Hospice Care for Children

by Armstrong-Dailey, Ann; Goltzer, Sarah Z.

• ISBN13: 9780195073126
• ISBN10: 0195073126
• Format: Hardcover
• Copyright: 1993-09-02
• Publisher: Oxford University Press

Summary

Children with life-threatening and terminal illnesses--and their families--require a unique kind of care to meet a wide variety of needs. This book provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment: organizational structure, clinical issues, the complementary roles of medical professionals and volunteers, the particular circumstances of neonatal and AIDS-related deaths, pain and symptom control, and bereavement support. It explains the developmental stages of children's understanding of death and offers useful advice about school programs and the helpful role of children's literature. Special consideration is given to the need to provide support to hospice staff as well as to grieving parents and surviving siblings. The book is intended for all those who participate in the hospice-care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents, and community service volunteers.

Table of Contents

Contributors	p. xv
Introduction	p. 3
Issues in Clinical Management
Children's Understanding of Death	p. 9
Pain and Symptom Control	p. 22
Psychosocial Aspects of Serious Illness in Childhood and Adolescence	p. 60
Neonatal Death	p. 75
Care for the Child with HIV Infection and AIDS	p. 85
Support Systems
Family Dynamics	p. 107
Caring for Bereaved Parents	p. 122
After a Child Dies: Helping the Siblings	p. 140
Lessons in Grief: A Practical Look at School Programs	p. 154
Role of the Primary Physician	p. 172
Staff Support	p. 184
The Volunteer Component	p. 198
Appendix
An Early Model of Care	p. 219
A Home Care Program	p. 231
Palliative Care in an Inpatient Hospital Setting	p. 248
Children's Literature on Death	p. 266
Additional Resources	p. 285
Index	p. 289
Table of Contents provided by Syndetics. All Rights Reserved.