Living With Dying

by Berzoff, Joan

• ISBN13: 9780231127943
• ISBN10: 0231127944
• Format: Hardcover
• Copyright: 2004-09-01
• Publisher: Columbia Univ Pr

Summary

The first resource on end-of-life care for healthcare practitioners who work with the terminally ill and their families, Living with Dyingbegins with the narratives of five healthcare professionals, who, when faced with overwhelming personal losses altered their clinical practices and philosophies. The book provides ways to ensure a respectful death for individuals, families, groups, and communities and is organized around theoretical issues in loss, grief, and bereavement and around clinical practice with individuals, families, and groups.Living with Dyingaddresses practice with people who have specific illnesses such as AIDS, bone marrow disease, and cancer and pays special attention to patients who have been stigmatized by culture, ability, sexual orientation, age, race, or homelessness. The book includes content on trauma and developmental issues for children, adults, and the aging who are dying, and it addresses legal, ethical, spiritual, cultural, and social class issues as core factors in the assessment of and work with the dying. It explores interdisciplinary teamwork, supervision, and the organizational and financing contexts in which dying occurs.Current research in end-of-life care, ways to provide leadership in the field, and a call for compassion, insight, and respect for the dying makes this an indispensable resource for social workers, healthcare educators, administrators, consultants, advocates, and practitioners who work with the dying and their families.

Author Biography

Joan Berzoff is professor and codirector of the doctoral program at Smith College School for Social Work and director of the End of Life Certificate Program at Smith Phyllis R. Silverman is scholar-in-residence at the Brandeis Women's Studies Research Center and professor emerita at the MGH Institute of Health Professions

Table of Contents

List of Contributors	xi
Acknowledgments	xv
Foreword by Thomas R. Egnew	xix
Introduction	1	(18)
PART I NARRATIVES IN END-OF-LIFE CARE	19	(76)
1. Fragments of Love: Explorations in the Ethnography of Suffering and Professional Caregiving
David Browning	21	(22)
2. The Symptom Is Stillness: Living with and Dying from ALS
Ellen Pulleyblank Coffey	43	(14)
3. The Loss of a Child to Cancer: From Case to Caseworker
Roberta Hoffman	57	(15)
4. September 11: Reflections on Living with Dying in Disaster Relief
Les Gallo-Silver and Penny Damaskos	72	(23)
PART II THEORETICAL ASPECTS OF DEATH AND DYING	95	(168)
Introduction: Theory	97	(91)
5. What Is a Respectful Death?
Stu Farber, Thomas Egnew, and Annalu Farber	102	(26)
6. Dying and Bereavement in Historical Perspective
Phyllis R. Silverman	128	(22)
7. The History of Social Work in Hospice
Mary Raymer and Dona Reese	150	(11)
8. The Interdisciplinary Team: An Oxymoron?
Inge B. Corless and Patrice K. Nicholas	161	(10)
9. Ethical Issues in End-of-Life Care: Social Work Facilitation and Proactive Intervention
Patricia O'Donnell	171	(17)
10. Spirituality and End-of-Life Care Practice for Social Workers
Carolyn Jacobs	188	(18)
11. Gender and Death: Parallel and Intersecting Pathways
Illene C. Noppe	206	(20)
12. Bereavement: A Time of Transition and Changing Relationships
Phyllis R. Silverman	226	(16)
13. Psychodynamic Theories in Grief and Bereavement
Joan Berzoff	242	(21)
PART III CLINICAL PRACTICE ISSUES IN END-OF-LIFE CARE	263	(460)
Introduction: Clinical Practice	265	(8)
14. The Trajectory of Illness
Allen Levine and Wendy Karger	273	(24)
15. Clinical Social Work Practice at the End of Life
Felice Zilberfein and Elizabeth Hurwitz	297	(21)
16. The End of Life at the Beginning of Life: Working with Dying Children and Their Families
Nancy Cincotta	318	(30)
17. Working with Dying and Bereaved Older People
Sue Thompson and Neil Thompson	348	(12)
18. Assessing Mental Health Risk in End-of-Life Care
Katherine Walsh-Burke	360	(20)
19. Pain and Symptom Management: An Essential Role for Social Work
Terry Altilio	380	(29)
20. Palliative Care and Social Work
Susan Blacker	409	(15)
21. Integrating Spirituality and Religion
Barbara Dane	424	(15)
22. A Framework for Multicultural End-of-Life Care: Enhancing Social Work Practice
Norma del Rio	439	(23)
23. Marginalization at the End of Life
Shirley Otis-Green and Christian B. Rutland	462	(20)
24. Lesbians and Gay Men at the End of Their Lives: Psychosocial Concerns
Bruce Thompson and Yvette Colón	482	(17)
25. Palliative Care for People with Disabilities
Gary L. Stein and Lucille Esralew	499	(9)
26. Clinical Practice with Groups in End-of-Life Care
Amanda L. Sutton and Daniel Liechty	508	(26)
27. Technology-Based Groups and End-of-Life Social Work Practice
Yvette Colón	534	(14)
28. Working with Families Facing Life-Threatening Illness in the Medical Setting
Susan Blacker and Alice Rainess Jordan	548	(23)
29. Helping the Bereaved
Phyllis R. Silverman	571	(22)
30. End-of-Life Bioethics in Clinical Social Work Practice
Susan Gerbino and Shelley Henderson	593	(16)
31. End-of-Life Care in the Prison System: Implications for Social Work
Sheila R. Enders	609	(19)
32. End-of-Life Care in Nursing Homes
Mercedes Bern-Klug and Kim Ellis	628	(14)
33. The Family Unity Program for HIV-Affected Families: Creating a Family-Centered and Community-Building Context for Interventions
Christian Itin, Susan McFeaters, and Susan Taylor-Brown	642	(19)
34. Social Work Consultation to Mental Health Workers Serving Children and Families Affected by Disasters
Lisa Aronson	661	(14)
35. Hematopoietic Cell 'Transplantation and the End of Life
Iris Cohen Fineberg	675	(21)
36. Oncology
John Linder	696	(27)
PART IV CONTEXT AND LEADERSHIP	723	(146)
Introduction: The Contexts of End-of-Life Care	725	(5)
37. Current Legal Issues in End-of-Life Care
Stephen Arons	730	(31)
38. Advanced Directives and Assisted Suicide: Policy Implications for Social Work Practice
Ellen Csikai	761	(17)
39. End-of-Life Care in Prisons
John Dawes and Jenny Dawes	778	(14)
40. Social Work End-of-Life Research
Betty J. Kramer and Mercedes Bern-Klug	792	(23)
41. Financing End-of-Life Care
June Simmons	815	(10)
42. 'Faking Charge: Social Work Leadership in End-of-Life Care
Esther Chachkes and Zelda Foster	825	(13)
43. The Future of Social Work in End-of-Life Care: A Call to Action
Elizabeth J. Clark	838	(10)
44. Relentless Self-Care Irene Renzenbrinh	848	(21)
Conclusion	869	(2)
Index	871