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9780262545419

Data Paradoxes The Politics of Intensified Data Sourcing in Contemporary Healthcare

by
  • ISBN13:

    9780262545419

  • ISBN10:

    0262545411

  • Format: Paperback
  • Copyright: 2023-04-18
  • Publisher: The MIT Press

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Summary

Why healthcare cannot—and should not—become data-driven, despite the many promises of intensified data sourcing.

In contemporary healthcare, everybody seems to want more data, of higher quality, on more people, and to use this data for a wider range of purposes. In theory, such pervasive data collection should lead to a healthcare system in which data can quickly, efficiently, and unambiguously be interpreted and provide better care for patients, more efficient administration, enhanced options for research, and accelerated economic growth. In practice, however, data are difficult to interpret and the many purposes often undermine one another. In this book, anthropologist and STS scholar Klaus Hoeyer offers an in-depth look at the paradoxes surrounding healthcare data.

Focusing on Denmark, a world leader in healthcare data infrastructures, Hoeyer shares the perspectives of different stakeholders, from epidemiologists to hospital managers, from patients to physicians, analyzing the social dynamics set in motion by data intensification and calling special attention to that which cannot be easily coded in a database. HHe illustrates how data can be at once helpful, overwhelming, and sometimes disastrous through concrete examples. The COVID-19 pandemic serves as a special closing case study that shows how these data paradoxes carry weighty political implications. By revealing the diverse and sometimes contradictory practices spawned by intensified data sourcing, Data Paradoxes raises vital questions about how we might better use healthcare data.

Author Biography

Klaus Hoeyer is Professor of Medical Science and Technology Studies at the University of Copenhagen and author of the book Exchanging Human Bodily Material: Rethinking Bodies and Markets.

Table of Contents

Preface vii
Introduction: Data Politics 1
1 Data Promises 29
2 Data Living 59
3 Data Work 87
4 Data Experiences 117
5 Data Wisdom 145
6 Data Pandemic 179
Conclusion: Data Paradoxes 213
Notes 239
References 249
Index 301

Supplemental Materials

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The Used, Rental and eBook copies of this book are not guaranteed to include any supplemental materials. Typically, only the book itself is included. This is true even if the title states it includes any access cards, study guides, lab manuals, CDs, etc.

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