9780692928998

The Power of Rare

by ;
  • ISBN13:

    9780692928998

  • ISBN10:

    0692928995

  • Format: Hardcover
  • Copyright: 2017-09-26
  • Publisher: Regan Arts

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Supplemental Materials

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  • The New copy of this book will include any supplemental materials advertised. Please check the title of the book to determine if it should include any access cards, study guides, lab manuals, CDs, etc.
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Summary

"The Power of Rare is equal parts science and inspiration. In her urgent drive to help her daughter, Victoria Jackson not only transformed the competitive world of biomedical research, but also created a new medical model for generations to come." —Arianna Huffington

Victoria Jackson revolutionized the beauty industry in the 1980s and '90s with her "no make-up" approach to make-up and ultimately made Victoria Jackson Cosmetics into a billion-dollar global brand. But her greatest test of the power of rare didn't come until her daughter, Ali, was diagnosed with neuromyelitis optica, or NMO—a rare, life-threatening autoimmune disease—and Victoria, driven by a mother's love, set out to find a cure for her daughter. 

Within days of hearing Ali's diagnosis in 2008, Victoria began the Guthy-Jackson Charitable Foundation to fund medical research into this often misdiagnosed orphan disease. Her "blueprint" called for breaking down the so-called silos of traditional medical research and bringing together some of the greatest minds to collaborate and share their findings. She hadn't expected to galvanize how medical research works, but within only a few years, that's just what she did. By focusing on the "rare" in each of us, the foundation has catalyzed breakthroughs in NMO in record time. These advances are also opening new doors to solving MS, lupus, and other autoimmune diseases—plus diseases that are not so rare, including cancer, infection, aging, and more. 

It has been Victoria's guiding philosophy that if she can do it, anyone can. With The Power of Rare, she shares how the foundation harnessed the power of rare to speed discoveries that help patients. Through her business savvy, wit, and heart, she offers real-world advice and inspiration for others to tap into "rare" to empower their own breakthroughs. 

Author Biography

Victoria Jackson is the proud mother of three children—Evan, Ali, and Jackson. She is the founder of Victoria Jackson Cosmetics and head of the Guthy-Jackson Charitable Foundation. She is a passionate advocate of women's issues and tireless philanthropist. The co-author of Saving Each Other with her daughter, Ali Guthy, she lives with her husband, Bill Guthy, in Los Angeles. 

Dr. Michael Yeaman is a pioneer of immune health, and serves as the Chair of Advisors to the Guthy-Jackson Charitable Foundation. Author of over 200 scholarly works and 20 patents, he is Professor of Medicine, UCLA David Geffen School of Medicine, and Chief of Molecular Medicine, Harbor-UCLA Medical Center. A native of Roswell, New Mexico—where his life of rare began—Michael is an acclaimed composer and musician interested in the unity of art, science and medicine. 

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