Genetics and Ethics in Health Care: New Questions in the Age of Genomics Health

by Monsen, Rita Black

• ISBN13: 9781558102637
• ISBN10: 1558102639
• Format: Paperback
• Copyright: 2008-01-01
• Publisher: American Nurses Association

Summary

This monograph explores current ethical challenges associated with advances in genetics technology and genomic health care from a wide cross-section of cultural, racial, religious, and technical perspectives. While these advances are at the cutting edge of understanding the causal factors of health and illness, they also demand that we acknowledge and respect the deeply complex and diverse moral and ethical concerns that can impact the decisions of individual patients and the lives of their families and communities.

Table of Contents

Prologue Genetics and Genomic Health Care: The Mission and Aims of the National Human Genome Research Institute and Its Potential Impact on Clinical Practices	p. vii
Introduction Genetics and Ethics in Nursing: New Questions in the Age of Genomic Health	p. xiii
Coda Genetics and Genomics in Historical Context A Brief History of the Early Days of Clinical Genetics	p. xix
How Far We Have Come	p. xx
Genetics, Genomics, and Ethics: Basic Considerations	p. 1
The ANA Code of Ethics	p. 5
Integrating Ethical Guidelines with Scope and Standards of Genetics and Genomics Nursing Practice	p. 13
Shaping Genetic Policy: The United States Initiatives	p. 27
Principles of Healthcare Ethics for the Twenty-first Century	p. 53
Redefining the Conventions of Informed Consent: Challenges in the Genomic Era	p. 65
Genetic Inheritance, Identity, and the Proper Role of Nursing	p. 79
Danger and Genomic Technologies	p. 97
Religious and Cultural Perspectives of Communities and Societies	p. 103
Hinduism and Sikhism: Genetic Counseling Aspects	p. 109
"Every Generation...": A Jewish Approach to Questions of Genetic Research, Testing and Screening, and Gene Therapy	p. 129
The Catholic Church Views on Genetic Testing: Indications for Genetic Counselors	p. 141
Attitudes of Muslims Regarding the New Genetics: Testing, Treatment, and Technology	p. 149
Genetics and Ethics from a Christian Perspective	p. 165
Native American Communities: Perspectives on Healthcare Genetics	p. 179
Hispanic/Latino Perspectives on Genetics and Ethics	p. 201
African American Perspectives on Genetics and Ethics	p. 213
Applications of Genetics and Genomics in Health Care	p. 235
Concerns of Patients and Families Surrounding Genetic Testing	p. 241
Parental Request for Advanced Directives: Decision-Making in Evolving Environments	p. 251
Ethical Analysis of Genetic Testing in Children	p. 265
Genetics and Ethics in Nursing: Cancer Prevention for Clients with Inherited Cancer Risk	p. 285
Ethical Obligations to Patients Who Engage in Lifelong Self-surveillance for Genetic Risk of Cancer	p. 301
Cystic Fibrosis: Screening, Testing, Ethics	p. 315
Genetic Testing and Counseling in Huntington Disease	p. 331
Case Studies in Genetics and Ethics	p. 345
Prenatal Case Study	p. 349
Sickle Cell Disease Case Study	p. 359
Case Study in Hereditary Breast and Ovarian Cancer	p. 369
Hereditary Nonpolyposis Colon Cancer: A Case Study of Ethical Implications	p. 385
The P Family, At Risk for Alzheimer's Disease	p. 397
Epilogue Genetics and Ethics in Health Care and Nursing	p. 407
Glossary of Terms	p. 417
Acronyms	p. 423
Contributor Biographies	p. 429
Index	p. 443
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