Ethical Issues in Community-based Research With Children And Youth

by Leadbeater, Bonnie; Banister, Elizabeth; Benoit, Cecilia; Jansson, Mikael; Marshall, Anne

• ISBN13: 9780802048820
• ISBN10: 080204882X
• Format: Paperback
• Copyright: 2006-02-28
• Publisher: Univ of Toronto Pr

Summary

Efforts to apply ethical guidelines and regulations to vulnerable populations are often problematic. Consequently, health and social scientists sometimes shy away from the challenges of research, particularly when it means addressing value-laden social problems such as sexuality, drugs, and racism. Ethical Issues in Community-Based Research with Children and Youth is a collection of essays that describe the uniqueness of community-based research, outlining several of the ethical concerns that it engenders. The contributors examine such issues as the scope of informed consent to multiple stakeholders, determining competence to give consent in marginalized populations, and managing dual roles as participant researchers. The collection suggests that a more collaborative, ongoing, and discursive approach is needed by researchers and by ethical review boards to ensure that research on sensitive social problems with high risk populations is supported and also conducted with a clear understanding of the highest ethical standards possible.

Table of Contents

Preface	ix
Acknowledgments	xv
Contributors	xvii
Part I: The Ecology of Informed Consent in Vulnerable Child and Youth Populations and First Nations
1 Community-Based Research with Vulnerable Populations: Challenges for Ethics and Research Guidelines	3	(19)
BONNIE LEADBEATER, TED RIECKEN, CECILIA BENOIT, ELIZABETH BANISTER, CONRAD BRUNK, AND KATHLEEN GLASS
2 Through the Community Looking Glass: Participant Consultation for Adolescent Risk Research	22	(20)
CELIA FISHER AND JESSICA MASTY
3 At the Edge of Consent: Participatory Research with Student Filmmakers	42	(17)
TED RIECKEN AND TERESA STRONG-WILSON
Part II: Longitudinal Samples: Protecting Privacy and Maintaining Consent
4 A Youth Population Health Survey	59	(11)
MIKAEL JANSSON, WAYNE MITIC, TRACEY HULTEN, AND MANDEEP DHAMI
5 The Ethics of Peeking behind the Fence: Issues Related to Studying Children's Aggression and Victimization	70	(23)
AMY YUILE, DEBRA PEPLER, WENDY CRAIG, AND JENNIFER CONNOLLY
Part III: Weighing Benefits and Preventing Harms
6 The Ecstasy and the Agony of Collecting Sociometric Data in Public School Classrooms: Challenges, Community Concerns, and Pragmatic Solutions	93	(18)
MARION K. UNDERWOOD, LARA MAYEUX, SCOTT RISSER, AND BRIDGETTE HARPER
7 Ivory Tower Ethics: Potential Conflict between Community Organizations and Agents of the Tri-council	111	(28)
LORRIE SIPPOLA
Part IV: The Special Case of Research with Groups
8 Youth on the Margins: Qualitative Research with Adolescent Groups	139	(18)
ANNE MARSHALL AND BLYTHE SHEPARD
9 Walking a Fine Line: Negotiating Dual Roles in a Study with Adolescent Girls	157
ELIZABETH BANISTER AND KIM DALY
Part V: Child Protection Issues in Research with Vulnerable Children and Youth
10 Respect and Protect? Conducting Community—Academic Research with Street-Involved Youth	175	(15)
MIKAEL JANSSON AND CECILIA BENOIT
11 Conducting Research in Child Maltreatment: Problems and Prospects	190	(17)
CHRISTINE WALSH AND HARRIET MACMILLAN
12 The Study of Suicidality among Children and Youth: Preliminary Recommendations and Best Practices	207	(14)
TRACY VAILLANCOURT AND VIOLETTA IGNESKI
Part VI: Summary and Recommendations for Ethical Guidelines, Research, and Training
13 Unique Roles, Unique Challenges: Graduate Students' Involvement in Community—Academic Research	221	(11)
JOSH SLATKOFF, RACHEL PHILLIPS, SARAH CORRIN, TAMARA ROZECK-ALLEN, AND TERESA STRONG-WILSON
14 Stepping into Community-Based Research: Preparing Students to Meet New Ethics and Professional Challenges	232	(16)
MARLENE MORETTI, BONNIE LEADBEATER, AND ANNE MARSHALL
15 Including Vulnerable Populations in Community-Based Research: New Directions for Ethics Guidelines and Ethics Research	248
BONNIE LEADBEATER AND KATHLEEN GLASS