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9789639241756

Society and Genetic Information : Codes and Laws in the Genetic Era

by
  • ISBN13:

    9789639241756

  • ISBN10:

    963924175X

  • Format: Paperback
  • Copyright: 2004-04-01
  • Publisher: Central European Univ Pr

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Table of Contents

ABOUT THE AUTHORS 9(4)
LIST OF TABLES AND FIGURES 13(1)
LIST OF ABBREVIATIONS 14(3)
PREFACE by Octavi Quintana-Trias 17(4)
INTRODUCTION
Judit Sándor: Genetic Information: Science, Society, and Legal Norms
21(36)
I. GENETIC INFORMATION AND BIOMEDICAL SCIENCE
Pál Venetianer: Genetic Revolution?
Consequences for Science and Society
57(10)
István Rasko: What Can We Do with Our Genetic Knowledge?
67(14)
II. GENETIC INFORMATION: ETHICAL AND CULTURAL ASPECTS
Béla Somfai: Religious Traditions and Stem Cell Research
81(14)
Imre Szebik: Moral Dilemmas of Gene Transfer Techniques
95(10)
III. LAW IN THE GENETIC ERA
Roberto Andorno: Seeking Common Grounds on Genetic Issues: The UNESCO Declaration on the Human Genome
105(20)
David Townend: Who Owns Genetic Information?
125(20)
Sheila McLean: The Genetic Testing of Children
145(16)
Gregor Wolbring: A Disability Rights Approach to Genetic Discrimination
161(26)
Jürgen Simon: Insurance and Genetic Testing in Germany and the International Context
187(16)
IV. GENETIC DATABANKS
Ragnar Aoalsteinsson: The Constitutionality of the Icelandic Act on a Health Sector Database
203(10)
Krista Kruuv and Ants Nomper: The Estonian Genome Project
213(12)
Valdis Pirags and Elmdrs Grens: The Latvian Genome Project
225(8)
Aivita Putnina: Population Genome Project in Latvia: Exploring the Articulation of Agency
233(14)
Alan Doyle, Frances Rawle, and Peter Greenaway: The UK Biobank
247(20)
APPENDIX 267(122)
Legal and Ethical Norms in the Field of Genetics. A Selection of International and National Legal Documents, Reports, and Policy Recommendations
267(16)
Universal Declaration on the Human Genome and Human Rights (UNESCO, 1997)
283(8)
International Declaration on Human Genetic Data (UNESCO, 2003)
291(14)
Convention on Human Rights and Biomedicine (Council of Europe, 1997)
305(14)
Additional Protocol on the Prohibition of Cloning Human Beings (Council of Europe, 1998)
319(4)
European Biotechnological Directive (European Parliament and the Council of Europe, 1998)
323(16)
Health Sector Database Act (Iceland, 1998)
339(10)
Biobanks Act (Iceland, 2000)
349(8)
Human Genes Research Act (Estonia, 2001)
357(18)
Human Genome Research Act (Latvia, 2003)
375(14)
BIBLIOGRAPHY 389(18)
INDEX 407

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