9781890627867

Fasten Your Seatbelt : A Crash Course on Down Syndrome for Brothers and Sisters

by
  • ISBN13:

    9781890627867

  • ISBN10:

    1890627860

  • Format: Paperback
  • Copyright: 2009-02-10
  • Publisher: Woodbine House
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Supplemental Materials

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Summary

Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. This is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions -- all posed by teen siblings -- are grouped into the following categories: Facts and statistics about Down syndrome; How people with Down syndrome learn; Handling parent and family conflicts; Dealing with your sibling's frustrating behaviours; Managing uncomfortable situations; Sorting out your feelings; Becoming an advocate; What the future holds for you and your sibling; Finding local and national resources. Thoughtful, knowledgeable answers are provided by Brian Skotko, the brother of a young woman with Down syndrome, and Sue Levine, a social worker focused on sibling issues for the past 30 years. This book gives teens the green light to explore their own feelings and questions about their sibling with Down syndrome and how their relationship may change in the future.

Author Biography

Brian Skotko, M.D., M.P.P., is a physician at Children's Hospital Boston with a focus on children with intellectual disabilities. He serves on the board of directors for several disability organizations, including the National Down Syndrome Society and is co-author of Common Threads: Celebrating Life with Down Syndrome (Band of Angels Press, 2001). His sister with Down syndrome inspires much of his professional work.Susan P. Levine, M.A., C.S.W., is a co-founder and social worker at Family Resource Associates, Inc., a private, non-profit agency in central New Jersey. She has conducted support programs for parents and siblings of children with differing abilities for the past 30 years. Additionally, she writes quarterly newsletters for brothers and sisters.

Table of Contents

Introductionp. vii
Gearing Up to Go: Getting the Facts about Down Syndromep. 1
Road Test: How People with Down Syndrome Learnp. 25
Backseat Driver: Handling Your Family Issuesp. 53
Putting on the Brakes: Dealing with Frustrating Behaviorsp. 81
Traffic Jams: Managing Uncomfortable Situationsp. 101
Detour Ahead: Sorting Out Your Feelingsp. 123
Reading the Roadmap: How to Become an Advocatep. 143
"Are We There Yet?": Looking toward the Futurep. 161
Road Signs: Local and National Resourcesp. 179
Indexp. 189
Table of Contents provided by Ingram. All Rights Reserved.

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