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An intimate, irreverent memoir about one woman’s experience living with a deformity, and her quest to find freedom and joy in her body.
Carla Sosenko was born with Klippel-Trenaunay Syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back, a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. But No matter what she did, she was worried that she didn’t measure up.
In this candid and funny memoir, Carla shares what existing in an unconventional body has meant for her self-image, mental health, relationships, and ambitions. She writes of having liposuction when she was eight years old, and an adulthood spent obsessively gaming Weight Watchers points. She wrestles with the rise of Ozempic after working hard to reject diet culture. She tries to parse whether it is in spite of or because of her physical differences that she is an outgoing social butterfly who chose a high-profile career in media. Most of all, Carla explores the ways in which she’s felt alone and without community: not disabled but different; the recipient of pretty privilege, but also fatphobia; too much, but still never enough. We follow along as she learns to claim her body—and mind and spirit and life—for exactly what they are: her own.
A clarion call for anyone who has ever felt like an outsider or believed they should take up less space, I'll Look So Hot In a Coffin offers hope, recognition, and a new way to see ourselves—by celebrating what sets us apart.
