Parkinson Disease A Health Policy Perspective

by Martin, Wayne; Suchowersky, Oksana; Kovacs Burns, Katharina; Jonsson, Egon

• ISBN13: 9783527327799
• ISBN10: 3527327797
• Edition: 1st
• Format: Hardcover
• Copyright: 2010-04-26
• Publisher: Wiley-Blackwell

Summary

Part of the successful Institute of Health Economics (IHE) book series, this handbook and ready reference adopts a unique approach in combining policy recommendations with specific treatment options for Parkinson patients. The first part of the book deals with the clinical medical, social and economical aspects of Parkinson Disease. These ten chapters include the latest diagnosis and treatment options for patients, the economical consequences, social and ethical implications and end-of life issues. The second part of the book essentially covers a large-scale case study on Parkinson in Alberta, Canada, since most of the issues discussed are relevant in all developed countries. With its strong focus on correct diagnosis and early intervention, this is an invaluable guide for clinicians and policymakers dealing with this devastating disease.

Author Biography

Wayne Martin, MD, FRCPC, Movement Disorders Clinic, University of Alberta/Glenrose Rehabilitation Hospital, Edmonton, Alberta
Dr. Martin received his undergraduate and medical education from the University of Alberta. After completing a neurology residency at the University of British Columbia in Vancouver, he obtained postgraduate research training at Washington University in St. Louis. He then returned to Vancouver to join the University of British Columbia neurology faculty as part of the movement disorders group. In 1990, he returned to the University of Alberta as a Professor in the Division of Neurology and Director of the Movement Disorders Clinic. He remains active in research with particular interests in neuroimaging and in clinical trials of new treatments in movement disorders.

Oksana Suchowersky, MD FRCPC, Movement Disorders Program, Hotchkiss Brain Institute, Calgary Alberta

Katharina Kovacs Burns, MSc, MHSA, PhD, Health Sciences Council, University of Alberta, Edmonton, Alberta Email: [e-mail]

Egon Jonsson, PhD, Professor, University of Alberta, School of Public Health, Edmonton, Alberta; University of Calgary, Community Health Sciences, Calgary, Alberta; Executive Director & CEO, Institute of Health Economics, Edmonton, Alberta

Table of Contents

Preface

Summary and Policy Considerations

List of Contributors

Parkinson Disease - Diagnosis and Treatment

Parkinson Disease

Patient Burden

Characteristics of Parkinson Disease

Diagnosis of Parkinson Disease

Treatment for Parkinson Disease

References

Clinical Features of Parkinson Disease

Introduction

Cardinal Features

Differential Diagnosis

Non-Dopaminergic Features of PD

Natural History

Conclusions

Current Approaches to the Management of Parkinson Disease

Introduction

Pharmacologic Treatment

Nursing

Rehabilitation

Nutrition

Psychosocial Issues

Conclusions

Treatment of Non-Motor Symptoms of Parkinson Disease

Sleep Disturbances

Autonomic Dysfunction

Neuropsychiatric Problems

Sensory Symptoms and Pain

Other Problems

Non-Motor Fluctuations

Conclusions

Palliative Care and End-of-Life Issues with Parkinson Disease

Challenges in Advanced-Stage PD

The Most Common Causes of Death in PD

Specific Problems in the Advanced-PD Patient

Caregiver Burden

Summary

Natural Health Products in Parkinson Disease

Introduction

Methods

Conclusions

Can the Art of Medicine use Arts as Medicine? A Personal Perspective

Music Therapy - Let's Listen, Let's Play

Gait - Let's Make Tracks

Voice - Let's Make a Joyful Noise

Art - Let's Create a Masterpiece

Dance - Let's Groove

Conclusion

Further Reading

The Costs of Parkinson Disease

Introduction

Methods

Discussion

Summary and Conclusion

A Literature Summary on Parkinson Disease

Objective

Methodology

Literature Search Findings

Literature Summary

Early Features of PD

Available Clinical Practice Guidelines

Highlights of Current Research in Parkinson Disease

Overview of Research Policy

Clinical Research

The Case of Alberta, Canada

The Incidence and Prevalence of Parkinson Disease in Alberta

Introduction

Methods

Results

Discussion

Knowledge, Service Access, and the Needs of Individuals Living with Parkinson Disease: The Alberta Case

Introduction

The Alberta Case

Background and Context for Study

Parkinson Disease: Its Impact and Costs

Study Design and Methodology

Concluding Comments and Recommendations

Caregivers of Persons with Parkinson Disease: Experiences and Perspectives

Appreciating the Relevance of the Caregivers' Experiences

Caregiver Burden: A Review of the Literature

Results of an Alberta Study Involving Caregivers

Analysis, Conclusions and Recommendations

Health-Related Quality of Life in Parkinson Disease: An Introduction to Concepts and Measures

What Are the Symptomatic Features?

Health-Related Quality of Life

Generic Measures

Disease-Specifi c Measures

Conclusions 285

Appendix: Parkinson-Focused Quality of Life Questionnaires

Parkinson's Impact Scale

Measuring Health-Related Quality of Life in PD: How Does It Compare to the Canadian General Population?

Introduction

Research Design and Methods

Discussion

Conclusion

Policy Considerations for Alberta

Coordinate Neurological Services - Establish Specialized Centers Within a New Framework

Establish a Committee to Review the Management of People with Neurological Diseases

Appendices

Parkinson Disease FAQ Sheet

What is Parkinson Disease?

Who Does Parkinson Disease Affect?

What are the Symptoms of Parkinson Disease?

What Are the Non-Motor Symptoms of Parkinson Disease?

How is Parkinson Disease Diagnosed?

Who Treats People with Parkinson Disease?

How is Parkinson Disease Treated?

What Other Support Services Are Available?

Glossary of Terms

Index

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