Risky Relations Family, Kinship and the New Genetics

by Featherstone, Katie; Atkinson, Paul; Bharadwaj, Aditya; Clarke, Angus

• ISBN13: 9781845201784
• ISBN10: 1845201787
• Format: Hardcover
• Copyright: 2006-01-14
• Publisher: Berg Pub Ltd

Summary

More and more conditions are now identified as having a genetic component, and controversial new genetic technologies potentially have major consequences for social relations and self-identity. How do family members respond to the information that they have a genetically transmitted disease or condition? How do they communicate (or not communicate) about their shared heritage? How do they decide who to tell and who not to tell within their family? Richly illustrated with the real experiences of individuals and families, Risky Relations is essential reading for anthropologists and sociologists of health and medicine, specialists in family and kinship, and health professionals concerned with the treatment and counseling of clients with genetic conditions. The lived impact of genetic technology on understanding within families with genetic conditions has never been systematically explored.

Author Biography

Katie Featherstone is a Research Fellow in the Centre for Social and Economic Aspects of Genomics, Cardiff University. Aditya Bharadwaj is a Research Associate in the Centre for Social and Economic Apects of Genomics, Cardiff University. Angus Clarke is Professor and Honorary Consultant in Clinical Genetics at the University of Wales College of Medicine. Paul Atkinson is Distinguished Professor of Sociology at Cardiff University, and Associate Director of the ESRC Centre for Social and Economic Aspects of Genomics.

Table of Contents

Preface	vii
Acknowledgements	xiii
1 Risky Relations and Other Complexities	1	(24)
2 Accomplishing Kinship	25	(32)
3 Routes and Journeys: Beliefs about Inheritance and Routes of Transmission	57	(16)
4 Mutual Surveillance	73	(18)
5 Practical Ethics and Disclosure	91	(26)
6 Family Narratives	117	(22)
7 Risky Relations	139	(12)
Appendix: Summary of Conditions	151	(8)
References	159	(10)
Index	169