Quality of Life : From Nursing and Patient Perspectives

by King, Cynthia R.; Hinds, Pamela S.

• ISBN13: 9780763722357
• ISBN10: 0763722359
• Edition: 2nd
• Format: Paperback
• Copyright: 2003-05-01
• Publisher: Jones & Bartlett

Summary

This comprehensive reference provides a unique perspective on quality of life issues for oncology nurses in education, research, and clinical practice, and presents quality of life issues related to specific diseases, treatments, and populations.

Table of Contents

Foreword	xi
Preface	xv
Acknowledgments	xvii
Contributors	xix
SECTION 1 OVERVIEW	1	(42)
Evolution of Quality of Life in Oncology and Oncology Nursing	3	(26)
Marcia M. Grant
Grace E. Dean
Overview of Quality of Life and Controversial Issues	29	(14)
Cythia R. King
SECTION 2 THEORY	43	(126)
Theories and Conceptual Models to Guide Quality of Life Related Research	45	(20)
April Hazard Vallerand
Judith K. Payne
Conceptualization and Measurement of Quality of Life and Related Concepts: Guidelines for Clarity	65	(28)
Joan E. Haase
Carrie Jo Braden
Spiritual Quality of Life	93	(24)
Elizabeth Johnston Taylor
Quality of Life and Culture	117	(26)
Geraldine V. Padilla
Quality of Life in Children and Adolescents with Cancer	143	(26)
Pamela S. Hinds
Joan E. Haase
SECTION 3 RESEARCH	169	(70)
Quality of Life Methodological and Measurement Issues	171	(28)
Mel R. Haberman
Nigel Bush
Quality of Life and Symptoms	199	(20)
Betty R. Ferrel
Marcia M. Grant
Quality of Life in Families Experiencing Cancer	219	(20)
Kathleen M. Stetz
SECTION 4 PRACTICE	239	(140)
Quality of Life Issues in Breast Cancer	241	(20)
Deanna Kuhn
Karen Hassey Dow
Clinical Implications of Quality of Life	261	(12)
Cynthia R. King
Quality of Life Issues Related to Marrow Transplantation	273	(42)
June G. Eilers
Cynthia R. King
A European Perspective on Quality of Life of Stem Cell Transplantation Patients	315	(30)
Monica C. Fliedner
Fatigue and Quality of Life A Question of Balance	345	(34)
Margaret Barton-Burke
SECTION 5 PATIENT PERSPECTIVES	379	(32)
Cancer Survivorship Quality for Life	381	(16)
Susan A. Leigh
Ellen L. Stovall
Quality of Life Stories by Patients and Families	397	(14)
SECTION 6 CONCLUSION	411	(8)
Nursing and Patient Perspectives on Quality of Life	413	(6)
Pamela S. Hinds
Cynthia R. King
APPENDIX 1 Descriptions/Definitions of Quality of Life by Sample (Adult or Youth) and Publication Year	419	(8)
APPENDIX 2 Quality of Life Measurements	427	(91)
I. Example of the Global Single Item Approach to Measuring Quality of Life	429	(2)
Quality of Life Visual Life Analogue Scale (VAS)	429	(2)
Kate Lorig
II. Examples of Generic Measures of Quality of Life	431	(20)
The McCorkle and Young Symptom Distress Scale	431	(4)
Ruth McCorkle
Kathy Young Graham
Demands of Illness Inventory	435	(12)
Mel. R. Haberman
Quality of Life Index	447	(4)
Geraldine V. Padilla
Marcia M. Grant
III. Examples of Cancer-Specific Measures of Quality of Life (Single Measure Approach)	451	(14)
Quality of Life Index: Cancer Version	451	(4)
Carol Ferrans
Quality of Life Scale: Bone Marrow Transplant	455	(10)
Betty R. Ferrell
Marcia M. Grant
IV. Example of Cancer-Specific Measure of Quality of Life (Battery Approach)	465	(8)
Quality of Life Components for Pediatric Oncology Group (POG) Protocols	465	(8)
Andrew Bradlyn
V. Example of Cancer-Specific Measure of Quality of Life (Modular Approach)	473	(8)
The Bush Bone Marrow Transplant Symptom Inventory	473	(8)
Nigel Bush
VI. Sample Tools for Measuring Quality of Life in Children with Cancer	481	(37)
PedsQL™ Pediatric Quality of Life Inventory for Young Children (ages 5-7)	481	(14)
PedsQL™ Pediatric Quality of Life Inventory for Children (ages 8-12)	495	(12)
PedsQL™ Pediatric Quality of Life Inventory for Teens (ages 13-18)	507	(11)
Index	518