Palliative and hospice care is a specialty that is constantly evolving alongside the needs of its patients. Practitioners must navigate a rapidly growing field to best advocate for and deliver high quality primary and specialty palliative care to persons and families of those living with serious illness. The Oxford Textbook of Palliative Nursing remains the most comprehensive treatise on the art and science of palliative care nursing available. This new edition of the textbook brings together more than 150 nursing experts to help answer real-world questions around the physical, psychological, social, and spiritual needs pertinent to a successful palliative care team. Organized within 9 Sections, this new edition covers the gamut of principles of care: from the time of initial diagnosis of a serious illness to the end of a patient's life and beyond.

This sixth edition of The Oxford Textbook of Palliative Nursing mirrors developments in Palliative Care, including several new chapters to support the delivery of palliative care to diverse populations. These chapters explore care for patients living with pulmonary, cardiac, liver, renal, and hematologic diseases, as well as chapters on health inequalities, LGBTQ+ communities, rural communities, and care of those with substance use disorders and serious mental illness. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatrics. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education.

Tara A. Albrecht, PhD, ACNP-BC, ACHPN, RN, is a nurse practitioner, nurse scientist and the Specialty Director of Palliative Care at Duke University School of Nursing. Her program of research is focused on ameliorating symptoms and distress with the goal of improving to patient-reported health outcomes in adults with cancer and specifically those with hematologic malignancies. Her research also explores how the diagnosis of a cancer impacts the family. She works with an interdisciplinary team of scientists and clinicians with the shared goal of advancing symptom science to improve outcomes for adults living with cancer and their families.

Vanessa Battista, DNP, MBA, CPNP-PC, CHPPN, FPCN, FAAN, is a board-certified Pediatric Nurse Practitioner (PNP) and currently serves as Senior Nursing Director of Palliative Care at the Dana Farber Cancer Institute. She is responsible for clinical operations and practice of the inpatient and outpatient adult and pediatric palliative care nursing team. Dr. Battista also works with an interprofessional leadership team to ensure the delivery of high-quality palliative care throughout the Institute with a focus on nursing education.She lectures and teaches at the local, national, and international level, and is a member of the ELNEC pediatric faculty.

Heather Coats, PhD, APRN-BC, FAAN, FPCN, is a palliative care nurse practitioner who many roles, including researcher, administrator, clinician, and educator. Currently, she is the Director of Research for Hospice and Palliative Nurses Association (HPNA) and an associate professor at the University of Colorado, College of Nursing, Anschutz Medical Campus, in Aurora, CO. With a well-founded based of palliative, oncology, and hospice care spanning over 28 years, her program of research investigates the use of person-centered narrative interventions to improve communication between patients, their identified care partners, and the clinicians who care for them. For this program of research, she has been funded by NIH and the Cambia Health Foundation. She was the 2021 HPNA Vanguard recipient, is a Fellow in Palliative Care Nursing, and a Fellow of the American Academy of Nursing, and represents the Hospice and Palliative Nurses Association on the NASEM Roundtable on Quality Care for People with Serious Illness.

Abraham A. Brody, PhD, RN, FAAN, FPCN, is a palliative and geriatric nurse practitioner who has worked across settings to improve the quality of care and quality of life for seriously ill individuals. His research and implementation work centers on the intersection of geriatrics, palliative care, quality, and equity. This includes the development of interventions tailored for diverse and underserved older adults with serious illness and their caregivers that can be implemented in real-world conditions are tested for effectiveness in large multi-site clinical trials. His work leverages emerging technologies, including precision health and machine learning, to support the interdisciplinary healthcare workforce. His work has led to the development of the Aliviado Health Program, which seeks to help care delivery organizations provide evidence-based geriatric palliative care to persons living with dementia and their caregivers, which has been disseminated throughout dozens of hospices, home care agencies, nurse-led telephonic care programs, case management, and other settings, impacting care of over 50,000 individuals.

Acknowledgments

Preface
Betty R. Ferrell & Judith Paice

Part I: General Principles

Chapter 1: Introduction to Palliative Care
Tara A. Albrecht, Heather Coats, & Vanessa Battista

Chapter 2: Role of Nursing in Palliative Care
Michelle Webb

Chapter 3: Public Policy for Palliative Care
Marian Grant

Chapter 4: Principles of Patient and Family Assessment
Shannon L. Storey

Chapter 5: Palliative Nursing Communication
Constance Dahlin & Janice Linton

Chapter 6: Advance Care Planning
Shigeko Izumi

Chapter 7: Value Based Care
Rory B. Farrand & Aparna Gupta

Chapter 8: Interdisciplinary Palliative Care Teams: Specialists in Delivering Palliative Care
Rebekah Malloy, Jessica Bullington, Catherine Rogers, & Adrienne Norquist

