Families Living with Chronic Illness and Disability: Interventions, Challenges, and Opportunities

by Power, Paul W.

• ISBN13: 9780826155818
• ISBN10: 0826155812
• Edition: 1st
• Format: Hardcover
• Copyright: 2004-07-01
• Publisher: SPRINGER PUB CO INC

Summary

To help families manage an intense medical-related event, Power and Dell Orto propose that a family-oriented life and living perspective should be combined with a family intervention philosophy. Stressing acknowledgment of the adverse effects of the illness and an affirmation approach to family struggle and opportunities, the authors explore issues relevant to treatment, family adaptation, quality of life, and family survival. A unique feature of the text includes the organization of the chapters around thought-provoking personal statements followed by questions/experiential tasks designed to stimulate thought and discussion. This book is must reading for health and allied health professionals including physicians, nurses, rehabilitation counselors, social workers, psychologists, family advocates and a useful textbook for professionals-in-training.

Author Biography

Arthur E. Dell Orto is Professor and Program Director of Rehabilitation Counseling in the Department of Rehabilitation Sciences, Sargent College of Health and Rehabilitation Sciences at Boston University and is the Associate Executive Director of Boston University's Center for Psychiatric Rehabilitation.

Table of Contents

Preface	xi
Acknowledgments	xiv
Part I: Family Dynamics in Illness and Disability	1	(96)
Chapter 1: Perspectives on Illness and Disability	5	(23)
Personal Statement-Janet: Dealing With Spina Bifida	17	(8)
Discussion Questions	25	(1)
SET 1: Curing Illness and Disability	26	(2)
Chapter 2: Children With Disabilities and the Family	28	(20)
Personal Statement-Celia: A Parent's Burden and Opportunity	43	(2)
Discussion Questions	45	(1)
SET 2: Who Should Pay?	45	(3)
Chapter 3: Impact of Illness and Disability on Adults	48	(22)
Personal Statement-Alina: Beyond MS	63	(3)
Discussion Questions	66	(1)
SET 3: How Long? How Old?	66	(4)
Chapter 4: Family Response to Illness and Disability	70	(27)
Personal Statement-Ted and His Mother: How Life Suddenly Changes	87	(5)
Discussion Questions	92	(1)
SET 4: My Family: Where Do We Stand?	92	(5)
Part II: Family Interventions	97	(92)
Chapter 5: An Approach to Family Assessment	101	(21)
Personal Statement-One More Burden: A Mother's Perspective	117	(1)
Discussion Questions	118	(1)
SET 5: Prime of Life	119	(3)
Chapter 6: An Intervention Approach	122	(30)
Personal Statement-Louise: The Day My World Turned	146	(2)
Discussion Questions	148	(1)
SET 6: Disability and the Family: How Would You Like To Be Disabled or "Different Abled" Like Me?	149	(3)
Chapter 7: Group Counseling: A Resource for Families Living with Illness or Disability	152	(18)
Personal Statement-James: My Group Journey, With the Help of My Friends	163	(2)
Discussion Questions	165	(1)
SET 7: Common Pain, Mutual Support	166	(4)
Chapter 8: Interacting With Health Professionals: Family Needs and Perspectives	170	(19)
Personal Statement-Sabine: Dealing With Multiple Disabilities and Deaths	182	(3)
Discussion Questions	185	(1)
SET 8: Rain or Shine	185	(4)
Part III: Selected Family Issues	189	(92)
Chapter 9: Alcohol: An Illness, Disability, and Family Perspective	191	(18)
Personal Statement-John: Attitude is Everything	202	(2)
Discussion Questions	204	(1)
SET 9: One for the Road	204	(5)
Chapter 10: Challenges and Issues in Caregiving and Respite Care	209	(28)
Personal Statement-July: My Mother and Amyolropliic Lateral Sclerosis (ALS)	229	(4)
Discussion Questions	233	(1)
SET: 10: How Can I Help?	233	(4)
Chapter 11: Loss, Grief, and Grieving: Fancily Issues	237	(21)
Personal Statement-Geraldine: A Daughter's Journey	252	(2)
Discussion Questions:	254	(1)
SET 11: Is the Person With an Illness or Disability More Important Than the Family?	255	(3)
Chapter 12: Reflections and Considerations	258	(23)
Personal Statement-Chris and His Mother: Hope and Home Runs, Not Strikeouts	271	(5)
Discussion Questions	276	(1)
SET 12: Who Needs This Kind of Help?	277	(4)
Author Index	281	(8)
Subject Index	289