Core Curriculum for Specializing in Intellectual and Developmental Disability: A Resource for Nurses and Other Health Care Professionals A Resource for Nurses and Other Health Care Professionals

by Nehring, Wendy M.

• ISBN13: 9780763747657
• ISBN10: 0763747653
• Format: Paperback
• Copyright: 2005-01-31
• Publisher: Jones & Bartlett Learning
• More Book Details
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Summary

Written by nationally known leaders in the field of intellectual and developmental disabilities, Core Curriculum contains easy-to-read, comprehensive information on health concerns for persons of all ages with intellectual and developmental disabilities. Designed for classroom use and self-study, the text is presented in a straightforward outline format, with extensive resources and references throughout. The authors address the most important health issues affecting this population, and the subsequent management of these issues.

Table of Contents

Foreword	xv
Preface	xvii
List of Authors/Contributors to Core Curriculum	xix
Section I: History of Health Professionals' Involvement in the Care of Persons with Intellectual and Developmental Disabilities	1	(24)
History of Nursing and Health Professionals in Intellectual and Developmental Disabilities	3	(22)
Background	4	(1)
Issues in Mental Retardation	5	(6)
Nursing Care for Persons with I/DD	11	(5)
Medical Care for Persons with I/DD Across Time	16	(1)
Nursing Training and Education in I/DD	17	(2)
Training and Education in I/DD in Other Health Care Disciplines	19	(1)
Standards of Care and Practice	19	(1)
Summary	20	(5)
References	20	(5)
Section II: Basic Concepts	25	(30)
Definition of Mental Retardation/Developmental Disabilities	27	(6)
Definitions of Mental Retardation	28	(2)
Definitions of Disability	30	(1)
Children with Special Health Care Needs	31	(1)
Future Considerations for Terms and Definitions	31	(1)
Summary	31	(2)
References	31	(2)
Etiology of Intellectual and Developmental Disabilities	33	(14)
Overview	34	(1)
Classification of Known Etiologies of I/DD	35	(1)
Categories of Genetic Causes of I/DD	36	(1)
Specific Genetic Causes of I/DD	36	(3)
Specific Nongenetic Prenatal Causes of I/DD	39	(1)
Specific Nongenetic Perinatal Causes of I/DD	40	(1)
Specific Nongenetic Postnatal Causes of I/DD	40	(1)
Clinical Features Associated with Common and/or Well-Known Etiologies of I/DD	41	(2)
Categories of Risk Factors and Interventions Toward Levels of Prevention	43	(2)
Summary	45	(1)
References	45	(2)
Epidemiology of Intellectual and Developmental Disabilities	47	(8)
Definition of Epidemiology	48	(1)
Prevalence of Mental Retardation	48	(3)
Prevalence of Special Health Care Needs in Children in the United States	51	(1)
Prevalence of Childhood Disability in U.S. Children	51	(1)
Secondary Conditions	52	(1)
Implications for Nurses and Other Health Care Professionals in Understanding Epidemiological Information	52	(1)
Summary	53	(2)
References	53	(2)
Section III: The Influence of Genetics	55	(26)
Genetic Concepts	57	(24)
Human Genome Project	58	(1)
Overview	59	(9)
Genetic Screening, Evaluation, Diagnosis, and Counseling	68	(10)
Gene Therapy	78	(1)
Ethical, Legal, and Social Issues (ELSI)	78	(1)
Summary	79	(2)
References	79	(1)
Acknowledgment	80	(1)
Section IV: Nursing and Health Care Professionals' Roles in the Field of Intellectual and Developmental Disabilities	81	(298)
Roles and Responsibilities of Nurses and Other Health Care Professionals	83	(12)
Introduction	84	(1)
Continuum from Birth to Adulthood and Home to School to Community Settings	84	(2)
Roles and Responsibilities of Nurses and Health Care Professionals: Administrator	86	(1)
Roles and Responsibilities of Nurses and Health Care Professionals: Consultant	87	(2)
Roles and Responsibilities of Nurses and Health Care Professionals: Educator	89	(2)
Roles and Responsibilities of Nurses and Health Care Professionals: Researcher	91	(2)
Summary	93	(2)
References	93	(2)
Health Promotion	95	(14)
Introduction	96	(1)
Healthy People 2010	96	(2)
A Plan to Reduce Health Disparities in Persons with I/DD	98	(2)
Research Evidence on Health Promotion Topics Involving People with I/DD	100	(5)
Genetic Advances	105	(1)