Chapter 9: Enhancing Team Effectiveness
Katrina Bezak & Kimberly Chow

Chapter 10: Fatigue
Edith O’Neil-Page, Grace E. Dean, & Paula R. Anderson

Part II: Symptom Assessment and Management in Adult and Older Adult Populations

Chapter 11: Pain Management
Judith A. Paice & Martin Galligan

Chapter 12: Dyspnoea and Cough
DorAnne Donesky, Susie McDevitt, & Rebecca Disler

Chapter 13: Anorexia and Cachexia
Elizabeth E. Schack & Elizabeth Capano

Chapter 14: Nausea and Vomiting
David Collett

Chapter 15: Dysphagia, Hiccups, and Other Oral Symptoms
Rachel Klinedinst, Brenna McCarty, & Barton Bobb

Chapter 16: Bowel Management: Constipation, Obstruction, Diarrhea, and Ascites
Serena Snow & Cameron Jennings

Chapter 17: Medically Administered Nutrition and Hydration
Jennifer A. Tschanz & Carmen N. Spalding

Chapter 18: Urinary Tract Disorders in Palliative Care
Susan D. Bruce

Chapter 19: Lymphedema Management
Mei R. Fu, Charles P. Tilley, Rubén Martín Payo, & Catherine S. Finlayson

Chapter 20: Palliative Wound, Ostomy, and Continence Care
Charles P. Tilley, Kim Cavallito, Lindsay Alvarez, & Mei R. Fu

Chapter 21: Pruritus, Fever, and Sweats
Angel Smothers, Amanda Edwards, & Diana Niland

Chapter 22: Neurological Disorders
Lauren Massimo, & Brianna Morgan

Chapter 23: Acute Delirium
Shih-Yin Lin & Donna E. McCabe

Chapter 24: Anxiety and Depression
Katharine Adelstein & Elizabeth Archer-Nanda

Chapter 25: Fatigue
Stephanie Gilbertson-White & Nayung Youn

Chapter 26: Insomnia
Patricia Carter

Chapter 27: Sedation for Refractory Symptoms
Chandana Banerjee & Bonnie Freeman

Part III: Psychosocial and Spiritual Care Across Lifespan

Chapter 28: Cultural Considerations in Palliative Care
Carrie L. Cormack & Aminah Fraser-Rahim

Chapter 29: Supporting Families and Family Caregivers in Palliative Care
Tamryn F. Gray & J. Nicholas Dionne-Odom

Chapter 30: Hope and Meaning in Illness
Anessa M. Foxwell & Darcy Alimenti

Chapter 31: Sexuality and Sexual Function in Serious Illness
Christina M. Wilson & Marloe V. Esch

Chapter 32: Ethical Considerations in Palliative Care
Phyllis B. Whitehead & Mark G. Swope

Chapter 33: Addressing Spiritual, Religious, and Existential Needs in Palliative Care
Elizabeth Johnston Taylor & William E. Rosa

Part IV: Pediatric Palliative Care

Chapter 34: Pediatric Pain
Juliana H. O'Brien & Gina Santucci

Chapter 35: Symptom Management in Pediatric Palliative Care
Camara van Breemen & Nadine Lusney

Chapter 36: Values and Perspectives Influencing Goals of Care and Decision Making in Pediatric Palliative Care: Leading through Uncertainty
Christina McDaniel & Jordan M. Desai

Chapter 37: Communication Components for Determining Goals of Care and Advance Care Planning in Pediatric Palliative Care
Deborah Lafond & Kathy Perko

Chapter 38: Ethical Considerations in Pediatric Palliative Care
Hilary Carroll McGuire & Nicole Fernandez

Chapter 39: Pediatric Spiritual Assessment and Care
Dianne Richoux & Judy Zeringue

Chapter 40: Palliative Care in the Perinatal Setting: Neonatal Intensive Care Unit, Labor and Delivery Unit
Cheryl Ann Thaxton, Kathleen Ellis, & Andrea Biondi

Chapter 41: Considerations for Adolescents in Pediatric Palliative Care
Lauren Greco & Faith Kinnear

Chapter 42: Pediatric Hospice Perspectives
Alice Bass & Rebecca Turner

Chapter 43: Nursing Care for the Pediatric Patient at the End-of-Life
Jenna Freitas & Chelsea Heneghan

Chapter 44: Grief and Bereavement in Perinatal and Pediatric Palliative Care
Kathie Kobler, Rana Limbo, & Betty Davies

