Handbook of Communication in Oncology and Palliative Care

by Kissane, David; Bultz, Barry; Butow, Phyllis; Finlay, Ilora

• ISBN13: 9780199238378
• ISBN10: 0199238375
• Edition: 1st
• Format: Paperback
• Copyright: 2011-05-19
• Publisher: Oxford University Press

Summary

This comprehensive text provides clinicians with practical and evidence-based guidelines to achieve effective, patient-centered communication in the areas of cancer and palliative care. Written by an outstanding panel of international experts, it integrates empirical findings with clinical wisdom, draws on historical approaches and presents a state-of-the-art curriculum for applied communication skills training for the specialist oncologist, surgeon, nurse, and other multi-disciplinary team members involved in cancer care today. In this book, communication is broken down into key modules that cover the life-cycle of cancer care. They include coverage of diagnosis and treatment including clinical trials, empathic support in response to distress, transition to survivorship or palliative therapies, discussion of prognosis, conduct of family meetings, and care of the dying. Complementary training of patients in their communication with the doctor completes the interactive dyad. The art of teaching, impact of gender, and power in the consultation and the ethical context are carefully considered. Special communication challenges include discussion of genetic risk, rehabilitative and salvage surgery, promotion of treatment adherence, unanticipated adverse outcomes, intercultural issues, fertility, and sexuality. The value of decision aides, question prompt lists, audio-recording of consultations, and use of the internet is illustrated. By looking across the full spectrum of disciplins involved in the multidisciplinary team, discipline-specific issues are considered by experts in each field. In this manner, the needs of patients and their relatives are evaluated, including paediatric and geriatric populations. To achieve all of this, theoretical models are examined from the medical school to the highly specialized practice, facilitation training and actor training are made explicit, and international approaches to communication skills training are compared and contrasted. Finally, research tools that assist in coding cancer consultations, evaluating training courses, and employing mixed methods in studies aid the reader in providing clear and sensitive communication when handling challenging situations while treating cancer sufferers and palliative care patients.

Author Biography

David Kissane began teaching physician-patient communication skills to Monash University medical students in Australia in the early 1980s and then incorporated experiential training into the subject Psycho-Oncology within the Postgraduate Diplomas of Palliative Medicine and Psycho-Oncology that he initiated in 1996 at the University of Melbourne during his tenure as foundation Professor and Director of Palliative Medicine. He is currently the incumbent in the Jimmie C. Holland Chair of Psycho-Oncology and Chairman of the Department of Psychiatry and Behavioral Sciences at Memorial Sloan-Kettering Cancer Center in New York. He is thus an Attending Psychiatrist at The Memorial Hospital for Cancer and Allied Diseases, and Professor of Psychiatry at the Weill Medical College of Cornell University. Across his 35-year medical career, he has trained in family medicine, psychiatry of the medically ill and palliative medicine. Dr. Kissane is the author of over 175 publications.


Barry Bultz became Director in 1981 of the Department of Psychosocial Resources at the Tom Baker Cancer Center in Calgary, Alberta, where he has subsequently developed and leads one of the first interdisciplinary psychosocial oncology programs in Canada - Psychosocial Oncology, Supportive, Pain and Palliative Care. As a founding member and Past President of the Canadian Association of Psychosocial Oncology (CAPO), he has been an active member of the Canadian Consortium on Communication Skills Training. He is internationally regarded for the concept of emotional distress as the 6th vital sign and chaired the 1st Canadian conference in Psychosocial Oncology in 1985 and the 6th World Congress of Psycho-Oncology in 2003. He is also holds faculty appointments in Oncology, Psychiatry, Surgery and Psychology. He is the author of over 100 scholarly publications and serves on several editorial boards for cancer-related journals.


