Supportive care for the person with dementia

by Hughes, Julian; Lloyd-Williams, Mari; Sachs, Greg

• ISBN13: 9780199554133
• ISBN10: 0199554137
• Edition: 1st
• Format: Hardcover
• Copyright: 2010-02-01
• Publisher: Oxford University Press

Summary

Supportive care can be thought of as an extension of palliative care so that the person with dementia receives good quality, holistic care that makes no distinctions between the dichotomies of care and cure from the time of diagnosis until, and beyond, death. It recognizes the need for aninter-disciplinary approach and for continuity of care. Supportive care in dementia must, therefore, be broad in its scope and application. Supportive Care for the person with dementia provides just such a broad and full perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people withdementia. Making-use-of real-life reports from both patients and carers to help readers fully understand the reality of dementia, the book examines the key principles that guide the practice of supportive care. It looks at how supportive care can be used, and specific benefits a care model of thistype can bring to the complex problems that are frequently encountered when treating this condition. It is an ideal resource for all clinicians who are part of an interdisciplinary team caring for sufferers with this debilitating illness.

Author Biography

Dr Julian C Hughes read Philosophy, Politics and Economics at Oxford prior to studying medicine in Bristol. He then served in the Royal Air Force, but completed his higher training in psychiatry in Oxford and, at the same time, undertook a PhD in Philosophy at Warwick. Since taking up consultant posts, first in Newcastle, and subsequently in North Tyneside, he has pursued his academic interest in ethics and philosophy in connection with ageing and dementia. This has led to a particular interest in palliative care in dementia. He was an advisor on ethics and palliative care to the NICE-SCIE Guideline on Dementia, which reported in 2006, and a member of the Dementia Working Party of the Nuffield Council on Bioethics, which reported in 2009. Professor Mari Lloyd-Williams qualified from Leicester University medical school and following posts in oncology, general medicine, psychiatry and primary care completed her higher training in palliative medicine at University of Leicester Hospitals and LOROS Hospice and was appointed Consultant and Honorary Senior Lecturer to the University of Leicester Hospitals Trust and LOROS Hospice in 2000. In 2002 she was appointed as Senior Lecturer at the University of Liverpool and in 2003 was promoted to a personal chair within the School of Population, Community and Behaviour in recognition of her research experience and portfolio. She has published over 100 papers and the acclaimed book " Psychosocial Issues in Palliative Care" has recently appeared in a second edition and she lectures both nationally and internationally. Dr. Sachs received his B.A. from the University of Chicago in 1981 and his MD from Yale University in 1985. He trained in internal medicine at the University of Chicago, staying on to complete a combined three-year geriatrics and clinical ethics fellowship under the mentorship of Dr. Christine Cassel. Dr. Sachs joined the University of Chicago faculty in 1990 and became the founding Chief of the new Section of Geriatrics there in 2000, serving in that role until his move to IU in the summer of 2007.

Table of Contents

Characterizing care

An introduction to the dementias: a clinical view

The view of the person with dementia

The view of the family carer

Offering supportive care in dementia: reflections on the PEACE programme

Services for younger adults with dementia

Huntington's disease and dementia

Patients with HIV-associated dementia

Down's syndrome and dementia: a framework for practice to support people with Down's syndrome and dementia living in generic care homes

Dementia care in developing countries

Ingredients and issues in supportive care for people with dementia: summarizing from models of care

Pharmacological management of neuropsychiatric symptoms in people with dementia

Hospital admissions in dementia

Distress and pain in dementia

The role of the family doctor in supportive care for people with dementia

Community mental health nursing and supportive care

From psychological interventions to a psychology of dementia

Supportive care:social care and social work approaches

Care homes and long-term care for people with dementia

Assisted living programmes providing supportive care for dementia

Spiritual care of people with dementia and their carers

Anticipatory and disenfranchised grief among dementia family caregivers: helping spouse and adult/child caregivers to cope

Communicating with people with dementia

Maintaining the self in dementia

Person-centred care as supportive care

Narrative, supportive care, and dementia: a preliminary exploration

Persons with severe dementia and the notion of bodily autonomy

Advance care planning: an American view

Advance care planning and palliative care in dementia: a view from the Netherlands

Living and dying at home with dementia

Namaste care and dying in institutional settings

The principles and practice of supportive care in dementia

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