9780801861482

The 36-Hour Day

by ;
  • ISBN13:

    9780801861482

  • ISBN10:

    0801861489

  • Format: Hardcover
  • Copyright: 1999-04-01
  • Publisher: Johns Hopkins Univ Pr
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List Price: $54.00

Summary

"I welcome with enthusiasm the third edition of this book for families and friends of patients with dementing illnesses. It has served well in its prior appearances and should accomplish even more with this edition." -- Paul R. McHugh, M.D., in the foreword Through two editions, this best-selling book has remained the "bible" for families who are giving care to people with Alzheimer disease. The 36-Hour Day has offered comfort and support to millions of people in North America and, in translations and adapted editions, throughout the rest of the world. For this third edition, the authors have retained the structure, scope, and purpose of the original book, while thoroughly updating chapters to reflect the latest medical research and the current delivery of care. Topics that have been added or extensively revised include: Updated terminology and statistics ? New material on the evaluation of persons with dementia ? Updated changes in laws on driving ? A new section on hospice care ? New information on assisted living facilities and financing care ? Information on other types of dementia ? The latest findings on eating and nutrition ? New medical research in areas such as drugs, genetics, and diagnostic tests. The revised appendices include: New bibliographic references ? websites ? Updated addresses of associations and state offices. Praise for previous editions: "The best guide of its kind." -- Chicago Sun Times "An excellent book for families who are caring for persons with dementia... A book that physicians can confidently recommend to the families of their patients." -- Journal of the American Medical Association "Excellent guidance and clear information of a kind that the family needs... The authors offer the realistic advice that sometimes it is better to concede the patient's frailties than to try to do something about them, and that a compassionate sense of humor often helps." -- New York Times "An excellent, practical manual for families and professionals involved in the care of persons with progressive illnesses... The book is specific and thought-provoking, and it will be helpful to anyone even remotely involved with an 'impaired' person... Highly recommended, especially for public and nursing libraries." -- Library Journal " The 36-Hour Day has served its readers well. The revised edition should be even more useful both to family caregivers and professional health care providers." -- HMO Practice "The reader who is familiar with the first edition will recognize the strengths that continue in the revised edition -- numerous case examples, practical advice, thoroughness of coverage, and communication of caring and humane attitudes while presenting information that may be sensitive and upsetting to families." -- Clinical Gerontologist

