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9780878687756

Genetics and Genetic Services : A Child Welfare Workers' Guide

by ;
  • ISBN13:

    9780878687756

  • ISBN10:

    0878687750

  • Format: Paperback
  • Copyright: 2000-01-01
  • Publisher: Child Welfare League of Amer
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List Price: $22.95

Summary

This book was developed for professionals who are involved with families affected by genetic disorders. Part I provides information about genetics and discusses current genetic services, conducting a genetic family history-taking interview, and recording and transmitting information. Part II focuses on psychosocial intervention with children and families affected by genetic disorders. Chapter topics include social workers' self-awareness about differentness, demands on caregivers, and cultural diversity issues related to genetics and birth defects. Genetics begins with quick references for practical information about obtaining genetic services for clients and has several exercises for readers to complete and discuss on the issues associated with genetic information.

Author Biography

Karen Eanet, M.S., is a genetic counselor at the Harvey Institute for Genetics at Greater Baltimore Medical Center, Baltimore, Maryland. Julia B. Rauch, M.S.W., Ph.D., LCSW-C, is professor and director of the Center for Maternal and Child Health Social Work Education at the School of Social Work, University of Maryland-Baltimore.

Table of Contents

Quick References
Criteria for Referral to Genetic Services vii
How to Locate Genetic Services viii
Information and Records Needed for Genetic Evaluations ix
Birth Defects and Harmful Environmental Agents x
Carrier Risks by Ethnic Group xiv
Common Genetic Conditions xv
Foreword xxi
Acknowledgments xxiii
Introduction xxv
Introduction to Genetics and Genetic Services
1(68)
Why Are Genetic Family Histories Important?
3(20)
Selected Genetic Concepts
23(8)
Genetic Services
31(4)
Referrals to Genetic Services
35(8)
Conducting the History-Taking Interview
43(6)
Obtaining the Genetic Family History
49(4)
Recording the Information
53(12)
Transmitting the Information
65(4)
Genetics and Child Welfare
69(132)
Self-Awareness and Self-Directed Learning
71(16)
Genetic Disorders and Child Development
87(10)
Demands on Caregivers
97(14)
Personal, Social, and Ethical Issues
111(8)
Cultures, Co-cultures, and Genetics
119(40)
Appendices
A Organizations
159(8)
B Genetic Family History, Long Form
167(10)
C Recommendations for Obtaining, Storing, and Transmitting Genetic Information
177(10)
D Federal Information Centers and Clearinghouses
187(4)
E Recommended Readings
191(10)
References 201(8)
About the Authors 209

Supplemental Materials

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