Issues in Palliative Care Research

by Portenoy, Russell K.; Bruera, Eduardo

• ISBN13: 9780195130652
• ISBN10: 0195130650
• Format: Hardcover
• Copyright: 2003-01-30
• Publisher: Oxford University Press

Summary

Palliative care is rapidly evolving as a multidimensional therapeutic model devoted to improving the quality of life of all patientswith life-threatening illness. Symptom control, management of psychosocial and spiritual concerns, decision making consistent with values and goals, and care ofthe imminently dying that is appropriate and sensitive to the unique needs of the individual and the family--these are among the critical issues addressed through pallaitive care. As this discipline has evolved, the need for research in all these areas has become widely acknowledged. Issues inPalliative Care Research describes both the progress that already has been made in the investigation of these issues and the methodologic elements that must be addressed in future studies. The perspective is broad and the overriding goal is to inform about the state of the art in these rapidlyevolving areas of research.

Table of Contents

Contributors	xi
Part I Pain Research
Methodological Issues in the Design of Analgesic Clinical Trials	3	(22)
Mitchell Max
Part II Research in Anorexia and Gastrointestinal Disorders
Methodological Issues Regarding Cancer Anorexia/Cachexia Trials	25	(16)
Charles L. Loprinzi
Jeff A. Sloan
Kendrith M. Rowland, Jr.
Assessment of Novel Therapies for Constipation: Focus on Opioid Analgesics	41	(12)
Joseph F. Foss
Measurement of Constipation	53	(14)
Nigel Sykes
Clinical Trials of Antiemetics in the Palliative Care Setting: Research Issues	67	(16)
Alice Inman
Steven D. Passik
Part III Research in Respiratory Symptoms
Multidimensional Assessment of Dyspnea	83	(14)
Deborah Dudgeon
Research into Nonpharmacological Intervention for Respiratory Problems in Palliative Care	97	(14)
Jessica Corner
Part IV Research in Fatigue/Asthenia
Studying Nonpharmacological Interventions for Fatigue	111	(16)
Simon C. Wessely
Evaluating the Relationship of Fatigue to Depression and Anxiety in Cancer Patients	127	(24)
Paul B. Jacobsen
Michael A. Weitzner
Fatigue in Medical Illness: Research Issues	151	(22)
Russell K. Portenoy
Methodological Considerations in the Treatment of Fatigue	173	(16)
Lynne I. Wagner
David Cella
Amy H. Peterman
Part V Neuropsychiatric and Psychosocial Research
Depression in the Terminally III: Prevalence and Measurement Issues	189	(14)
Harvey Max Chochinov
Issues in Measuring Family Care Needs and Satisfaction	203	(16)
Linda J. Kristjanson
Part VI Quality-of-Life Research
Usefulness of Utility in Making Decisions about Palliative Care	219	(12)
Thomas J. Smith
Assessing Quality of Life in Palliative Care	231	(12)
S. Robin Cohen
Assessing Decision-Making Capacity in the Setting of Palliative Care Research	243	(18)
David J. Casarett
Part VII Research Issues in End-of-Life Care and Ethical Decision Making
Research in Advance Care Planning	261	(14)
Linda L. Emanuel
Research to Improve End-of-Life Care in the United States: Toward a More Behavioral and Ecological Paradigm	275	(18)
Mildred Z. Solomon
Studying Desire for Death: Methodological Issues in End-of-Life Research	293	(16)
Barry Rosenfeld
Part VIII Research in Practice Change
Changing Palliative Care Practice in Academic Medical Centers	309	(10)
David E. Weissman
Changing Pain Management Practices in Hospitals and Cancer Centers	319	(22)
Marilyn Bookbinder
Nessa Coyle
Part IX Research Issues in Special Populations
Current Status of Symptom Measurement in Children	341	(14)
John J. Collins
Research in Pediatric Palliative Care	355	(16)
Betty Davies
Rose Steele
Kelli I. Stajduhar
Anne Bruce
Palliative Care Research in Human Immunodeficiency Virus/Acquired Immunodeficiency Syndrome: Clinical Trials of Symptomatic Therapies	371	(32)
Kristina Jones
William Breitbart
Index	403