Optimizing Care for Young Children With Special Health Care Needs: Knowledge and Strategies for Navigating the System

by Sobo, Elisa J.

• ISBN13: 9781557668547
• ISBN10: 155766854X
• Edition: 1st
• Format: Paperback
• Copyright: 2007-06-30
• Publisher: Brookes Pub

Summary

How can primary care physicians and other health care providers help families get the best care and services for young children with special health care needs (CSHCN)? How can families optimize the care to which they are entitled? The answers are here in this concise resource, a one-of-a-kind field guide to all the critical issues, policies, and practices affecting medical care for children with special health care needs from birth to age 5. Blending knowledge gained from the research of nationally prominent scholars with the real-world experiences of front-line authorities such as parents, primary care physicians, and specialists, this book helps readers: create efficient and consistent medical homes that are truly responsive to the needs of children and families, build productive advocacy partnerships to bring about necessary changes in policy and programs, understand what parents experience as they learn to navigate the complex health care system, adapt to family life with their child, and pinpoint the socio-cultural biases they may have to contend with, grasp the complexities, of insurance, financing, and other resource-related programs for CSHCN. Ideal for anyone who directly assists or works with families of CSHCN-and for parents themselves-this book explains how to effectively and efficiently manage the health care system and optimize care for children with any kind of special health care need. Book jacket.

Table of Contents

About the Editors	p. vii
About the Contributors	p. ix
Foreword	p. xvii
Preface	p. xxiii
Prologue	p. xxix
Setting the Stage for Change
Children with Special Health Care Needs: Evolving Definitions, Evolving Estimates	p. 5
Policies and Programs Relevant to Children with Special Health Care Needs	p. 27
Matters of Finance: How Do We Pay for the Care of Children with Special Health Care Needs?	p. 49
The Parent Experience
Incorporating Children with Disabilities into Family Life	p. 83
Learning to Care and Advocate for Children with Special Health Care Needs: A Family Perspective	p. 115
The Provider Experience
Creating a Medical Home for Children with Special Health Care Needs	p. 135
Primary Care Practice and Children with Special Health Care Needs: Actual and Ideal	p. 149
Case Management of Children with Special Health Care Needs: The Pediatrician Perspective	p. 165
Disrupting Dreams, Making Discoveries, and Deciphering Systems of Care: The Long-Range View of the Developmental Specialist	p. 179
Present Strategies, Future Directions
Mastering the Health Care System for Children with Special Health Care Needs	p. 209
Accessing Quality Care for Children with Special Health Care Needs: The Future of Policy and Research	p. 235
Index	p. 277
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