Prefaces | p. 11 |
Editor's preface | p. 11 |
Author's preface | p. 14 |
Introduction | p. 15 |
Outline | p. 15 |
Key words | p. 16 |
Aims | p. 16 |
Learning outcomes | p. 17 |
Content | p. 18 |
Overview | p. 18 |
Definitional issues: Chronic illness | p. 18 |
Commonality and specificity in chronically ill people | p. 21 |
Commonalities | p. 21 |
Uniqueness | p. 23 |
Risk factors | p. 24 |
Impact on education | p. 24 |
Utilization pattern and cost of care | p. 25 |
Protective factors. Individual inclusionary factors: Adherence/ compliance and patient satisfaction | p. 26 |
Adherence/ compliance | p. 26 |
Patient satisfaction | p. 27 |
Vignette (1) | p. 27 |
Social inclusion/ exclusion of the chronically ill people | p. 28 |
Exclusionary processes during the chronic illness journey | p. 30 |
Vignettes (2) | p. 31 |
Conclusion | p. 32 |
Researching exclusion/ inclusion of the chronically ill people | p. 32 |
Health- Related Quality of Life (HRQL)- from quantitative designs to mixed models, quantitative and qualitative | p. 32 |
Other factor entering the Quality of Life (QOL) equation | p. 34 |
Role of psychological problems associated with chronic illness | p. 34 |
Research on patient satisfaction | p. 34 |
Burden of disease and health care cost analysis | p. 34 |
Instruments for measuring HRQL | p. 35 |
Disease- specific or generic HRQL instruments? | p. 35 |
Qualitative research paradigm | p. 36 |
Methodological difficulties | p. 37 |
Vignettes (3) | p. 38 |
Research questions for the future | p. 38 |
Evaluation research | p. 39 |
Vignettes (4) | p. 39 |
Theoretical models of chronically ill people care and social exclusion | p. 41 |
Theoretical models | p. 42 |
Critical social theory | p. 42 |
Empowerment | p. 43 |
The social model of chronic illness and disability | p. 43 |
Vignette (5) | p. 44 |
Community participation | p. 44 |
Conflicting relations: Social status relative to health | p. 45 |
Social support | p. 46 |
Developmental health psychology | p. 47 |
Family development theory | p. 47 |
Cultural health analysis paradigms | p. 47 |
The capability approach of Amartya Sen | p. 48 |
Ethics and social justice | p. 49 |
Ethical moments in the chronically ill people journey | p. 50 |
Vignettes (6) | p. 52 |
Theories of intervention and social change | p. 52 |
Professionalization | p. 52 |
Increased participation: The consultation model | p. 53 |
Patient education programs | p. 54 |
Social networks intervention | p. 55 |
Homecare | p. 55 |
Genetic counselling | p. 56 |
A model for change- stigma and social exclusion in healthcare practice | p. 56 |
Disease management programs | p. 56 |
Framework to analyze social services | p. 57 |
Cultural change | p. 58 |
Comparative social policies in Europe and the chronically ill people | p. 59 |
Vignette (7) | p. 59 |
World Health Organization's studies in Europe | p. 60 |
Historical European benchmarks | p. 62 |
Policy prioritization | p. 64 |
Vignette (8) | p. 65 |
Policies related to HIV/ AIDS in Romania | p. 65 |
Funding for HIV/AIDS services | p. 66 |
Services for people with HIV/AIDS | p. 66 |
European Union and the chronically ill people: Visions of the future | p. 69 |
The Joint Report on Social Inclusion | p. 69 |
Tasks | p. 72 |
Bibliography | p. 227 |
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