Levels of Intervention in Primary Care	105	(1)
Summary	106	(3)
References	107	(2)
Early Intervention Services for Infants and Their Families	109	(14)
Background and Definitions	110	(1)
Philosophical Foundation	111	(3)
Service Delivery Components	114	(3)
The Role of the Nurse and Other Health Care Professionals in Early Intervention	117	(1)
Summary	118	(5)
Preschool and Early Childhood	123	(14)
Definitions	124	(1)
Developmental Issues	124	(1)
Health Considerations	125	(1)
Risk Factors	125	(2)
Family Concerns	127	(1)
Interdisciplinary Care	128	(1)
Specific Legislation for this Age Group	129	(2)
Service Systems	131	(3)
Summary	134	(3)
References	134	(3)
School-Age and Adolescence	137	(14)
Introduction	138	(1)
Statistics	138	(1)
Normal Developmental Issues During Middle Childhood (6--12 years)	138	(2)
Normal Developmental Issues During Adolescence (13--21+ years)	140	(1)
Influences on Normal Development Due to Having an I/DD	141	(3)
Federal Legislation	144	(2)
Developmental Screening and Testing	146	(1)
Individualized Education Plan (IEP) and Related School Issues	147	(1)
Summary	148	(3)
References	148	(3)
Transition to Adulthood	151	(18)
Background Information	152	(2)
Federal Legislation Relevant to Transition	154	(2)
Obstacles to Transition	156	(1)
Factors That Impact Transition	157	(1)
Interagency Approach to Services	158	(2)
Key Indicators of Successful Transition as Evidenced by Successful Adult Outcomes	160	(1)
Nurse's Role in Facilitating Transition	161	(1)
Other Health Care Professionals' Roles in Successful Transition	162	(1)
Summary	163	(6)
References	164	(2)
Appendix 11.1: California Healthy and Ready to Work Health Care Assessment	166	(3)
Adulthood	169	(14)
Health Care for Adults with Intellectual and Developmental Disabilities	170	(8)
Age-Appropriate Lifestyle	178	(3)
Summary	181	(2)
References	181	(2)
Sexuality	183	(24)
Introduction	184	(1)
Human Sexuality within the Context of Human Relationships	184	(1)
Sexual Development and the Individual with I/DD	184	(4)
Teaching about Sexuality	188	(5)
Family Planning	193	(4)
Sexual Health	197	(1)
Sexual Abuse	198	(1)
Sexual Expression	199	(4)
Summary	203	(4)
References	203	(4)
Older Adults	207	(24)
Introduction and Overview	208	(6)
Role of Health Care Providers	214	(9)
Role of Community Supports	223	(1)
Summary---Principles for Health Care Providers to Promote Successful Aging	224	(7)
References	225	(6)
Seizure Disorders	231	(28)
Definitions	232	(3)
Assessment	235	(2)
Management of Seizures	237	(11)
Family-Centered Care for Individuals with Seizure Disorders	248	(1)
Safety Promotion in Individuals with Seizure Disorders	249	(2)
Epilepsy and Its Effect on Quality of Life	251	(1)
Women's Health Issues in Seizure Disorder Management	251	(2)
Role of Health Care Providers in Self-Management of Seizure Disorders	253	(2)
Summary	255	(4)
References	255	(4)
Nutrition	259	(12)
Background	260	(1)
Common Nutritional Issues	261	(3)
I/DDs with Significant Nutritional Issues	264	(2)
Nutrition Services: Community and Tertiary	266	(2)
Summary	268	(3)
References	268	(3)
Eating and Swallowing Disorders (Dysphagia) in Adults and Children	271	(20)
Physiology of Normal Swallowing	272	(1)
Feeding and Swallowing Disorders	273	(2)
Effect of Dysphagia on Daily Living Activities	275	(1)
Signs and Symptoms of Dysphagia	276	(1)
Outcomes/Complications of Dysphagia	276	(2)
Management of Complications of Dysphagia	278	(1)
Dysphagia Identification and Clinical Assessment by the Interdisciplinary Team	279	(4)
Management Strategies for Treatment of Dysphagia: Implementation of Team Recommendations	283	(3)
Training Caregivers	286	(1)
Summary	286	(5)
References	287	(4)
Behavior Management and Mental Health	291	(14)
Background	292	(1)
Interrelationship of I/DD, Physical, and Mental Health Problems	292	(1)
Models of Mental Health Care	293	(2)
Screening and Referrals	295	(1)
Assessment	295	(3)
Planning and Implementation of Care---Medication Management	298	(2)
Planning and Implementation of Care---Case Management	300	(1)
Planning and Implementation of Care---Evaluation	301	(1)
Summary	301	(4)
References	301	(4)
Psychopharmaceutical Management of Comorbid Psychiatric Diagnoses	305	(16)
Introduction	306	(1)
