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Ethical Considerations for Research on Housing-related Health Hazards Involving Children book cover, ISBN 9780309097260

Ethical Considerations for Research on Housing-related Health Hazards Involving Children

by Lo, Bernard

ISBN13: 9780309097260
ISBN10: 0309097266
eBook ISBN(s): 9780309164924
Edition: 1st
Format: Paperback
Copyright: 2005-11-01
Publisher: NATL ACADEMY OF SCIENCE

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Summary

Text discusses the ethical considerations for research on housing-related health hazards involving children. Topics include housing hazards, court cases, characteristics of research community involvement, parental permission, responsibility, research oversight, and more. Offers boxes, figures, and tables. For social workers. Softcover.

Table of Contents

PREFACE

xvii

Executive Summary

1

(12)

Nature of the Research,

2

(2)

A Systems Approach,

4

(1)

Responsibilities of Researchers,

4

(6)

Responsibilities of Research Institutions and IRBs,

10

(1)

Responsibilities of the Federal Government and Research Sponsors,

11

(2)

1 Introduction

13

(11)

Issues in Research with Children,

14

(1)

Housing Health Hazards Research,

15

(2)

Different Assessments of Risks and Benefits,

17

(1)

Grimes v. Kennedy Krieger: An Illustrative Case,

18

(1)

The Committee's Study,

19

(5)

Building on Other National Academies' Reports,

20

(3)

Report Structure,

23

(1)

2 Housing and Health

24

(17)

Housing Hazards,

25

(13)

Asthma Triggers,

25

(2)

Lead,

27

(4)

Pesticides,

31

(2)

Environmental Tobacco Smoke,

33

(2)

Injuries,

35

(2)

Overcrowding,

37

(1)

Rural Housing,

37

(1)

Risk Disparities,

38

(2)

Conclusions,

40

(1)

3 Grimes v. Kennedy Krieger Institute: Revisiting the Ethical Issues

41

(21)

Background,

42

(3)

The Case,

43

(1)

Court Rulings,

44

(1)

Issues Raised by the Appeals Court Ruling,

45

(3)

Duty of Care,

45

(1)

Exploitation of Vulnerable Populations,

46

(1)

Institutional Review Process,

46

(1)

Informed Consent,

47

(1)

Research Risks to Children,

48

(1)

Ethical Arguments in National Commission Reports,

48

(4)

Parental Consent and the Best Interest of the Child,

50

(1)

Balancing Risks and Benefits,

51

(1)

Current Federal Regulations,

52

(3)

Elements of the Common Rule: Subpart A,

53

(1)

Additional Protections for Research Involving Children: Subpart D,

54

(1)

Subsequent Analysis of Ethical Arguments,

55

(5)

Assessing Risks and Benefits,

55

(3)

Best Interests of the Child,

58

(2)

Conclusions,

60

(2)

4 Characteristics of Housing Health Hazards Research

62

(14)

The Setting,

63

(4)

The Sanctity of the Home,

64

(1)

Ethical Issues in Entering a Home,

65

(2)

Vulnerable Populations,

67

(3)

Ethical Issues,

67

(2)

Addressing the Ethical Issues,

69

(1)

Risks and Benefits,

70

(4)

The Nature of Risk,

70

(1)

Therapeutic Misconception,

71

(1)

Long-Term Benefits of Research,

71

(1)

Different Assessments,

72

(2)

Conclusions,

74

(2)

5 Community Involvement

76

(23)

Ethical Framework,

76

(2)

Value of Community Involvement,

78

(1)

Principles of Community Involvement,

79

(3)

Approaches to Community Involvement,

82

(9)

Research Staff,

84

(1)

Community Consultation or Review,

84

(1)

Community Advisory Boards,

85

(1)

Community-Based Participatory Research,

86

(5)

Evidence About Community Involvement,

91

(2)

Issues in Community Involvement,

93

(4)

Definition of Community,

93

(1)

Identification of Community Representatives,

94

(1)

Goals of Community Involvement,

95

(1)

Practical Challenges,

96

(1)

Conclusions and Recommendations,

97

(2)

6 Parental Permission, Consent, and Payment

99

(25)

Informed Consent,

99

(13)

Parental Permission,

100

(2)

Assent,

102

(1)

Comprehension of Potential Participants,

103

(2)

Interventions to Improve Comprehension,

105

(2)

Assessing the Adequacy of Informed Consent,

107

(2)

Voluntariness and Undue Influence,

109

(3)

Payments,

112

(6)

Amounts and Characteristics,

112

(2)

Practices and Policies,

114

(4)

Third-Party Consent and Incentives,

118

(2)

Compensation for Research-Related Injuries,

120

(1)

Conclusions and Recommendations,

121

(3)

7 Researchers' Responsibilities

124

(21)

Research Design,

125

(4)

Reporting of Test Results,

129

(3)

Validity of Tests,

130

(1)

Ethical Issues in Reporting,

131

(1)

Ethical Obligations to Third Parties,

132

(2)

Risks Observed in Homes,

134

(9)

Confidentiality,

135

(2)

Role-Specific Researcher Obligations,

137

(6)

Conclusions and Recommendations,

143

(2)

8 Research Oversight

145

(18)

Research Protections,

147

(8)

Guidance Regarding Interpretation of Subpart D,

148

(1)

Guidance Regarding Economically and Educationally Disadvantaged Populations,

149

(1)

Special Considerations Regarding Section 406 Research,

150

(5)

Institutional Review Boards,

155

(6)

IRB Expertise,

157

(3)

IRB Submissions,

160

(1)

Conclusions and Recommendations,

161

(2)

References and Bibliography

163

(26)

Appendix: Biographical Sketches of Committee Members and Staff

189

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