Healthcare Ethics and Human Values An Introductory Text with Readings and Case Studies

by Fulford, K. W. M.; Dickenson, Donna L.; Murray, Thomas H.

• ISBN13: 9780631202240
• ISBN10: 0631202242
• Edition: 1st
• Format: Paperback
• Copyright: 2002-02-15
• Publisher: Wiley-Blackwell

Summary

This volume illustrates the central importance of diversity of human values throughout healthcare. The readings are organized around the main stages of the clinical encounter from the patient's perspective. They run from staying well and 'first contact' through to either recovery or to long-term illness, death and dying.

Author Biography

K. W. M. (Bill) Fulford is Professor of Philosophy and Mental Health at the University of Warwick, and Honorary Consultant Psychiatrist at the University of Oxford. He is the founder and editor of the first international journal for philosophy and mental health, PPP: Philosophy, Psychiatry and Psychology. He has published widely on philosophical and ethical aspects of mental health, in particular Moral Theory and Medical Practice (1989).

Donna L Dickenson is John Ferguson Professor of Global Ethics at the University of Birmingham, UK, and Director of the Centre for the Study of Global Ethics, the first such institute in Britain. Her recent books include Property, Women and Politics (1997), In Two Minds: Case Studies in Psychiatric Ethics (with Bill Fulford, 2000), and The Cambridge Medical Ethics Workbook Ethics (with Michael Parker, 2001).

Thomas H. Murray is President of The Hastings Center in Garrison, New York. He is a founding editor of the journal Medical Humanities Review, author of The Worth of a Child (1996), and editor, with Maxwell J. Mehlman, of The Encyclopedia of Ethical, Legal and Policy Issues in Biotechnology (2000).

