Melanie, Bird With a Broken Wing: A Mother's Story

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  • Format: Paperback
  • Copyright: 2010-03-31
  • Publisher: Brookes Pub

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Gripping, raw, and beautiful, this book reveals the struggles and rewards of caring for a child with severe disability and helps professionals work more sensitively and effectively with families of children with special needs. Written with grace and candor by special education professional Beth Harry, the book chronicles the life of her daughter, Melanie, who was born with a rare form of cerebral palsy and died less than 6 years later. Captivating the reader from page one, Dr. Harry illuminates the full spectrum of her parenting experiences¿from the day her ¿little bird¿ came into the world to the day she left. Readers will come away with a deep understanding of the complex emotions that parents experience as they adjust to life with a child who has special needs; the practical and emotional aspects of supporting a child with feeding difficulties, vision impairment, and limited motor skills; the joy parents experience when their child begins to communicate and make personal connections; the lasting impact a professional¿s words can have on a parent, and the need to provide positive support that allows a child to reach her full potential; and the services, therapies, and interventions that improved Melanie¿s quality of life¿and how they¿ve changed since her story began in the 1970s. Ideal for use as a supplemental text in courses for preservice early interventionists, early childhood special educators, special educators, and health professionals, this book gives readers an unforgettable inside look at what families experience when their child has a disability¿and how to meet their needs as their child grows. Eye-opening and inspiring, Melanie, Bird with a Broken Wing will leave a lasting impression.

Author Biography

Beth Harry, Ph.D., is Professor of Special Education, Department of Teaching Learning, School of Education, University of Miami.

Table of Contents

About the Authorp. vii
Acknowledgmentsp. ix
With a Whimperp. 2
Melaniep. 5
Empty Handsp. 7
The Sweet Birdp. 10
The Dream Is Mep. 16
Crashingp. 21
Garglingp. 26
Chokingp. 32
Vomitingp. 36
In Our Handsp. 40
“Oh, God! No!”p. 47
The Bearer of Bad Newsp. 51
Nestargelp. 58
The Spiral Staircasep. 62
Smilingp. 67
Initial Assessmentsp. 69
Seeingp. 74
Interpretingp. 79
Swallowingp. 84
Invisible Chainsp. 89
Love and Faithp. 93
Mummy Therapyp. 95
A Very Sick Babyp. 98
The Turning Pointp. 103
Sleep Feedingp. 108
Thrivingp. 111
Naming the Worldp. 114
Morning Has Brokenp. 121
Markp. 126
Seeking Another Viewp. 129
The Forest or the Trees?p. 132
Joan and Wendyp. 136
The Shade of the Immortellep. 139
Bobath Therapyp. 141
A Temporary Goodbyep. 146
“Yes!”p. 148
Back to Schoolp. 151
Magnificent Helpersp. 154
A Happy 4-Year-Oldp. 159
A New Decadep. 166
Dynamic Reassessmentp. 168
CT Scanp. 174
Btain Gazingp. 176
Mercedes and Elizabethp. 181
The Spreading Branches of the Immortellep. 185
A Fairy-Tale Morningp. 191
From Fairy Tale to Nightmarep. 194
The Worst of Timesp. 197
The Endp. 198
She Looks All Rightp. 201
Goodbyep. 203
Epiloguep. 204
Melaniep. 207
Referencesp. 209
Reader's Guidep. 211
Table of Contents provided by Ingram. All Rights Reserved.

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