Road Map to Holland : How I Found My Way Through My Son's First Two Years with down Symdrome

by Groneberg, Jennifer Graf

• ISBN13: 9780451222954
• ISBN10: 0451222954
• Format: Paperback
• Copyright: 2008-04-01
• Publisher: NAL Trade

Summary

An exceptional memoir that provides emotional insight and practical advice. It's like planning a trip to Italy, only to get off the plane and discover you're actually in Holland. You need a new road map, and fast... When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome. Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.

Author Biography

Jennifer Graf Groneberg lives in Northwest Montana with her husband and three children. She is an active member of the National Down Syndrome Society and the National Association of Down Syndrome. Author website: jennifergrafgroneberg.com.

Table of Contents

At First, It Hurts to Breathe	p. 1
Slipping	p. 15
Please, Come Back to Me	p. 35
Home Is Not Where You Thought It Was	p. 53
Caffeine	p. 71
Cathy Can't Handle Us	p. 90
They All Do That	p. 108
I Think I Remember	p. 129
Some Days Are Better Than Others	p. 145
Alphabet Soup	p. 162
Taxi Rides	p. 179
More, More	p. 195
Everybody's Baby but My Own	p. 214
Parting Gifts	p. 229
Chapter Notes	p. 243
Glossary of Terms	p. 253
Resources	p. 263
"Welcome to Holland"	p. 291
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