9780231127943

Living With Dying: A Handbook for End-of-Life Healthcare Practioners

by
  • ISBN13:

    9780231127943

  • ISBN10:

    0231127944

  • Edition: 1st
  • Format: Hardcover
  • Copyright: 9/1/2004
  • Publisher: COLUMBIA UNIV PRESS

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Summary

The first resource on end-of-life care for healthcare practitioners who work with the terminally ill and their families, Living with Dyingbegins with the narratives of five healthcare professionals, who, when faced with overwhelming personal losses altered their clinical practices and philosophies. The book provides ways to ensure a respectful death for individuals, families, groups, and communities and is organized around theoretical issues in loss, grief, and bereavement and around clinical practice with individuals, families, and groups.Living with Dyingaddresses practice with people who have specific illnesses such as AIDS, bone marrow disease, and cancer and pays special attention to patients who have been stigmatized by culture, ability, sexual orientation, age, race, or homelessness. The book includes content on trauma and developmental issues for children, adults, and the aging who are dying, and it addresses legal, ethical, spiritual, cultural, and social class issues as core factors in the assessment of and work with the dying. It explores interdisciplinary teamwork, supervision, and the organizational and financing contexts in which dying occurs.Current research in end-of-life care, ways to provide leadership in the field, and a call for compassion, insight, and respect for the dying makes this an indispensable resource for social workers, healthcare educators, administrators, consultants, advocates, and practitioners who work with the dying and their families.

Author Biography

Joan Berzoff is professor and codirector of the doctoral program at Smith College School for Social Work and director of the End of Life Certificate Program at Smith Phyllis R. Silverman is scholar-in-residence at the Brandeis Women's Studies Research Center and professor emerita at the MGH Institute of Health Professions

Table of Contents

List of Contributors xi
Acknowledgments xv
Foreword by Thomas R. Egnew xix
Introduction 1(18)
PART I NARRATIVES IN END-OF-LIFE CARE 19(76)
1. Fragments of Love: Explorations in the Ethnography of Suffering and Professional Caregiving
David Browning
21(22)
2. The Symptom Is Stillness: Living with and Dying from ALS
Ellen Pulleyblank Coffey
43(14)
3. The Loss of a Child to Cancer: From Case to Caseworker
Roberta Hoffman
57(15)
4. September 11: Reflections on Living with Dying in Disaster Relief
Les Gallo-Silver and Penny Damaskos
72(23)
PART II THEORETICAL ASPECTS OF DEATH AND DYING 95(168)
Introduction: Theory
97(91)
5. What Is a Respectful Death?
Stu Farber, Thomas Egnew, and Annalu Farber
102(26)
6. Dying and Bereavement in Historical Perspective
Phyllis R. Silverman
128(22)
7. The History of Social Work in Hospice
Mary Raymer and Dona Reese
150(11)
8. The Interdisciplinary Team: An Oxymoron?
Inge B. Corless and Patrice K. Nicholas
161(10)
9. Ethical Issues in End-of-Life Care: Social Work Facilitation and Proactive Intervention
Patricia O'Donnell
171(17)
10. Spirituality and End-of-Life Care Practice for Social Workers
Carolyn Jacobs
188(18)
11. Gender and Death: Parallel and Intersecting Pathways
Illene C. Noppe
206(20)
12. Bereavement: A Time of Transition and Changing Relationships
Phyllis R. Silverman
226(16)
13. Psychodynamic Theories in Grief and Bereavement
Joan Berzoff
242(21)
PART III CLINICAL PRACTICE ISSUES IN END-OF-LIFE CARE 263(460)
Introduction: Clinical Practice
265(8)
14. The Trajectory of Illness
Allen Levine and Wendy Karger
273(24)
15. Clinical Social Work Practice at the End of Life
Felice Zilberfein and Elizabeth Hurwitz
297(21)
16. The End of Life at the Beginning of Life: Working with Dying Children and Their Families
Nancy Cincotta
318(30)
17. Working with Dying and Bereaved Older People
Sue Thompson and Neil Thompson
348(12)
18. Assessing Mental Health Risk in End-of-Life Care
Katherine Walsh-Burke
360(20)
19. Pain and Symptom Management: An Essential Role for Social Work
Terry Altilio
380(29)
20. Palliative Care and Social Work
Susan Blacker
409(15)
21. Integrating Spirituality and Religion
Barbara Dane
424(15)
22. A Framework for Multicultural End-of-Life Care: Enhancing Social Work Practice
Norma del Rio
439(23)
23. Marginalization at the End of Life
Shirley Otis-Green and Christian B. Rutland
462(20)
24. Lesbians and Gay Men at the End of Their Lives: Psychosocial Concerns
Bruce Thompson and Yvette Colón
482(17)
25. Palliative Care for People with Disabilities
Gary L. Stein and Lucille Esralew
499(9)
26. Clinical Practice with Groups in End-of-Life Care
Amanda L. Sutton and Daniel Liechty
508(26)
27. Technology-Based Groups and End-of-Life Social Work Practice
Yvette Colón
534(14)
28. Working with Families Facing Life-Threatening Illness in the Medical Setting
Susan Blacker and Alice Rainess Jordan
548(23)
29. Helping the Bereaved
Phyllis R. Silverman
571(22)
30. End-of-Life Bioethics in Clinical Social Work Practice
Susan Gerbino and Shelley Henderson
593(16)
31. End-of-Life Care in the Prison System: Implications for Social Work
Sheila R. Enders
609(19)
32. End-of-Life Care in Nursing Homes
Mercedes Bern-Klug and Kim Ellis
628(14)
33. The Family Unity Program for HIV-Affected Families: Creating a Family-Centered and Community-Building Context for Interventions
Christian Itin, Susan McFeaters, and Susan Taylor-Brown
642(19)
34. Social Work Consultation to Mental Health Workers Serving Children and Families Affected by Disasters
Lisa Aronson
661(14)
35. Hematopoietic Cell 'Transplantation and the End of Life
Iris Cohen Fineberg
675(21)
36. Oncology
John Linder
696(27)
PART IV CONTEXT AND LEADERSHIP 723(146)
Introduction: The Contexts of End-of-Life Care
725(5)
37. Current Legal Issues in End-of-Life Care
Stephen Arons
730(31)
38. Advanced Directives and Assisted Suicide: Policy Implications for Social Work Practice
Ellen Csikai
761(17)
39. End-of-Life Care in Prisons
John Dawes and Jenny Dawes
778(14)
40. Social Work End-of-Life Research
Betty J. Kramer and Mercedes Bern-Klug
792(23)
41. Financing End-of-Life Care
June Simmons
815(10)
42. 'Faking Charge: Social Work Leadership in End-of-Life Care
Esther Chachkes and Zelda Foster
825(13)
43. The Future of Social Work in End-of-Life Care: A Call to Action
Elizabeth J. Clark
838(10)
44. Relentless Self-Care Irene Renzenbrinh
848(21)
Conclusion 869(2)
Index 871

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