The Day after Yesterday Resilience in the Face of Dementia

by Wallace, Joe

• ISBN13: 9780262048606
• ISBN10: 0262048604
• eBook ISBN(s): 9780262376488
• Format: Hardcover
• Copyright: 2023-09-26
• Publisher: The MIT Press
• More Book Details
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Summary

A deft combination of narrative and portraiture that breaks the taboo around dementia, replacing the fear and futility with empathy and nuance.

A graphic designer, a writer, a public servant, a retired PhD, a 29-year-old with early-onset Alzheimer’s. These are just some of the 50 million people living with dementia who share their deeply personal stories with Joe Wallace in The Day after Yesterday, a powerful collection of portraits and personal stories that humanizes the millions of people living with the disease. Each story in this poignant volume offers a unique and powerful lesson—not just about how to live with a terminal illness, but how to do so with resilience and dignity.

Dementia is often a taboo subject with limited public awareness or discourse. A diagnosis can become a mechanism for segregating those affected from society, making it easier to see only the label and not the individual, which, in turn, makes it easier to ignore the burgeoning health crisis and the individuals themselves. But as one man told Wallace, “Don’t believe the narrative that life is over. I want my voice to help get people to treat us the same as they did before we got the diagnosis. We may change some, but we are the same people!” More than a visual representation, The Day after Yesterday’s compassionate portraits capture the dignity and richness of each individual, destigmatizing dementia and enabling a loving, respectful, and much-needed conversation.

Author Biography

Joe Wallace has been a portrait photographer and storyteller for twenty years. Honing his storytelling skills in advertising, his photo-narrative work blends his journalistic eye with his fine art sensibility. Several members of his family have lived with dementia, compelling Wallace to tell a more complex and honest story of those living with the disease.

Table of Contents

viii PREFACE
1 INTRODUCTION
A Conversation between David Shenk and Joe Wallace
9 PORTRAITS
CHARLIE HESS | 11
DAISY DUARTE | 15
JAY REINSTEIN | 19
EDWINA FRANK | 22
GENTLE VANDEBURGH | 27
JUANITA PETERSON | 33
PHYLLIS NEWELL KIRKPATRICK | 36
JIM BUTLER | 38
BAMA BRADLEY | 42
ARTHENA CASTON | 46
BE STRONG IN THE BROKEN PLACES | 50 by Greg O’Brien
WILLIAM FOGGLE | 54
MIKE BELLEVILLE | 59
CARRIE + BRYAN | 62
HANNAH RICHARDSON | 68
HELEN TUNG | 72
RENEE PERKINS | 75
JOHN HUNZIKER | 78
B. J. FOX | 82
ARTHUR MAZMAN | 85
ANDRES MARTIN | 88
BONNIE ERICKSON | 92
PAK HUP TOM | 96
CATHY SHAW | 98
AINE WALSH | 100
ZHIFEN WU | 102
FRANCES BASSI | 105
LARRY BAYLES | 108
RICHARD WRIGHT | 114
BILL ZECKHAUSEN | 118
DOROTHY CASTELLUCCI | 122
GEORGE BLACKWELL | 124
BOB LOWE | 126
MICHAEL MCCORMACK | 129
TSU-MING WU | 132
MARTHA VIOLA JORDAN | 136
ALAN O’HARE | 138
SUE BLACK | 142
TED BLAZAK | 144
147 ENDING ALZHEIMER’S DISEASE IN OUR LIFETIME by Dr. Rudolph E. Tanzi
154 ACKNOWLEDGMENTS
157 ABOUT THE AUTHOR