Health Care and Information Ethics Protecting Fundamental Human Rights

by Chapman, Audrey R.

• ISBN13: 9781556129223
• ISBN10: 155612922X
• Format: Paperback
• Copyright: 1997-04-01
• Publisher: Sheed & Ward

Summary

This volume brings together experts in the fields of information ethics and health care to explore the impactions of these challenges as they impact what kind of care will be available, who will receive health care, and how the care is monitored.

Table of Contents

Part One Background	3	(54)
Introduction Developing Health Information Systems Consistent with Human Rights Criteria	3	(28)
Audrey R. Chapman
Chapter One The Human Rights Framework	31	(26)
Audrey R. Chapman
Part Two Moving Toward Universality: Monitoring Underserved and Excluded Populations	57	(184)
Chapter Two Issues and Methodologies for Monitoring Universality	57	(9)
Doug Samuelson
Floyd J. Fowler, Jr.
Chapter Three Monitoring Welfare and Women's Health	66	(22)
Trude Bennett
Chapter Four Improving Health Data Among American Indians and Alaska Natives: An Approach from the Pacific Northwest	88	(26)
Jonathan Sugarman
Martha Holliday
Andrew Ross
Doni Wilder
Chapter Five Drawing Samples from Hidden, Underserved and Vulnerable Populations: Methods, Applications and Ethical Issues	114	(23)
James Fisher
Jichuan Wang
Joseph Wagner
Chapter Six Using State-Level Hospital Discharge Data Bases: A Source of Race/Ethnicity Data to Monitor Minority and Special Populations	137	(23)
Barbara S. Kurtzig
Chapter Seven Designing an Information System to Monitor Population Access to Care, Health, and Health Care Use	160	(31)
Noralou Roos
Charlyn Black
Norm Frohlich
Carolyn DeCoster
Marsha Cohen
Doug Tataryn
Cameron A. Mustard
Leslie L. Roos
Fred Toll
K. C. Carriere
Charles Burchill
Leonard MacWilliam
Bogdan Bogdanovic
Kathleen Decker
Chapter Eight Supporting the Delivery of Preventive Services Through Information Systems: A Manitoba Example	191	(25)
Leslie L. Roos
David S. Fedson
Janice D. Roberts
James F. Blanchard
Chapter Nine Issues Regarding Appropriate Uses of Outcomes Data in Monitoring University and Nondiscrimination in Access to Health Care	216	(25)
Doug Samuelson
R. Clifton Bailey
Part Three Privacy, Nondiscrimination and Consent	241	(226)
Chapter Ten Introduction and Overview: Privacy, Nondiscrimination and Consent	241	(11)
Paula J. Bruening
Chapter Eleven Linking Health Records: Human Rights Concerns	252	(27)
Fritz Scheuren
Chapter Twelve Guidelines and Mechanisms for Protecting Privacy in Medical Data Used for Research	279	(30)
Robert Ellis Smith
Chapter Thirteen Data for Health: Privacy and Access Standards for a Health Care Information Infrastructure	309	(42)
George T. Duncan
Chapter Fourteen Medical Data Protection and Privacy in the United States: Theory and Reality	351	(42)
Vincent M. Brannigan
Bernd Neier
Chapter Fifteen Privacy of Health Care Data: What Does the Public Know? How Much Do They Care?	393	(26)
Eleanor Singer
Robert Y. Shapiro
Lawrence R. Jacobs
Chapter Sixteen Guidelines and Mechanisms for Regulating Access to Data: Private Health Insurance Issues	419	(30)
Mary Ann Baily
Chapter Seventeen Conclusions	449	(18)
Thomas Jabine
Epilogue	467	(5)
Audrey R. Chapman
Appendices	472	(5)
Appendix One Staff and Advisory Committee of the AAAS Project on Developing a National Health Information System Consistent with Human Rights Criteria	472	(2)
Appendix Two	474	(3)
Contributing Authors	474	(3)
Index	477