Table of Contents

Foreword xv(2)
Preface xvii(2)
Acknowledgments xix(2)
Preface to the First Edition xxi
1 Dementia
1(12)
What Is Dementia?
5(2)
The Person with a Dementing Illness
7(3)
Where Do You Go from Here?
10(3)
2 Getting Medical Help for the Impaired Person
13(9)
The Evaluation of the Person with a Suspected Dementia
13(4)
Finding Someone to Do an Evaluation
17(1)
The Medical Treatment and Management of Dementia
18(4)
The Physician
18(1)
The Nurse
19(1)
The Social Worker
20(2)
3 Characteristic Problems of Dementia
22(24)
The Brain, Behavior, and Personality: Why People with Dementia Do the Things They Do
22(4)
Caregiving: Some General Suggestions
26(2)
Memory Problems
28(1)
Overreacting, or Catastrophic Reactions
29(5)
Combativeness
34(1)
Problems with Speech and Communication
34(6)
Problems the Impaired Person Has in Making Himself Understood
35(2)
Problems the Impaired Person Has in Understanding Others
37(3)
Loss of Coordination
40(3)
Loss of Sense of Time
43(1)
Symptoms That Are Better Sometimes and Worse at Other Times
44(2)
4 Problems in Independent Living
46(14)
When a Person Must Give Up a Job
47(1)
When a Person Can No Longer Manage Money
48(1)
When a Person Can No Longer Drive Safely
49(4)
When a Person Can No Longer Live Alone
53(7)
When You Suspect that Someone Living Alone Is Getting Confused
53(2)
What You Can Do
55(1)
Moving to a New Residence
56(4)
5 Problems Arising in Daily Care
60(39)
Hazards to Watch For
60(5)
In the House
61(2)
Outdoors
63(1)
In the Car
64(1)
Smoking
64(1)
Hunting
64(1)
Highways and Parking Lots
65(1)
Nutrition and Mealtimes
65(9)
Meal Preparation
65(1)
Problem Eating Behaviors
66(1)
Mealtimes
67(3)
Malnutrition
70(1)
Weight Loss
70(1)
Choking
71(1)
When to Consider Tube Feeding
72(2)
Exercise
74(1)
Recreation
75(3)
Meaningful Activity
78(1)
Personal Hygiene
78(7)
Bathing
80(1)
Dressing
81(1)
Grooming
82(1)
Oral Hygiene
83(1)
Bathroom Supplies
84(1)
Incontinence (Wetting or Soiling)
85(5)
Urinary Incontinence
85(3)
Bowel Incontinence
88(1)
Cleaning Up
89(1)
Problems with Walking and Balance; Falling
90(4)
Becoming Chairbound or Bedbound
92(1)
Wheelchairs
93(1)
Changes You Can Make at Home
94(5)
Should Environments Be Cluttered or Bare?
96(3)
6 Medical Problems
99(20)
Pain
100(1)
Falls and Injuries
101(1)
Pressure Sores
101(1)
Dehydration
102(1)
Pneumonia
102(1)
Constipation
103(1)
Medications
104(2)
Dental Problems
106(1)
Vision Problems
107(1)
Hearing Problems
108(1)
Visiting the Doctor
109(1)
If the Ill Person Must Enter the Hospital
110(2)
Seizures, Fits, or Convulsions
112(1)
Jerking Movements (Myoclonus)
113(1)
The Death of the Impaired Person
113(6)
The Cause of Death
113(1)
Dying at Home
114(1)
Hospice
115(1)
Dying in the Hospital or Nursing Home
115(1)
When Should Treatment End?
115(1)
What Kind of Care Can Be Given at the End of Life?
116(3)
7 Problems of Behavior
119(29)
The Six R's of Behavior Management
119(2)
Concealing Memory Loss
121(1)
Wandering
122(7)
Reasons Why People Wander
122(2)
The Management of Wandering
124(5)
Sleep Disturbances and Night Wandering
129(2)
Worsening in the Evening
131(2)
Losing, Hoarding, or Hiding Things
133(1)
Rummaging in Drawers and Closets
133(1)
Inappropriate Sexual Behavior
134(2)
Repeating the Question
136(1)
Repetitious Actions
137(1)
Distractibility
137(1)
Clinging or Persistently Following You Around
138(1)
Complaints and Insults
139(3)
Taking Things
142(1)
Forgetting Telephone Calls
142(1)
Demands
143(2)
Stubbornness and Uncooperativeness
145(1)
When the Sick Person Insults the Sitter
146(1)
Using Medication to Manage Behavior
147(1)
8 Problems of Mood
148(16)
Depression
148(1)
Complaints about Health
149(1)
Suicide
150(1)
Alcohol or Drug Abuse
150(1)
Apathy and Listlessness
151(1)
Remembering Feelings
151(1)
Anger and Irritability
152(1)
Anxiety, Nervousness, and Restlessness
153(2)
False Ideas, Suspiciousness, Paranoia, and Hallucinations
155(7)
Misinterpretation
155(1)
Failure to Recognize People or Things (Agnosia)
156(1)
"My Mother Is Coming for Me"
157(1)
Suspiciousness
158(2)
Hiding Things
160(1)
Delusions and Hallucinations
161(1)
Having Nothing to Do
162(2)
9 Special Arrangements If You Become III
164(4)
In the Event of Your Death
165(3)
10 Getting Outside Help
168(18)
Help from Friends and Neighbors
168(1)
Finding Information and Services
169(2)
Kinds of Services
171(3)
Having Someone Come into Your Home
172(1)
Adult Day Care
172(2)
Day Hospitals
174(1)
Short-Stay Residential Care
174(1)
Planning in Advance for Home Care or Day Care
174(1)
When the Confused Person Rejects the Care
175(2)
Your Own Feelings about Getting Respite for Yourself
177(2)
Locating Resources
179(2)
Paying for Care
181(2)
Should Respite Programs Mix People Who Have Different Problems?
183(1)
Determining the Quality of Services
183(2)
Research and Demonstration Programs
185(1)
11 You and the Impaired Person as Parts of a Family
186(19)
Changes in Roles
188(3)
Understanding Family Conflicts
191(3)
Division of Responsibility
192(2)
Your Marriage
194(1)
Coping with Role Changes and Family Conflict
194(4)
A Family Conference
196(2)
When You Live out of Town
198(1)
When You Are Not the Primary Caregiver, What Can You Do to Help?
199(1)
Caregiving and Your Job
200(1)
Your Children
201(4)
Teenagers
203(2)
12 How Caring for an Impaired Person Affects You
205(21)
Emotional Reactions
205(12)
Anger
206(3)
Embarrassment
209(1)
Helplessness
210(1)
Guilt
210(3)
Laughter, Love, and Joy
213(1)
Grief
214(1)
Depression
215(1)
Isolation and Feeling Alone
216(1)
Worry
216(1)
Being Hopeful and Being Realistic
217(1)
Mistreating the Confused Person
217(1)
Physical Reactions
218(2)
Fatigue
218(1)
Illness
219(1)
Sexuality
220(2)
If Your Spouse Is Impaired
220(2)
If Your Impaired Parent Lives with You
222(1)
The Future
222(3)
You as a Spouse Alone
223(2)
When the Person You Have Cared for Dies
225(1)
13 Caring for Yourself
226(13)
Take Time Out
227(3)
Give Yourself a Present
228(1)
Friends
228(1)

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