Visibly Different Coping with Disfigurement

by Lansdown, Richard; Rumsey, Nichola; Bradbury, Eileen; Carr, Tony; Partridge, James

• ISBN13: 9780750634243
• ISBN10: 0750634243
• Format: Paperback
• Copyright: 1997-08-07
• Publisher: Hodder Education Publishers

Summary

The opening section of the book gives a flavor of the experience of having a disfigurement. It demonstrates the human experiences of being significantly visibly different compared with the norm, a norm, which is either defined for us by the culture in which we live, or by ourselves. Important characteristics: addresses a neglected but commonly occurring problem; includes contributions from people who are themselves visibly different; opens up the experiences of, and offers guidance to professionals in a range of disciplines working in this area; reviews research in an accessible style; outlines and discusses the importance of appropriate service provision Health care professionals in a range of disciplines, students, families of the disfigured and the disfigured themselves will all find this very readable book of enormous benefit. It is an authoritative and reassuring resource with an innovative approach.

Author Biography

Bradbury, Eileen, BSocFc PGCE DipCOT PhD, Clinical Counsellor in Plastic Surgery, Lecturer in Health Psychology, University of Manchester, UK.
CARR, Tony, BSc PhD DClinPsychol CPsychol AFBPsS, Head of Clinical Teaching Unit, University of Plymouth, UK.
LANSDOWN, RICHARD, PhD FBPsS CPsychol, Honorary Senior Lecturer, Institute of Child Health, University of London, UK.
PARTRIDGE, James, MA, Oxon MSc, Director of Changing Faces, London. Visiting Research Fellow, University of the West of England, UK.
RUMSEY, Nichola, BA, Hons MSc PhD CPsychol, Principal Lecturer in Psychology, University of the West of England, UK.

Table of Contents

Contributors	vii	(3)
Introduction	x
Richard Lansdown
Nichola Rumsey
Section One: The Experience of Being Visibly Different	1	(74)
James Partridge
1 Introduction to Section One	3	(8)
James Partridge
Part One: Congenital Disfigurement	11	(34)
2 Maureen Williams	13	(5)
3 Alan Chapple	18	(3)
4 Katherine Lacy	21	(6)
5 Marc C. Crank	27	(4)
6 John Storry	31	(8)
7 James Harden	39	(6)
Part Two: Acquired Disfigurement	45	(30)
8 Anthony Oakeshott	47	(5)
9 Kwasi Afari-Mintu	52	(8)
10 Jane Richardson	60	(4)
11 Lisa Woolley	64	(3)
12 Living visibly different: a summary	67	(8)
James Partridge
Section Two: Perspectives from Research and Assessment	75	(78)
Tony Carr
13 Introduction to Section Two:	77	(2)
Tony Carr
14 Types, causes and physical treatment of visible differences	79	(12)
David Harris
15 Historical and anthropological perspectives on appearance:	91	(11)
Nichola Rumsey
Sarah Bishop
William Shaw
16 Psychological research on visible differences in adults	102	(10)
Emma Robinson
17 Problems faced by children and families living with visible differences	112	(9)
Elizabeth Walters
18 Individual variation in adjusting to visible differences	121	(10)
Tim Moss
19 Assessment and measurement in clinical practice	131	(16)
Tony Carr
20 Anthropometry: the physical measurement of visible differences	147	(6)
Dai Roberts-Harry
Section Three: Coping with Visible Difference	153	(88)
Eileen Bradbury
21 Introduction to Section Three	155	(3)
Eileen Bradbury
22 Psychological intervention and models of current working practice	158	(14)
Daniela Hearst
Judith Middleton
23 Patient involvement in decision making about treatment	172	(8)
Eileen Bradbury
Judith Middleton
24 Understanding the problems	180	(14)
Eileen Bradbury
25 Case Studies	194	(22)
Nick Ambler
Eileen Bradbury
Daniela Hearst
26 Support for professional carers	216	(8)
Nick Ambler
27 The role of support groups	224	(10)
James Partridge
Poppy Nash
28 Conclusion: the way forward	234	(7)
Index	241