Source Book in Bioethics

by Jonsen, Albert R.; Veatch, Robert M.; Walters, Leroy

• ISBN13: 9780878406852
• ISBN10: 0878406859
• Edition: Reprint
• Format: Paperback
• Copyright: 2000-01-01
• Publisher: Georgetown Univ Pr

Summary

Brings together core bioethics legislative documents, court briefs, and reports by professional organizations, public bodies, and governments around the world. Documents are organized in sections on ethics of research with human subjects, ethics of death and dying, issues in human genetics, issues arising from human reproductive technologies and arrangements, and ethical issues in a changing health care system.

Author Biography

Albert R. Jonsen is a professor of ethics in medicine and chairman of the Department of Medical History and Ethics at the University of Washington School of Medicine. Robert M. Veatch is professor of medical ethics and former director of the Kennedy Institute of Ethics at Georgetown University. Leroy Walters is Joseph P. Kennedy Professor of Christian Ethics and director of the Kennedy Institute of Ethics.

Table of Contents

Preface	ix
Introduction	1	(2)
Albert R. Jonsen
The Ethics of Research with Human Subjects	3	(108)
A Short History	5	(6)
Albert R. Jonsen
The Nuremberg Code	11	(2)
Declaration of Helsinki: Recommendations Guiding Medical Doctors in Biomedical Research Involving Human Subjects	13	(3)
On the Protection of Human Subjects: U.S. Department of Health, Education and Welfare's Institutional Guide	16	(6)
The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research: National Commission	22	(7)
Research on the Fetus: National Commission	29	(11)
Research Involving Children: National Commission	40	(14)
Institutional Review Boards: National Commission	54	(8)
Federal Regulations Regarding the Protection of Human Subjects of Research	62	(14)
Final Report of the Tuskegee Syphilis Study Ad Hoc Advisory Panel	76	(12)
Research on In Vitro Fertilization: Ethics Advisory Board DHEW	88	(15)
Human Fetal Tissue Transplantation Research Panel: National Institutes of Health	103	(8)
The Ethics of Death and Dying	111	(142)
The Ethics Of Death And Dying: Changing Attitudes Toward Death And Medicine	113	(5)
Robert M. Veatch
Defining Death: Medical, Legal, and Ethical Issues in the Definition of Death: President's Commission	118	(25)
In the Matter of Karen Quinlan: The Supreme Court, State of New Jersey	143	(6)
The California Natural Death Act: State of California	149	(4)
Superintendent of Belchertown State School v. Saikewicz	153	(6)
Deciding to Forego Life-Sustaining Treatment: Ethical, Medical, and Legal Issues in Treatment Decisions: President's Commission	159	(61)
In the Matter of Claire Conroy: The Supreme Court, State of New Jersey	220	(9)
Cruzan v. Director, Missouri Department of Health: U.S. Supreme Court	229	(9)
Child Abuse and Neglect Prevention and Treatment: Final Rule	238	(9)
In the Matter of Baby K	247	(6)
Ethical Issues in Human Genetics	253	(82)
Issues In Genetics	255	(5)
LeRoy Waiters
Genetic Screening: Programs, Principles, and Research	260	(3)
Screening and Counseling for Genetic Conditions: President's Commission	263	(25)
Assessing Genetic Risks: Implications for Health and Social Policy: Institute of Medicine	288	(8)
Recommendation 934: On Genetic Engineering: Council of Europe	296	(3)
Splicing Life: The Social and Ethical Issues of Genetic Engineering with Human Beings: President's Commission	299	(15)
NIH ``Points to Consider'' for Gene Therapy Researchers	314	(3)
Gene Therapy for Human Patients: Information for the General Public	317	(2)
Gene Therapy in Man: Recommendations of European Medical Research Councils	319	(3)
The Declaration of Inuyama: CIOMS	322	(2)
Mapping and Sequencing the Human Genome: National Academy of Sciences	324	(3)
Mapping Our Genes: The Genome Projects-How Big, How Fast? : Office of Technology Assessment	327	(8)
Ethical Issues Arising from Human Reproductive Technologies and Arrangements	335	(72)
Readings On Human Reproduction: Introduction	337	(4)
LeRoy Walters
HEW Support of Research Involving in Vitro Fertilization and Embryo Transfer: Ethics Advisory Board DHEW	341	(2)
Committee to Consider the Social, Ethical and Legal Issues Arising from In Vitro Fertilization-First Interim Report of the Waller Committee, Victoria, Australia	343	(4)
Report of the Committee of Inquiry into Human Fertilisation and Embryology: The Warnock Committee, United Kingdom	347	(11)
Ethical Considerations of the New Reproductive Technologies: American Fertility Society	358	(11)
Instruction on Respect for Human Life: The Congregation for the Doctrine of the Faith	369	(7)
In the Matter of Baby M, New Jersey Supreme Court	376	(10)
Infertility: Medical and Social Choices-U.S. Congress, Office of Technology Assessment	386	(9)
Ethics of New Reproductive Technologies: The Glover Report to the European Commission	395	(3)
Ethical Issues in Surrogate Motherhood: American College of Obstetricians and Gynecologists	398	(5)
Proceed with Care: Final Report of the Royal Commission on New Reproductive Technologies	403	(4)
Ethical Issues In the Changing Health Care System	407	(98)
The Changing Health Care Scene	409	(3)
Robert Veatch
The Uniform Anatomical Gift Act	412	(6)
Organ Transplantation: Issues and Recommendations	418	(30)
Canterbury v. Spence, District of Columbia	448	(15)
Making Health Care Decisions: The Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship: President's Commission	463	(31)
Tarasoff v. Regents of University of California, Supreme Court of California	494	(11)
Index	505