Phyllis Butow is currently Professor and National Health and Medical Research Council Principal Research Fellow in the School of Psychology, University of Sydney, where she co-directs the Centre for Medical Psychology and Evidence-based Medicine (CeMPED). She has worked in Psycho-Oncology for over 16 years, currently chairs the newly established Australian Psycho-Oncology Co-operative Research Group and has developed an international reputation in Health Communication. She developed a curriculum in communication skills for the University of Sydney medical program, chairs the National Breast and Ovarian Cancer Centre (NBOCC) Communication Skills Working Party, was a Principal Investigator on one national and one international randomized controlled trial of communication skills training, and has facilitated hundreds of communication skills courses for the NBOCC and the Pam McLean Cancer Communications Centre over the past 10 years. Prof Butow has over 200 publications in peer reviewed journals.



Ilora Finlay is a Consultant in Palliative Medicine and chronic pain at the Velindre NHS Trust, Cardiff. She is also an honorary Professor and was Vice Dean of the School of Medicine 2000-2005. Professor Finlay currently chairs the Palliative Care Strategy Implementation Board for the Welsh Assembly Government. She has published over 126 papers and seven books and holds senior editorial positions for medical journals such as Lancet Oncology and the Journal of Evaluation in Clinical Practice. In 1996, Baroness Finlay was named Welsh Woman of the Year in recognition for her work in the field of palliative care. In 2001, she was appointed a people's peer in the first open contest for membership of the House of Lords. In establishing the Diploma/MSc in Palliative Medicine (Cardiff University), she has trained hundreds of general practitioners in communication skills through experiential residential programmes, developing teaching tools and assessment methods.

