User Participation in Health and Social Care Research

by Nolan, Mike; Hanson, Elizabeth; Grant, Gordon; Keady, John

• ISBN13: 9780335222056
• ISBN10: 0335222056
• Edition: 1st
• Format: Paperback
• Copyright: 2007-10-01
• Publisher: Open University Press

Summary

User participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation.The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice. In addition the text: Considers the issues, challenges and rewards of user participation research Draws on the actual experience of doing research and working with users Includes the voices and contributions of users in reporting research User Participation in Health and Social Care Research: Voices, Values and Evaluation is key reading for students, researchers, practitioners and users themselves wishing to undertake participative research involving service users.

Table of Contents

List of figures	p. ix
List of tables	p. x
List of contributors	p. xi
Acknowledgments	p. xix
Introduction: what counts as knowledge, whose knowledge counts? Towards authentic participatory enquiry	p. 1
ACTION (Assisting Carers using Telematic Interventions to meet Older people's Needs): practitioners' reflections on a Swedish innovation	p. 14
Partnerships in best practice: advancing gerontological care in Scotland	p. 33
Changing the culture within care homes for older people	p. 50
'A changing life': co-constructing a personal theory of awareness and adjustment to the onset of Alzheimer's disease	p. 69
Innovative approaches to living with dementia: an Australian case study	p. 89
Looking in a fairground mirror: reflections on partnerships in learning disability research	p. 104
Doing user research: narratives of mental health service user researchers	p. 120
Carers of people with mental health problems as co-researchers: reflections on the Partnerships in Carer Assessment Project (PICAP)	p. 134
Involving children, young people and parents in knowledge generation in health and social care research	p. 151
Engaging community leaders and students in rural American community-based participatory research	p. 166
Conclusions: realizing authentic participatory enquiry	p. 183
References	p. 203
Index	p. 225
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