Table of Contents

Acknowledgments	xii
Introduction Many Voices: Human Values in Healthcare Ethics	1	(20)
I Healthcare Ethics: Multidisciplinary Approaches	21	(62)
Introduction	23	(2)
Toward a Feminist Ethics of Health Care	25	(4)
Susan Sherwin
A Deliberative Approach to Bioethics	29	(7)
Michael Parker
Bodies and Persons	36	(5)
S. Kay Toombs
Alternatives to Principlism: Phenomenology, Deconstruction, Hermeneutics	41	(8)
Guy A. M. Widdershoven
Questions of Personal Autonomy	49	(7)
Morwenna Griffiths
A Different Voice in Psychiatric Ethics	56	(7)
Gwen Adshead
Can There Be an Ethics of Care?	63	(7)
Peter Allmark
The Literary Nature of Ethical Inquiry	70	(6)
Tod Chambers
Two Theories of Modernity	76	(7)
Charles Taylor
II Staying Well: Screening and Preventive Medicine	83	(32)
Introduction	85	(3)
What Counts as Success in Genetic Counselling?	88	(5)
Ruth F. Chadwick
The Genetic Underclass	93	(4)
Jay Rayner
Ethical Issues in Pre-Cancer Testing: The Parallel with Huntington's Disease	97	(4)
Donna L. Dickenson
Eugenics and Public Health in American History	101	(8)
Martin S. Pernick
Parental Choice? Letter from a Doctor as a Dad	109	(2)
Julian Savulescu
Do We Really Want to Know the Odds?	111	(4)
David Runciman
III Falling III	115	(44)
Introduction	117	(3)
Premonition	120	(1)
Jenny Lewis
Emotional Disturbance: Philip and Lucy	121	(4)
Priscilla Alderson
Chris Goodey
Healing and Incurable Illness	125	(8)
S. Kay Toombs
``My Story is Broken; Can You Help Me Fix It?'' Medical Ethics and the Joint Construction of Narrative	133	(8)
Howard Brody
Spiritual Experience and Psychopathology	141	(9)
Mike Jackson
K. W. M. Fulford
The Occurrence of High Levels of Acute Behavioral Distress in Children and Adolescents Undergoing Routine Venipunctures	150	(5)
G. Bennett Humphrey
Chris M. J. Boon
G. F. E. Chiquit Van Linden Van Den Heuvell
Harry B. M. Van De Wiel
Benjamin's Story	155	(4)
Eric D. Kodish
IV First Contact	159	(56)
Introduction	161	(5)
Doctor	166	(1)
Jenny Lewis
Confidentiality in Child Psychiatry	167	(4)
Emilio Mordini
Diagnostic Styles in Clinical Relationships	171	(6)
Guy A. M. Widdershoven
Wies Weijts
``Not Clinically Indicated'': Patients' Interests or Resource Allocation?	177	(5)
Tony Hope
David Sprigings
Roger Crisp
Body Language	182	(2)
Priscilla Alderson
Baby Poop	184	(3)
Perri Klass
Ethnicity and Attitudes Toward Patient Autonomy	187	(10)
Leslie J. Blackhall
Sheila T. Murphy
Gelya Frank
Vicki Michel
Stanley Azen
Power Plays	197	(4)
Perri Klass
The ``Kinder Egg'': Some Intrapsychic, Interpersonal, and Ethical Implications of Infertility Treatment and Gamete Donation	201	(5)
Joan Raphael-Leff
Gynaecological Gatekeepers	206	(4)
Naomi Pfeffer
Fertility Zone	210	(5)
Patricia Eakins
V Deciding What the Problem Is	215	(28)
Introduction	217	(3)
Becoming an Amazon	220	(1)
Jenny Lewis
The Hundred Secret Senses	221	(3)
Amy Tan
The Abortion	224	(1)
Anne Sexton
Consent as Empowerment: The Roles of Postmodern and Narrative Ethics	225	(4)
John McMillan
Grant Gillett
Life-Size	229	(3)
Jenefer Shute
But Didn't You Have the Tests?	232	(4)
Joanna Richards
Capable People: Empowering the Patient in the Assessment of Capacity	236	(5)
Dermot Feenan
Kelly	241	(2)
Rafael Campo
VI Negotiating a Treatment Plan	243	(80)
Introduction	245	(6)
Understanding the Enemy	251	(1)
Jenny Lewis
Patient-controlled Analgesia: Advantages, Disadvantages, and Ethical Issues in the Management of Pain in Sickle Cell Disease	252	(6)
Veronica Thomas
Grief is Carved in Stone	258	(3)
Sandra Gilbert
Decisions, Decisions: How Do Parents View the Decision They Made About a Randomized Clinical Trial?	261	(9)
Claire Snowdon
Jo Garcia
Diana Elbourne
The Ethics of Social Research With Children: An Overview	270	(5)
Virginia Morrow
Martin Richards
Consent, Refusal, and Emotional Disturbance: Philip and Lucy	275	(3)
Priscilla Alderson
Chris Goodey
``Partnership'' is Not Enough: Professional---Client Relations Revisited	278	(4)
Paul Cain
Experiencing Care	282	(6)
Steve Ersser
Organ Salvage Policies: A Need for Better Data and More Insightful Ethics	288	(4)
Thomas H. Murray
Stuart J. Youngner
Rationing, Justice, and Ageism	292	(6)
John Keown
Cardiopulmonary Resuscitation	298	(6)
Paul Cain
An Analysis of CPR Decision-making by Elderly Patients	304	(7)
Gwen M. Sayers
Irene Schofield
Michael Aziz
Can the Elderly Tolerate Endoscopy Without Sedation?	311	(4)
Sam A. Solomon
Vijay K. Kajla
Arup K. Banerjee
Fighting Spirit: The Stories of Women in the Bristol Breast Cancer Survey	315	(5)
Myles Harris
Vicki Harris
Heather Goodare
What We Want from Crisis Services	320	(3)
Peter Campbell
VII Continuing Contact: Getting Well	323	(34)
Introduction	325	(3)
Wounded in Action	328	(1)
Jenny Lewis
Flee On Your Donkey	329	(4)
Anne Sexton
Quickening	333	(5)
Oliver Sacks
Emotional and Behavioral Disturbance: Philip and Lucy	338	(4)
Priscilla Alderson
Chris Goodey
Sonnet LXXIII	342	(1)
William Shakespeare
When You Are Old	343	(1)
W. B. Yeats
Setting Limits: Medical Goals in an Aging Society	344	(4)
Daniel Callahan
Going Blind	348	(1)
Rainer Maria Rilke
The Decision to Have Reconstructive Surgery	349	(2)
Margaret Allott
Survivor or Expert? Some Thoughts on Being Both	351	(4)
Gill De La Cour
A Story About the Body	355	(2)
Robert Hass
VIII Continuing Contact: Chronic Illness, Disability, Deformity, Remission, and Relapse	357	(52)
Introduction	359	(7)
The Way to Freedom	366	(1)
Jenny Lewis
Privacy and Display: Issues of Good Practice for Dermatologists	367	(4)
Terence J. Ryan
Vineet Kaur
The Politics of AIDS	371	(3)
Virginia Van Der Vliet
The Avon Mental Health Measure	374	(4)
My Husband the Stranger: Part 1	378	(3)
Elizabeth Forsythe
Caretakers' Views on Responsibilities for the Care of the Demented Elderly	381	(5)
Mary Howell
Who Defines Futility?	386	(4)
Stuart J. Youngner
Nobody Nowhere	390	(2)
Donna Williams
The Body in Multiple Sclerosis: A Patient's Perspective	392	(7)
S. Kay Toombs
A Living Death	399	(2)
Peter Lennon
Across the Disability Divide: Whose Tragedy?	401	(6)
Sally French
John Swain
AIDS	407	(2)
May Sarton
IX Continuing Contact: Dying	409	(74)
Introduction	411	(5)
Epilogue	416	(1)
Jenny Lewis
Selection from The Death of Ivan Ilyich	417	(3)
Leo Tolstoy
Subjective Values, Objective Good, and Incompetent Patients	420	(10)
Thomas Buller
Falls	430	(1)
Edward Lowbury
Decisions Near the End of Life	431	(9)
Council on Ethical and Judicial Affairs, American Medical Association
On the Suicide Threshold	440	(8)
Kate Hill
My Husband the Stranger: Part 2	448	(3)
Elizabeth Forsythe
A Death of One's Own	451	(7)
Martin Hollis
Selection from The Death of Ivan Ilyich	458	(3)
Leo Tolstoy
The Coevolution of Bioethics and the Medical Humanities with Palliative Medicine, 1967--97	461	(7)
David Barnard
Why I Don't Have a Living Will	468	(6)
Joanne Lynn
Mama Day	474	(2)
Gloria Naylor
The Devil	476	(4)
Guy De Maupassant
Talking to the Family	480	(1)
John Stone
To the Foot from Its Child	481	(2)
Pablo Neruda
Index	483