Table of Contents

Section A: Introduction to communication studies in cancer and palliative medicine
1. The history of communications skills knowledge and training, Mack Lipkin
2. The art of teaching communication skills, Stewart M Dunn
3. Theoretical models of communication skill training, Richard Brown and Carma Bylund
4. Shared treatment decision-making and the use of decision aids, Cathy Charles and Amiram Gafni
5. The ethics of communication in cancer and palliative care, Laura A Siminoff
6. Gender, power and nonverbal communication, Marianne Schmid Mast, Christina Klockner and Judith A. Hall
7. Medical student training in communication skills, Joshua Hauser & Gregory Makoul
8. Overview of interventions to enhance cancer patients' participation in medical consultations, Donald J. Cegala & Dana Eisenberg
Section B: A core curriculum for communication skills training for oncology and palliative care
9. Breaking bad news, Walter F. Baile and Patricia A. Parker
10. Discussing prognosis and communicating risk, Phyllis N Butow, Martin NH Tattersall & Martin Stockler
11. Communication training to achieve shared treatment decisions, David W Kissane
12. Responding to difficult emotions, Jennifer Philip and David W Kissane
13. Denial and communication, Linda Sheahan and Simon Wein
14. Communicating with relatives/companions about cancer care, Terrance L. Albrecht, Susan S. Eggly, John C. Ruckdeschel
15. Conducting a family meeting, Nessa Coyle & David W Kissane
16. Communication about coping as a survivor, Linda E. Carlson & Barry D. Bultz
17. Dealing with cancer recurrence, Lidia Schapira
18. Communication about transitioning patients to palliative care, Josephine M. Clayton & David W. Kissane
19. End-of-life communication training, Tomer Levin & Joseph S. Weiner
Section C: A specialty curriculum for oncology
20. Enrolment in clinical trials, Richard Brown & Terrance Albrecht
21. Working as a multidisciplinary team, Jane Turner
22. Communicating genetic risk, Elizabeth Lobb & Clara Gaff
23. Rehabilitative and salvage surgery, Andrea Pusic, Rachel Bell & Diana Harcourt
24. Discussing unproven therapies, Penelope Schofield, Justine Diggens, Sue Hegarty, Catherine Charleson, Rita Marigliani, Caroline Nehill & Michael Jefford
25. The effect of internet use on the doctor-cancer patient relationship, Carma L. Bylund & Jennifer A. Gueguen
26. Promoting treatment adherence, Kelly Haskard & M. Robin DiMatteo
27. Communication strategies and skills for optimum pain control, Melanie Lovell & Frances Boyle
28. Discussing adverse outcomes with patients, Thomas Gallagher and Afaf Girgis
29. Clinical perspectives on shared decision-making, Martin Tattersall
30. Audio-recording important consultations for patients and their familities - putting evidence into practice, Thomas F. Hack & Lesley F. Degner
31. Working with interpreters and achieving culturally competent communication, Steven Klimidis & Harry Minas
32. Challenges in communicating with ethnically diverse populations, Bejoy C. Thomas, Joshua J. Lounsberry & Linda E. Carlson
33. Intercultural communication in palliative care, James Hallenbeck & Vyjeyanthi S. Periyakoil
34. Communicating about infertility risks, Zeev Rosberger, Jeanne Carter, Marie Achille, Barry Bultz & Peter Chan
35. Communicating about sexuality in cancer care, John W. Robinson & Joshua J. Lounsberry
Section D: Communication issues across the disciplines
36. The challenges and rewards of communication skills training for oncology and palliative care nurses in the United Kingdom, Sandra Winterburn & Susie Wilkinson
37. Ambulatory nurses responding to depression, Anthony De La Cruz, Richard Brown & Steve Passik
38. Social work support in crisis, Carrie Lethborg & Grace Christ
39. Communication in radiology, Kim Feigin & Laura Liberman
40. Communication in surgical oncology, Alexandra Heerdt, Bernard Park & Patrick Boland
41. Communication in non-surgical oncology, Lai Cheng Yew & Jane Maher
42. Palliative medicine: communication to promote life near the end-of-life, Ilora Finlay
43. Communication issues in pastoral care and chaplaincy, Peter Speck & Christopher Herbert
44. Communication in oncology pharmacy: the challenge of the treatment adherence, Venetia Bourrier & Brent Schacter
45. Psychosocial program development, Barry D. Bultz, Paul B. Jacobsen & Matthew Loscalzo
46. Communication challenges with the elderly, Ron Adelman & Michelle Green
47. Issues for cognitively impaired elderly patients, Andrew Roth & Christian Nelson
48. Communicating with children when a parent is dying, Cynthia W. Moore, Michele Pengelly & Paula Rauch
49. Creative arts in oncology, Marilyn Hundleby, Kate Collie & Linda E. Carlson
Section E: Education and training
50. Learner-centered communication, Suzanne Kurtz & Lara Cooke
51. Facilitating skills practice in communication role play sessions: essential elements and training facilitators, Carma L. Bylund, Richard Brown, Barbara Lubrano di Ciccone & Lyuba Konopasek
52. The role of the actor in medical education, Paul Heinrich
53. Training patients to reach their communication goals: a concordance perspective, Carma Bylund, thomas D'Agostino & Betty Chewning
Section F: International initiatives in communication training
54. The OncoTalk model, Robert Arnold, Anthony Back, Kelly Fryer-Edwards & Walter Baile
55. The Swiss model, F. Stiefel, J. Bernhard, G. Bianchi, L. Dietrich, Ch. Hurny, A. Kiss & B Wossmer
56. The Australian model, Caroline Nehill & Alison Evans
57. The United Kingdom general practitioner and pallaitve care model, Simon Noble, Nicola Pease & Ilora Finlay
58. Communication skills training and research: the Brussels experience, Isabelle MErckaert, Yves Libert & Darius Razavi
Section G: Research in cancer communication
59. Evaluating communication skills training courses, Lyuba Konopasek, Marcy Rosenbaum, John Encandela & Kathy Cole-Kelly
60. Qualitative approaches to clinician-patient communication, Felicia Roberts
61. Doctor-patient communication interaction analysis systems, Phyllis Butow & Sarah Ford
62. The Roter Interaction Analysis System (RIAS): applicability within the context of cancer and palliative care, Debra Roter