Disorders of Concentration and Attention	306	(2)
Anxiety Disorders	308	(1)
Affective Disorders Including Bipolar Disorder	309	(4)
Obsessive-Compulsive Disorder (OCD)	313	(1)
Perseverations and Preoccupations	314	(1)
Tourette's Disorder	314	(2)
Self-Injurious Behavior	316	(1)
Aggression	317	(1)
Psychotic Disorders	318	(1)
Summary	318	(3)
References	319	(2)
Case Identification and Case Management	321	(10)
Identification of Individuals at Risk for or Presenting with an I/DD	322	(1)
Connecting Challenges and Services	323	(1)
Elements in Case Management	324	(3)
Case Management as Continuing Care	327	(2)
Summary	329	(2)
References	330	(1)
Infection, Infectious Disease, and Infection Control	331	(18)
Introduction	332	(1)
Infection Development	332	(1)
Microbial Agents	333	(1)
Transmission of Infectious Disease Agents	334	(1)
Possible Outcomes of Exposure to a Microorganism	334	(1)
Specific Infectious Diseases	335	(5)
Intervention in Transmission and Development of Infectious Diseases	340	(2)
Patient Isolation Precautions	342	(2)
Handwashing	344	(1)
Gloves and Glove Use in Infection Control	345	(1)
Preventing Infectious Diseases Among the Intellectually or Developmentally Disabled	345	(1)
Summary	346	(3)
References	346	(3)
Quality of Life and Outcomes Management	349	(12)
Historical Context and Current Use	350	(1)
Quality-of-Life Domains	351	(1)
Methodological Pluralism or Using Multiple Methods in the Study of Quality of Life	351	(3)
Quality Enhancement Techniques	354	(1)
Outcomes Management	355	(2)
Summary Statements	357	(1)
Questions to Consider	358	(1)
Summary	359	(2)
References	359	(2)
Oral Health	361	(18)
The Importance of Oral Health	362	(1)
Oral Diseases/Conditions and Implications	362	(2)
Treatment Planning and Coordination	364	(1)
Oral Diseases/Conditions Prevalence among the Population of Persons with I/DD and Surveillance Mechanisms---Epidemiology	365	(1)
History and Current Status: Oral Care Programs, Dental Care Providers, Curricula, and Resources	365	(1)
Preventive and Educational Services	366	(5)
Referral Services and Immediacy	371	(1)
Educating Personal Care Providers	372	(1)
Administrative Management, Supervision, and Evaluation of Oral Care Services for Institutionalized Persons with I/DD	373	(1)
Outreach Oral Health Care for Noninstitutionalized Persons with I/DD	373	(1)
Modification in Education, Care, and Referral Routines for Persons with I/DD	374	(1)
Tobacco Habits	374	(1)
Appliance Care	375	(1)
Specific Patient Care Considerations	375	(1)
Summary	376	(3)
References	376	(3)
Section V: Family Perspectives	379	(16)
Family Issues Across the Lifespan	381	(14)
Theories of Family Functioning and Adaptation to Chronic Disability	382	(2)
Childbearing Stage---Initial Diagnosis	384	(1)
Childrearing Stage---Post-Diagnosis through Preschool	385	(5)
Childrearing Stage---School-Age and Adolescence	390	(1)
Launching/Postparental Stage---Adult and Later Adult	391	(2)
Role of Health Care Professionals in Working with Families	393	(1)
Summary	393	(2)
References	393	(2)
Section VI: Health Care Policy Issues	395	(42)
Cultural and Ethnic Issues	397	(12)
Introduction	398	(1)
Definitions	398	(1)
Cultural Characteristics	398	(1)
Acculturation Is the Assimilation of the Majority Culture over Generations	399	(1)
Intellectual Differences	399	(1)
History	399	(1)
Census Projections	399	(1)
Culture and Poverty	400	(1)
Cultural Influences on Health	400	(1)
Cultural Competence in Nurses and Health Care Professionals	400	(1)
Persons with I/DD from Other Cultures	401	(1)
Culturally Sensitive Assessment and Intervention Strategies for Use with Minority Families with a Member with I/DD	402	(4)
Summary	406	(3)
References	406	(3)
Ethical and Legal Issues	409	(14)
Overview	410	(1)
Issues of Autonomy	410	(6)
Issues of Beneficence	416	(1)
Issues of Nonmaleficence	416	(1)
Issues of Justice	417	(2)
Legislation	419	(1)
Summary	420	(3)
References	421	(2)
Economic and Policy Issues	423	(14)
Populations and the Need	424	(1)
Historical Background on Relevant Health Care Policy	425	(1)
Current Health Care Policy Environment	426	(1)
Financing of Health Care in I/DD	427	(4)
Models of Health Care Services Delivery	431	(2)
Related Topics	433	(1)
Summary	433	(4)
References	434	(3)
Index	437