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9780597832017

The 2002 Official Patient's Sourcebook on Fragile X Syndrome

by
  • ISBN13:

    9780597832017

  • ISBN10:

    0597832013

  • Edition: 1st
  • Format: Paperback
  • Copyright: 2002-06-01
  • Publisher: Lightning Source Inc

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Table of Contents

Introduction 1(1)
Overview
1(2)
Organization
3(1)
Scope
3(1)
Moving Forward
4(3)
PART I: THE ESSENTIALS
7(30)
The Essentials on Fragile X Syndrome: Guidelines
9(16)
Overview
9(1)
What Is Fragile X Syndrome?
10(2)
Inheritance
12(1)
Testing for Fragile X Carrier
13(1)
Prenatal Testing
13(1)
Diagnosing and Treating Fragile X Syndrome
13(3)
Medical Problems
16(1)
Education of Children with Fragile X
16(1)
Additional Therapies
17(1)
Future Research
17(1)
More Guideline Sources
18(4)
Vocabulary Builder
22(3)
Seeking Guidance
25(12)
Overview
25(1)
Associations and Fragile X Syndrome
25(5)
Finding More Associations
30(2)
Finding Doctors
32(1)
Finding a Pediatrician
33(1)
Selecting Your Doctor
33(1)
Working with Your Child's Doctor
34(1)
Broader Health-Related Resources
35(1)
Vocabulary Builder
35(2)
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
37(68)
Studies on Fragile X Syndrome
39(22)
Overview
39(1)
The Combined Health Information Database
39(3)
Federally-Funded Research on Fragile X Syndrome
42(14)
E-Journals: PubMed Central
56(1)
The National Library of Medicine: PubMed
57(1)
Vocabulary Builder
58(3)
Patents on Fragile X Syndrome
61(6)
Overview
61(1)
Patents on Fragile X Syndrome
62(3)
Patent Applications on Fragile X Syndrome
65(1)
Keeping Current
65(1)
Vocabulary Builder
65(2)
Books on Fragile X Syndrome
67(16)
Overview
67(1)
Book Summaries: Federal Agencies
68(3)
Book Summaries: Online Booksellers
71(2)
The National Library of Medicine Book Index
73(3)
Chapters on Fragile X Syndrome
76(3)
General Home References
79(1)
Vocabulary Builder
80(3)
Multimedia on Fragile X Syndrome
83(2)
Overview
83(1)
Bibliography: Multimedia on Fragile X Syndrome
83(1)
Vocabulary Builder
84(1)
Periodicals and News on Fragile X Syndrome
85(6)
Overview
85(1)
News Services & Press Releases
85(3)
Newsletters on Fragile X Syndrome
88(1)
Academic Periodicals covering Fragile X Syndrome
89(1)
Vocabulary Builder
90(1)
Physician Guidelines and Databases
91(12)
Overview
91(1)
NIH Guidelines
91(1)
NIH Databases
92(5)
Other Commercial Databases
97(1)
The Genome Project and Fragile X Syndrome
97(5)
Specialized References
102(1)
Dissertations on Fragile X Syndrome
103(2)
Overview
103(1)
Dissertations on Fragile X Syndrome
103(1)
Keeping Current
104(1)
PART III. APPENDICES
105(2)
APPENDIX A. RESEARCHING YOUR CHILD'S MEDICATIONS
107(8)
Overview
107(1)
Your Child's Medications: The Basics
108(1)
Learning More about Your Child's Medications
109(1)
Commercial Databases
110(1)
Contraindications and Interactions (Hidden Dangers)
111(1)
A Final Warning
112(1)
General References
113(2)
APPENDIX B. RESEARCHING ALTERNATIVE MEDICINE
115(12)
Overview
115(1)
What Is CAM?
116(1)
What Are the Domains of Alternative Medicine?
116(4)
Can Alternatives Affect My Child's Treatment?
120(1)
Finding CAM References on Fragile X Syndrome
120(3)
Additional Web Resources
123(1)
General References
124(1)
Vocabulary Builder
125(2)
APPENDIX C. RESEARCHING NUTRITION
127(10)
Overview
127(1)
Food and Nutrition: General Principles
128(4)
Finding Studies on Fragile X Syndrome
132(1)
Federal Resources on Nutrition
133(1)
Additional Web Resources
134(1)
Vocabulary Builder
135(2)
APPENDIX D. FINDING MEDICAL LIBRARIES
137(8)
Overview
137(1)
Preparation
137(1)
Finding a Local Medical Library
138(1)
Medical Libraries Open to the Public
138(7)
APPENDIX E. YOUR CHILD'S RIGHTS AND INSURANCE
145(10)
Overview
145(1)
Your Child's Rights as a Patient
145(4)
Parent Responsibilities
149(1)
Choosing an Insurance Plan
150(2)
Medicaid
152(1)
NORD's Medication Assistance Programs
153(1)
Additional Resources
153(2)
ONLINE GLOSSARIES
155(4)
Online Dictionary Directories
158(1)
FRAGILE X SYNDROME GLOSSARY
159(11)
General Dictionaries and Glossaries
168(2)
Index 170

Supplemental Materials

What is included with this book?

The New copy of this book will include any supplemental materials advertised. Please check the title of the book to determine if it should include any access cards, study guides, lab manuals, CDs, etc.

The Used, Rental and eBook copies of this book are not guaranteed to include any supplemental materials. Typically, only the book itself is included. This is true even if the title states it includes any access cards, study guides, lab manuals, CDs, etc.

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