The Ethics of Genetic Screening

by Chadwick, Ruth F.; Shickle, Darren; Ten Have, Henk; Wiesing, Urban

• ISBN13: 9780792356141
• ISBN10: 0792356144
• Format: Hardcover
• Copyright: 1999-04-01
• Publisher: Kluwer Academic Pub

Summary

This volume is a multidisciplinary and multinational collection of papers on aspects of genetic screening, with special reference to the situation in Europe. Starting from the situation in practice, the book proceeds to examine what lessons, if any, can be learned from historical precedents and sociological perspectives and concludes by exploring the extent to which theoretical ethical frameworks can assist in addressing the practice and policy issues in screening. This exploration points to ways in which genetics itself affects and challenge those frameworks. This collection will be of interest to practitioners, ethicists and policy-makers alike.

Table of Contents

Contributors	ix
Preface	xi
The Wilson and Jungner Principles of Screening and Genetic Testing	1	(34)
Darren Shickle
Genetic screening, information and counselling in Austria	35	(8)
Gertrud Hauser
The Belgian perspective on genetic screening	43	(12)
Kris Dierickx
Thalassemia prevention in Cyprus. Past, present and future	55	(14)
Panayiotis Ioannou
Some developments in genetic screening in Finland	69	(6)
Veikko Launis
Genetic screening: Ethical debates and regulatory systems in France	75	(6)
Andre Boue
Screening in Germany: Carrier screening, pre-natal care and other screening projects	81	(8)
Traute Schroeder-Kurth
Population screening in Greece for prevention of genetic diseases	89	(6)
Caterina Metaxotou
Ariadni Mavrou
Ethics and genetic screening in the Republic of Ireland	95	(10)
Dolores Dooley
Genetic screening in the Netherlands. The state of the debate	105	(14)
Rogeer Hoedemaekers
Genetic screening and genetic services in Slovakia	119	(10)
Vladimir Ferak
Historical and social background. Introduction	129	(2)
Henk ten Have
From eugenics to genetic screening. Historical problems of human genetic applications	131	(16)
Hans-Peter Kroner
Genetics in Germany. History and hysteria	147	(10)
Urban Wiesing
A sociological perspective on genetic screening	157	(10)
Mairi Levitt
Moral and philosophical issues. Introduction	167	(4)
Ruth Chadwick
Urban Wiesing
Genetic information and care	171	(10)
Ingmar Porn
Genetic testing, genetic screening and privacy	181	(10)
Judit Sandor
Reconciling liberty and the common good? Genetic screening in the Republic of Ireland	191	(16)
Dolores Dooley
Genetic screening and testing. A moral map	207	(24)
Rogeer Hoedemaekers
The genetic testing of children	231	(18)
Angus Clarke
Index	249