causes of Dementia	410	(14)
Dementia	410	(9)
Dementia Associated with Alcohol Abuse	413	(1)
Alzheimer Disease	413	(2)
Multi-Infarct or Vascular Dementia	415	(1)
Lewy Body Dementia	416	(1)
The Frontotemporal Dementias, Including Pick Disease	417	(1)
Depression	417	(1)
Binswanger Disease	418	(1)
AIDS	418	(1)
Other Brain Disorders	419	(5)
Delirium	420	(1)
Senility, Chronic Organic Brain Syndrome, Acute or Reversible Organic Brain Syndromes	421	(2)
Anoxia or Hypoxia	423	(1)
Research in Dementia	424	(19)
Understanding Research	425	(3)
Bogus Cures	427	(1)
Research in Multi-Infarct Dementia and Stroke	428	(1)
Research in Alzheimer Disease	429	(6)
Structural Changes in the Brain	429	(1)
Brain Cell Structure	429	(1)
Neurotransmitters	429	(1)
Abnormal Proteins	430	(2)
Transplants of Brain Tissue	432	(1)
Drug Studies	432	(1)
Metals	433	(1)
Viruses	433	(1)
Immunological Defects	434	(1)
Head Trauma	434	(1)
Epidemiology	435	(1)
Down Syndrome	435	(1)
Old Age	436	(1)
Heredity	436	(2)
Gender	438	(1)
Promising Clinical and Research Tools	439	(1)
Keeping Active	440	(1)
The Effect of Acute Illness on Dementia	441	(1)
Research into the Delivery of Services	441	(1)
Protective Factors	442	(1)
Appendix 1. Further Reading	443	(6)
Appendix 2. Organizations	449	(7)
Appendix 3. Locating Your State Office on Aging and State Nursing Home Ombudsperson	456	(8)
Appendix 4. Nursing Home Residents' Rights	464	(7)
Index	471