Quality of Life in Epilepsy: Beyond Seizure Counts in Assessment and Treatment

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  • Edition: 1st
  • Format: Hardcover
  • Copyright: 2000-12-01
  • Publisher: Psychology Pres

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Though clinical aspects of epilepsy such as seizure control are crucially important to its management, increasing attention is being given to wider quality of life issues. Epilepsy continues to be an often misunderstood and stigmatising condition; for the vast majority of people whose seizures can be well controlled, the social and psychological repercussions are often of greater significance than the seizures themselves. The increasing emphasis on the importance of non-clinical outcomes in the assessment of new treatments and management strategies for chronic conditions such as epilepsy has stimulated interest in methodological issues in assessing quality of life. This book reviews the recent literature on the impact of epilepsy on everyday experience and the methodological issues involved in assessing that impact. It also considers the perspectives of a range of health professionals involved in caring for people with epilepsy and how, through appropriate management, the impact on their lives can be minimised.

Table of Contents

Tables, Illustrations and Boxes
Foreward xiii
Jerome Engel Jr.
Preface xv
List of Contributors
The problem of epilepsy
Ann Jocoby
Gus A. Baker
Clinical Management of Epilepsy
Management of epilepsy: From diagnosis to intractability
John-Paul Leach
Veronica Leach
David Chadwick
Managing cognitive and behavioural consequences of epilepsy
Albert P. Aldenkamp
Marc Hendriks
Quality of Life Issues in epilepsy
Theoretical and methodological issues in measuring quality of life
Ann Jocoby
A review of currently availble quality of life measures
Nicole von Steinbuchel
Sabine Heel
Monika Bullinger
Impact of epilepsy on quality of life in adults: A review
Bruce Hermann
Malachy Bishop
Quality of life issues for children and adolescents with epilepsy
Joan K. Austin
David W. Dunn
Quality of life issues for older people with epilepsy
Raymond C. Tallis
Epilepsy and learning disability: Implications for quality of life
Colin A. Espie
Mike Kerr
Contributions of Quality of Life Assessment to Patient Management
A physcian reflects on quality of life
Tim Betts
Can quality of life assessments contribute to everyday clinical practice?
Harry W. McConnell
Peter J. Snyder
Use of quality of life assessment as an outcome measure in clinical research
Gus A. Baker
Quality of life as an outcome measure: A pharmaceutical industry perspective
Pauline McNulty
Stefan K.F. Schwabe
Dennis D. Gagnon
Improving Quality of Life in Epilepsy
Living with epilepsy: A personal account
Janet Follett
Living with epilepsy: A family perspective
Kathy Bairstow
The role of the primary care practitioner
Simon J. De Groot
The contribution of the clinical psychologist
Laura H. Goldstein
The contribution of the nurse
Anne Sweeney
The role of the social worker
Patricia A. Gibson
Support groups for people with epilepsy
Philip Lee
Improving quality of life: The next steps
Gus A. Baker
Ann Jacoby
Appendix: The epilepsy associations 299(12)
Index 311

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