9780309091152

Text provides a report on the Institute of Medicine's findings for assessing whether reported HIV cases are adequate, reliable, and accurate. Presents various suggestions and recommendations for several questions IOM was commissioned to study. Softcover. DNLM: United States. Ryan White Comprehensive AIDS Resources Emergency Act of 1990.

EXECUTIVE SUMMARY

1

(26)

Charge to the Committee,

3

(1)

Use of HIV Data in the Title I and II Allocation Formulas,

3

(11)

Estimating Resource Needs,

14

(3)

Measuring Quality of Care,

17

(5)

Summary,

22

(1)

References,

23

(4)

1 INTRODUCTION

27

(14)

Impetus for this Study,

28

(2)

Study Charge,

30

(4)

Study Methods,

34

(1)

Guiding Principles,

34

(4)

Organization of the Report,

38

(1)

References,

38

(3)

2 OVERVIEW OF THE HIV/AIDS EPIDEMIC AND THE RYAN WHITE CARE ACT

41

(32)

Overview of the HIV/AIDS Epidemic,

41

(3)

Paying for HIV/AIDS Care,

44

(1)

History of the CARE Act,

45

(7)

Current Structure of the Act,

52

(9)

Overview of CARE Act Allocation Formulas,

61

(8)

References,

69

(4)

3 PUBLIC HEALTH AND HIV/AIDS SURVEILLANCE

73

(14)

Public Health Surveillance,

73

(3)

AIDS and HIV Case Reporting,

76

(4)

Other Methods for Estimating HIV Prevalence,

80

(4)

References,

84

(3)

4 HIV REPORTING DATA AND TITLE I AND II FORMULAS

87

(48)

Capability of State HIV Reporting Systems to Provide Data for the Formulas,

90

(4)

Comparability of Data Quality Across Jurisdictions,

94

(24)

Relative Disease Burden and Ranking of Need Across Jurisdictions,

118

(3)

Sensitivity of the Formula Allocations to Changes in the Underlying Input Data,

121

(4)

Methods for Improving Data for the Formulas,

125

(3)

Recommendations,

128

(2)

References,

130

(5)

5 ESTIMATING RESOURCE NEEDS

135

(53)

Factors Affecting Resource Needs,

137

(3)

Title I Supplemental Award Process,

140

(4)

Criteria for Assessing Measures of Resource Needs,

144

(2)

Analysis of Title I Supplemental Applications,

146

(22)

Findings,

168

(3)

Available Data Sources,

171

(1)

Proposed Approach,

172

(12)

Recommendations,

184

(2)

References,

186

(2)

6 MEASURING QUALITY OF CARE

188

(33)

Current HRSA/HAB Quality of Care Activities,

190

(4)

Four-Dimensional Conceptual Framework for HIV Quality Assessment,

194

(6)

Principles for Selecting Quality-of-Care Measures,

200

(2)

Existing Quality-of-Care Measures for HIV/AIDS,

202

(11)

Findings,

213

(2)

Recommendations,

215

(2)

References,

217

(4)

7 FINDINGS AND RECOMMENDATIONS

221

(16)

References,

233

(4)

APPENDIXES

A Acronyms

237

(2)

B Financial Resources of States for HIV/AIDS Reporting

239

(8)

C Analyses of the Sensitivity of the Formula Allocations to Underlying Changes in Input Data

247

(14)

D Methodological Details of HCSUS Analyses

261

(6)

E Tables of HIV/AIDS Quality Measures from Selected Sources

267

(28)

F Biographies

295

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Measuring What Matters: Allocation, Planning, and Quality Assessment for the Ryan White CARE Act

0309091152

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