The National Bioethics Advisory Commission Contributing to Public Policy

by Eiseman, Elisa

• ISBN13: 9780833033642
• ISBN10: 0833033646
• Edition: 1st
• Format: Paperback
• Copyright: 2004-01-02
• Publisher: RAND CORPORATION

Summary

Details goverment, private, and international response to the policy recommendations of the National Bioethics Advisory Commission.

Table of Contents

Preface	iii
Tables	xiii
Summary	xv
Acknowledgments	xxi
Acronyms	xxv
Introduction	1	(12)
Background on the National Bioethics Advisory Commission	1	(1)
The NBAC Reports	2	(3)
Response to NBAC's Reports and Recommendations	5	(5)
Government Response	8	(1)
Response from Professional Societies, Organizations, and Foundations	9	(1)
International Response	10	(1)
Organization of This Report	10	(3)
NBAC in the Public Eye	13	(8)
Media Reports That Mention NBAC	13	(4)
Publications About NBAC in the Academic Literature	17	(4)
Response to the Cloning Human Beings Report	21	(22)
Government Response	22	(8)
Response from the President of the United States	23	(2)
Response from Congress	25	(3)
Response from the Department of Energy	28	(1)
Response from the Food and Drug Administration	29	(1)
Response from State Government (New Jersey)	30	(1)
Response from Professional Societies, Organizations, and Foundations	30	(7)
Response from the American Association for the Advancement of Science	31	(1)
Response from the American Medical Association	32	(1)
Response from the American Society for Cell Biology	33	(1)
Response from the American Society for Investigative Pathology	33	(1)
Response from the Association of American Medical Colleges	33	(1)
Response from the Biotechnology Industry Organization	34	(2)
Response from the Federation of American Societies for Experimental Biology	36	(1)
Response from The Pew Charitable Trusts	36	(1)
Response from the United States Conference of Catholic Bishops	37	(1)
International Response	37	(6)
Response from Australia	38	(2)
Response from the United Kingdom	40	(1)
Response from the United Nations Educational, Scientific and Cultural Organization	41	(2)
Response to the Research Involving Persons with Mental Disorders that May Affect Decisionmaking Capacity Report	43	(14)
Government Response	44	(9)
Response from the President of the United States	45	(1)
Response from Congress (Congressional Testimony)	45	(1)
Response from the Department of Health and Human Services	46	(1)
Response from the Centers for Disease Control and Prevention (NIOSH)	47	(1)
Response from the National Institutes of Health	47	(5)
Response from State Government	52	(1)
Response from Professional Societies, Organizations, and Foundations	53	(2)
Response from the Alzheimer's Association	54	(1)
Response from the American Academy of Neurology and American Neurological Association	54	(1)
Response from the Association of American Medical Colleges	55	(1)
International Response	55	(2)
Response to the Research Involving Human Biological Materials: Ethical Issues and Policy Guidance Report	57	(14)
Government Response	58	(7)
Response from Congress (Legislative Action)	59	(1)
Response from the Department of Health and Human Services	60	(1)
Response from the Centers for Disease Control and Prevention	60	(1)
Response from the Food and Drug Administration	61	(1)
Response from the National Institutes of Health	62	(2)
Response from the Secretary's Advisory Committee on Genetic Testing	64	(1)
Response from State Government (Oregon)	65	(1)
Response from Professional Societies, Organizations, and Foundations	65	(2)
Response from the Federation of American Societies for Experimental Biology	66	(1)
Response from Intermountain Health Care	66	(1)
Response from The Online Ethics Center for Engineering and Science	67	(1)
International Response	67	(4)
Response from the United Kingdom	68	(1)
Response from the Organisation for Economic Co-operation and Development	68	(1)
Response from Germany	69	(1)
Response from Japan	70	(1)
Response to the Ethical Issues in Human Stem Cell Research Report	71	(32)
Government Response	74	(10)
Response from the President of the United States	75	(2)
Response from Congress	77	(4)
Response from the Department of Health and Human Services	81	(1)
Response from the National Institutes of Health	82	(2)
Response from Professional Societies, Organizations, and Foundations	84	(10)
Response from the American Association for the Advancement of Science and Institute for Civil Society	85	(2)
Response from the American Council on Education, Association of American Universities, and National Association of State Universities and Land-Grant Colleges	87	(1)
Response from the American Medical Association	88	(1)
Response from the American Society for Cell Biology	89	(1)
Response from the Association of American Medical Colleges	89	(1)
Response from the Biotechnology Industry Organization	90	(1)
Response from the Center for Bioethics and Human Dignity	91	(1)
Response from the Endocrine Society	91	(1)
Response from the Joint Steering Committee for Public Policy	92	(1)
Response from the National Academies	92	(1)
Response from the Society for Developmental Biology	93	(1)
Response from the United States Conference of Catholic Bishops	93	(1)
International Response	94	(9)
Response from the United Kingdom	94	(3)
Response from the European Parliament	97	(1)
Response from the European Group on Ethics in Science and New Technologies to the European Commission	97	(1)
Response from the International Bioethics Committee of the United Nations Educational, Scientific and Cultural Organization	98	(1)
Response from Canada	99	(1)
Response from Germany	100	(1)
Response from Japan	101	(1)
Response from Slovakia	101	(2)
Response to the Ethical and Policy Issues in International Research: Clinical Trials in Developing Countries Report	103	(10)
Government Response	104	(2)
Response from the National Institutes of Health	105	(1)
Response from Professional Societies, Organizations, and Foundations	106	(3)
Response from the American Association for the Advancement of Science	106	(1)
Response from the American Medical Association	107	(1)
Response from Public Citizen	108	(1)
International Response	109	(4)
Response from the United Kingdom	110	(1)
Response from the Global Forum for Bioethics in Research	110	(3)
Response to the Ethical and Policy Issues in Research Involving Human Participants Report	113	(16)
Government Response	116	(8)
Response from Congress	117	(3)
Response from the Department of Health and Human Services	120	(1)
Response from the Centers for Disease Control and Prevention	121	(1)
Response from the National Institutes of Health	122	(1)
Response from the Veterans Health Administration	123	(1)
Response from Professional Societies, Organizations, and Foundations	124	(2)
Response from the Alliance for Human Research Protection	124	(1)
Response from the American Association for the Advancement of Science	125	(1)
Response from the American Medical Association	126	(1)
Response from the Association of American Medical Colleges	126	(1)
International Response	126	(3)
Canada	127	(2)
Summary	129	(10)
Appendix Data Collection Methods	139	(6)
Bibliography	145