Navigating Life with Parkinson Disease

by Parashos, Sotirios; Wichmann, Rose; Melby, Todd

• ISBN13: 9780199897780
• ISBN10: 0199897786
• Edition: 1st
• Format: Paperback
• Copyright: 2012-11-20
• Publisher: Oxford University Press

Summary

Here is a marvelous guide for anyone affected by Parkinson's disease - patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practicaladvice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are highlighted for easy visibility. The authors have also included true patient stories that will both inspireand instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.

Author Biography

Sotirios Parashos, MD, is Clinical Research Lead at Struthers Parkinson's Center, Park Nicollet Methodist Hospital, in Golden Valley, Minnesota. Rose Wichmann is Manager and Lead Physical Therapist at Struthers Parkinson's Center. Todd Melby is a freelance journalist whose work has been featured on National Public Radio.

Table of Contents

About the AAN's Neurology Now™ Book Series	p. xi
Foreword	p. xv
Preface	p. xix
Introduction	p. 1
You Are Not Alone	p. 6
About This Book and How to Use It	p. 7
What Is It? Why Me?	p. 10
What Is It?	p. 11
What Causes Parkinson Disease?	p. 13
What Are the Stages of the Disease?	p. 19
Who Gets the Disease? Why Me?	p. 21
Is There Help?	p. 27
The Outlook for Parkinson's Patients	p. 30
The Motor Symptoms	p. 33
Tremor	p. 34
Bradykinesia	p. 36
Rigidity	p. 37
Loss of Balance, Freezing, and Falling	p. 38
Other Motor Symptoms	p. 41
Motor Symptoms That May Occur as a Complication of Treatment	p. 47
The Non-Motor Symptoms	p. 52
Sensory Symptoms	p. 52
Cognitive Symptoms	p. 56
Emotional and Psychiatric Problems	p. 59
Sleep	p. 63
Autonomic Nervous System Dysfunction	p. 66
Skin Problems	p. 70
Diagnosis	p. 71
Making and Verifying the Diagnosis	p. 71
The Role of the Neurologist and the Medical Team	p. 75
Frequently Asked Questions Regarding Diagnosis and Assembling a Team of Experts	p. 78
How Will My Life Change?	p. 85
Reacting to the Diagnosis	p. 88
Seeking More Information	p. 89
Frequently Asked Questions About How to Deal with the Diagnosis of Parkinson Disease	p. 90
The Next Step	p. 92
Disease Management: General Principles, Medications, and Surgery	p. 93
What Are Our Weapons in Treating Parkinson Disease?	p. 93
What If I Don't Want to Start Medications Right Away?	p. 95
Medications	p. 96
Brain Surgery for Parkinson Disease	p. 130
Disease Management: Rehabilitation Therapy, Assistive Devices, and Adaptive Equipment	p. 142
Physical Therapy	p. 142
Occupational Therapy	p. 144
Speech Therapy	p. 146
Assistive Devices and Adaptive Equipment	p. 148
Disease Management: Specific Symptoms	p. 166
Managing Tremor, Bradykinesia, and Rigidity	p. 167
Managing Balance Challenges and Freezing of Gait	p. 170
Managing Weakness and Fatigue	p. 173
Managing Dyskinesia, Dystonia, and Wearing Off	p. 174
Managing Speech and Communication Problems	p. 174
Managing Excessive Salivation, Drooling, and Thick Secretions	p. 175
Managing Swallowing Problems	p. 176
Managing Vision Problems	p. 177
Managing Difficulties with Bladder Control	p. 179
Dealing with Loss of Mobility in the Advanced Stages	p. 179
Dealing with Mild Cognitive Symptoms	p. 180
Managing Confusion, Hallucinations, and Dementia	p. 181
Dealing with Apathy, Depression, Impulsivity, and Anxiety	p. 182
Managing Sleep Changes in Parkinson Disease	p. 183
Managing Orthostatic Hypotension	p. 184
Weight Loss	p. 185
Keeping Skin in Shape	p. 186
Hospitalization	p. 187
Elective Surgery	p. 188
Medications to Avoid	p. 189
Lifestyle Changes and Disease Management	p. 190
The Importance of Exercise	p. 190
Leisure Activities	p. 195
Stress Management	p. 196
Driving	p. 197
Using Complementary Therapies	p. 199
Spirituality	p. 199
Travel	p. 200
The Power of Music and Dance	p. 201
Getting Involved in the Parkinson's Community	p. 202
Research	p. 206
Why Should I Consider Participating in Research?	p. 206
What Kinds of Research Studies May Be Open to a Person with Parkinson Disease?	p. 208
Informed Consent	p. 211
Where Can I Learn More?	p. 213
The Care Partner	p. 214
Coping with Caregiver Stress and Fatigue	p. 217
Planning for the Future	p. 221
A Caregiver's Story: Marilyn	p. 223
A Caregiver's Story: Rich	p. 225
Community Involvement, Advocacy, and Resources	p. 227
A Passion for Advocacy	p. 229
A Passion for the Arts and Helping Others	p. 230
Find Out More	p. 231
Planning For Your Future: Managing Your Personal Affairs	p. 235
Your Emergency Notebook	p. 236
Informal and Formal Arrangements	p. 238
Durable Power of Attorney	p. 243
Trusts	p. 246
Health Care Directives	p. 252
Guardianship and Conservatorship	p. 257
Your Will	p. 259
Glossary	p. 261
About the Authors and Contributors	p. 273
About the Aan and the Abf	p. 275
Index	p. 277
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