Part V: Issues in Populations of the Seriously Ill

Chapter 45: Pulmonary Palliative Care
Patricia A. Maani-Fogelman & Jennifer Wescoe-Singley

Chapter 46: Palliative Care in Heart Failure
Rachel D. Wells, Avery C. Bechthold, Keith M. Swetz, & J. Nicholas Dionne-Odom

Chapter 47: Palliative Care for People Living with HIV
Jacquelyn Slomka

Chapter 48: Palliative Approaches to Dementia Care
Tatiana Sadak

Chapter 49: Palliative Care for Persons with Liver Cirrhosis and Their Family Caregivers
Louise Babikow, Christopher D. Woodrell, & Lissi Hansen

Chapter 50: Palliative Care for Persons Living with End-Stage Kidney Disease
Kate Sciacca & Marissa Finger

Chapter 51: Palliative Care for Persons Living with a Hematologic Malignancy
Ashley Leak Bryant, Lorinda A. Coombs, Samantha Mayo, Argin Malakian, & Tara Albrecht

Chapter 52: Palliative Care for Persons Living with Cancer
Denice R. Economou, Alissa A. Ulanday, & Eden R. Brauer

Part VI: Care Near the End of Life

Chapter 53: Urgent Syndromes at the End of Life
Christina Feindt & Kelli Gershon

Chapter 54: Sedation for Refractory Symptoms
Sandra Perrotta

Chapter 55: Withdrawal or Cessation of Life-Sustaining Therapies: Mechanical Ventilation, Hemodialysis, Cardiac Devices
Margaret L. Campbell, Alvin H. Moss, & Sarah E. Schroeder

Chapter 56: Palliative Care and Requests for Assistance in Dying
Kaveri Roy & Sarah Rossmassler

Chapter 57: Planning for Death
Reiko Asano

Chapter 58: Grief and Bereavement
Inge Corless

Part VII: Mode of Palliative Care Delivery

Chapter 59: Hospice and Community-Based Palliative Care
Karen Hyden, Maura Lipp, & Tammy Stokes

Chapter 60: Telehealth, Telephonic Care, and Remote Patient Monitoring
Laraine Ann Chiu, Jennifer Curtis, & Inez Brandon

Chapter 61: Palliative Care Nursing in the Outpatient Setting
Nancy A. Robertson & Ami K. Goodnough

Chapter 62: Long-term Care
Melissa McClean & Joan G. Carpenter

Chapter 63: Palliative Care in the Emergency Department
Rebecca Wright & Benjamin Roberts

Chapter 64: Hospital-Based Palliative Care
Barbara Reville & Anessa M. Foxwell

Chapter 65: The Intensive Care Unit
Jennifer L. McAdam, Céline Gélinas, & Kathleen Turner

Part VIII: Considerations for Person and Family-Centered Palliative Care

Chapter 66: Addressing Health Inequalities, Social Determinants of Health, and Underrepresented Individuals in Palliative Care
Binu Koirala, Rebecca Wright, Patricia M. Davidson, Marlena C. Fisher, Katie E. Nelson, Benjamin Roberts, Danetta H. Sloan, & David S. Wu

Chapter 67: Affirmative Palliative Care for LGBTQIA+ Patients and their Families
Kailey E. Roberts, William E. Rosa, Noelle Marie Javier, Pierce DiMauro, Joshua C. Eyer, & Kristin G. Cloyes

Chapter 68: Palliative Care in the Setting of Substance Use Disorder
Peggy Compton, Yu-Ping Chang, & Salimah Meghani

Chapter 69: Palliative Care in the Setting of Serious Mental Illness
Lindsey C. Wright

Chapter 70: Rural Palliative Care
Richard A. Taylor, J. Nicholas Dionne-Odom, Erin R. Currie, Chunhong Xiao, & Marie A. Bakitas

Chapter 71: Palliative Care for Older Adults
Laura Moreines & Lauren Hunt

Chapter 72: Global Palliative Care in Low- and Middle-Income Countries
Virginia LeBaron, Thuý Ly Nguyên, & Usha Thapa

Part IX: Special Considerations for Palliative Care Nurses

Chapter 73: Occupational Stress, Burnout, and Self-Care in Palliative Nursing
Erica Frechman & Patricia Wright

Chapter 74: Palliative Care and Social Media
Dana Hansen & Amy Petrinec

Chapter 75: Career Advancement in Palliative Care
Katherine Stackhouse

Chapter 76: Nursing Education
Andra Davis & Megan Lippe

Chapter 77: Nursing Research
Micah A. Skeens, Amy R. Newman, & Kathleen E. Montgomery

Chapter 78: Developing and Implementing Quality Improvement Programs Across Settings
Sean M. Reed

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