A Death Retold

by Wailoo, Keith; Livingston, Julie; Guarnaccia, Peter

• ISBN13: 9780807857731
• ISBN10: 0807857734
• Format: Paperback
• Copyright: 2006-11-01
• Publisher: Univ of North Carolina Pr

Summary

In February 2003, an undocumented immigrant teen from Mexico lay dying in a prominent American hospital due to a stunning medical oversight--she had received a heart-lung transplantation of the wrong blood type. In the following weeks, Jesica Santillan's tragedy became a portal into the complexities of American medicine, prompting contentious debate about new patterns and old problems in immigration, the hidden epidemic of medical error, the lines separating transplant "haves" from "have-nots," the right to sue, and the challenges posed by "foreigners" crossing borders for medical care. This volume draws together experts in history, sociology, medical ethics, communication and immigration studies, transplant surgery, anthropology, and health law to understand the dramatic events, the major players, and the core issues at stake. Contributors view the Santillan story as a morality tale: about the conflicting values underpinning American health care; about the politics of transplant medicine; about how a nation debates deservedness, justice, and second chances; and about the global dilemmas of medical tourism and citizenship. Contributors: Charles Bosk, University of Pennsylvania Leo R. Chavez, University of California, Irvine Richard Cook, University of Chicago Thomas Diflo, New York University Medical Center Jason Eberl, Indiana University-Purdue University Indianapolis Jed Adam Gross, Yale University Jacklyn Habib, American Association of Retired Persons Tyler R. Harrison, Purdue University Beatrix Hoffman, Northern Illinois University Nancy M. P. King, University of North Carolina at Chapel Hill Barron Lerner, Columbia University Mailman School of Public Health Susan E. Lederer, Yale University Julie Livingston, Rutgers University Eric M. Meslin, Indiana University School of Medicine and Indiana University-Purdue University Indianapolis Susan E. Morgan, Purdue University Nancy Scheper-Hughes, University of California, Berkeley Rosamond Rhodes, Mount Sinai School of Medicine and The Graduate Center, City University of New York Carolyn Rouse, Princeton University Karen Salmon, New England School of Law Lesley Sharp, Barnard and Columbia University Mailman School of Public Health Lisa Volk Chewning, Rutgers University Keith Wailoo, Rutgers University

Table of Contents

Introduction: Chronicles of an Accidental Death	1	(18)
Keith Wailoo, Julie Livingston, and Peter Guarnaccia
PART I. MEDICAL ERROR AND THE AMERICAN TRANSPLANT THEATER
America's Angel or Thieving Immigrant?: Media Coverage, the Santillan Story, and Publicized Ambivalence toward Donation and Transplantation	19	(27)
Susan E. Morgan, Tyler R. Harrison, Lisa Volk Chewning, and Jacklyn B. Habib
Hobson's Choices: Matching and Mismatching in Transplantation Work Processes	46	(24)
Richard I. Cook
The Transplant Surgeon's Perspective on the Bungled Transplant	70	(12)
Thomas Diflo
From Libby Zion to Jesica Santillan: Many Truths	82	(15)
Barron H. Lerner
All Things Twice, First Tragedy Then Farce: Lessons from a Transplant Error	97	(22)
Charles L. Bosk
PART II. JUSTICE AND SECOND CHANCES ACROSS THE BORDER
The Politics of Second Chances: Waste, Futility, and the Debate over Jesica's Second Transplant	119	(23)
Keith Wailoo and Julie Livingston
Tucker's Heart: Racial Politics and Heart Transplantation in America	142	(16)
Susan E. Lederer
Justice in Organ Allocation	158	(22)
Rosamond Rhodes
Playing with Matches without Getting Burned: Public Confidence in Organ Allocation	180	(25)
Jed Adam Gross
Consuming Differences: Post-Human Ethics, Global (In)justice, and the Transplant Trade in Organs	205	(32)
Nancy Scheper-Hughes
PART III. CITIZENS AND FOREIGNERS/ELIGIBILITY AND EXCLUSION
Sympathy and Exclusion: Access to Health Care for Undocumented Immigrants in the United States	237	(18)
Beatrix Hoffman
Eligibility for Organ Transplantation to Foreign Nationals: The Relationship between Citizenship, Justice, and Philanthropy as Policy Criteria	255	(21)
Eric M. Meslin, Karen R. Salmon, and Jason T. Eberl
Imagining the Nation, Imagining Donor Recipients: Jesica Santillan and the Public Discourse of Belonging	276	(23)
Leo R. Chavez
PART IV. SPEAKING FOR JESICA
Babes and Baboons: Jesica Santillan and Experimental Pediatric Transplant Research in America	299	(30)
Lesley A. Sharp
Jesica Speaks?: Adolescent Consent for Transplantation and Ethical Uncertainty	329	(20)
Carolyn Rouse
Fame and Fortune: The "Simple" Ethics of Organ Transplantation	349	(12)
Nancy M.P. King
Acknowledgments	361	(2)
Contributors	363	(6)
Index	369